Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for May 2024

Stereotypes, getting older and illness

Hi, I just had a thought about the psychological effects of experiencing a chronic illness. When I experienced 3 months of undiagnosed PMR 2 years ago the...

Hi, I just had a thought about the psychological effects of experiencing a chron...

Animalover65

•5 months ago

57 Replies

return of GCA

Hi everyone, I’ve not been on the site for a long time as I thought I was better re GCA . I’ve recently , well for a good few months been very poorly with...

Hi everyone, I’ve not been on the site for a long time as I thought I was bette...

2013mayo

•5 months ago

19 Replies

Update- Moderna Spikevax

Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which...

Just to update. Received blood result and all within rang with the exception of ...

Pebblegod

•5 months ago

15 Replies

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Wedding

My daughter is getting married tomorrow and the preparation has took a lot out of me.Should I up my Prednisone for a few days? I am on 7.5 mgs.Been so busy I...

My daughter is getting married tomorrow and the preparation has took a lot out o...

Hunter134

•5 months ago

10 Replies

First appointment with nhs Rheumy

Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware...

Hi, I had my first nhs appointment with the Rheumy who is based at the same heal...

Wonderfullifeandmore

•5 months ago

6 Replies

Dorset Lady's slow taper

Hello, this is for Dorset Lady. I copied your slow taper for five weeks, 7 weeks - but forgot to check what drop in dose - is it half a mg? This month,...

Hello, this is for Dorset Lady. I copied your slow taper for five weeks, 7 week...

Bennijax

•5 months ago

1 Reply

Split dose

I first developed PMR in May 2018 and managed successfully to come off Pred in Dec 2020. All well for 2.5 years until a resurgence in symptoms in May 2023....

I first developed PMR in May 2018 and managed successfully to come off Pred in D...

Inertia

•5 months ago

12 Replies

Split dose

Hi, I first developed PMR in May 2018 and managed successfully to come off Pred in Dec 2020. All well for 2.5 years until a resurgence in symptoms in May...

Hi, I first developed PMR in May 2018 and managed successfully to come off Pred...

Inertia

•5 months ago

3 Replies

Stomach upset - link to Omeprazole?

Hi lovely forum people,I have had an upset/gripey tummy for 5 days. Otherwise feeling ok and eating normally. Stomach has been fine since I started...

Hi lovely forum people,I have had an upset/gripey tummy for 5 days. Otherwise fe...

TillyBrown

•5 months ago

33 Replies

Hi everyone.Back from not so sunny Spain (lashed down)

Hi, my holiday did me the world of good but I was totally stressed free!I've tapered to 9mg from 10mg and feel ok. I'm asking advice about Calcium and Vit D...

Hi, my holiday did me the world of good but I was totally stressed free!I've tap...

Tescohednesford

•5 months ago

6 Replies

Update on “aching arm and cold hand” - (and fractured shoulder)

I now have an appointment at a Vascular Clinic in July…BUT events have overtaken me…10 days ago I tripped on a toy car and fell on a wooden floor! I have a...

I now have an appointment at a Vascular Clinic in July…BUT events have overtaken...

KerryIreland

•5 months ago

2 Replies

Prednislone reducing and increased glaucoma

Hi I am down to 3.5mg Pred from 100mg for Temporal Arteritis. My vision has got extremely bad.I have Steroid induced glaucoma.I saw a chemist.She thinks I...

Hi I am down to 3.5mg Pred from 100mg for Temporal Arteritis. My vision has got ...

Raewynne

•5 months ago

16 Replies

Does PMR affect one side of your body more than the other ?

I have only just been diagnosed two weeks ago but I have noticed a distinct difference in how PMR is affecting my RHS more than my left . And how long the...

I have only just been diagnosed two weeks ago but I have noticed a distinct diff...

Murphysauntie

•5 months ago

6 Replies

glaucoma

I’m a. glaucoma patient. Recently suffer from muscle pain at night. Anyone else report this side effect. I’m 75 yrs

I’m a. glaucoma patient. Recently suffer from muscle pain at night. Anyone else ...

Queenieio

•5 months ago

1 Reply

..... and now the next thing comes along !!

Hi, As if I thought things could not get any worse, I have just been diagnosed with sciatica, having suffered with the PMR for the past year and wondered if...

Hi, As if I thought things could not get any worse, I have just been diagnosed...

gillsky8

•5 months ago

15 Replies

cbd gummies and prednisone

anybody wean off prednisone with CBD gummy’s been on 9 1/2 years several flares of GCA and PMR start d with 60 mg after biopsy , can never get below six or...

anybody wean off prednisone with CBD gummy’s been on 9 1/2 years several flares...

casse

•5 months ago

5 Replies

gastric upset

Good afternoon wise people, I gave been on Prednisolone for almost 2 years , stopped my Lansoprazole 9 months ago with no ill effects . Now over the last 4...

Good afternoon wise people, I gave been on Prednisolone for almost 2 years , st...

5goFlotilla

•5 months ago

15 Replies

Endurance Athlete w PMR

I was diagnosed with PMR at age 55, days after completing an Ironman race. I was on antibiotics for a bad sinus infection during the race. Not sure if PMR was...

I was diagnosed with PMR at age 55, days after completing an Ironman race. I was...

Runbikeswim2

•5 months ago

14 Replies

Fatigue..again...Moderna jab?

Hello everyone. Reduced to 2.75, working slowly towards 2.5. Back from lovely break in Ireland tracing my roots. Had Moderna jab, aching arm and headache,...

Hello everyone. Reduced to 2.75, working slowly towards 2.5. Back from lovely br...

Temoral

•5 months ago

7 Replies

Sertraline and Dark Circles under Eyes.

I’ve been taking Sertraline and Gabapentin for a few months and have o developed really pronounced dark eye circles. I have lost weight as well. Has anyone...

I’ve been taking Sertraline and Gabapentin for a few months and have o developed...

autumnlass

•5 months ago

15 Replies

Prednisolone tapering below 3mgs

Over 3 years have tapered between 30mgs and zero, at which point suffered a flare up having reduced by 1 mg a month once I reached 5 mgs . Recently tapering...

Over 3 years have tapered between 30mgs and zero, at which point suffered a flar...

moconnolly

•5 months ago

8 Replies

update

I took the 10mg of hydrocortisone with my 6.5 of Prednislone a few days ago and I felt terrible high bp,blurry vision, high anxiety.So I’ve now decided to...

I took the 10mg of hydrocortisone with my 6.5 of Prednislone a few days ago and ...

Oscarsnan

•5 months ago

19 Replies

PMR Flare Up ?

After being on 15mg press for 5 weeks and then 12.5mg for 4 weeks I have just dropped to 10mg. Since then on two occasions after doing some physical work I...

After being on 15mg press for 5 weeks and then 12.5mg for 4 weeks I have just dr...

Foodie24

•5 months ago

3 Replies

Stomach problems

After taking my pred at 2:30 am for about 12 days with good results, I awoke this morning with a bad feeling in my stomach. I took famatodine, and that helped...

After taking my pred at 2:30 am for about 12 days with good results, I awoke thi...

Aqua47

•5 months ago

14 Replies

Prednisone vs Acterma with steroid induced diabetes. Really terrified

Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to...

Update: April 2024 was scheduled for eye surgery for Strabismus which was cancel...

JanetGarrettN

•5 months ago

61 Replies

Caffeine and GCA Headaches

Just a quick question..... if coffee/caffeine helps relieve a headache does that tend to either confirm or rule out that the headache is GCA related? Thanks

Just a quick question..... if coffee/caffeine helps relieve a headache does tha...

montebello

•5 months ago

23 Replies

Best wishes and thank you!

A big thank you to James Robinson who's running the Leeds marathon on Sunday to raise funds for PMRGCAuk. A big thank you also to many of you here on our...

A big thank you to James Robinson who's running the Leeds marathon on Sunday to ...

Fran_Benson

Partner•5 months ago

2 Replies

Feeling a greasy taste

I have been feeling greasy taste in my mouth for about a week now, I'm taking Ciprotab. Please can it cause it and what should I do to resolve it

I have been feeling greasy taste in my mouth for about a week now, I'm taking Ci...

ToniaC

•5 months ago

5 Replies

The honey bee

I have been looking at the delightful picture of the Italian honey bee with pollen on its legs. What I am puzzled about is on the right. I cannot make out...

I have been looking at the delightful picture of the Italian honey bee with pol...

prunus

•5 months ago

10 Replies

Spoke too soon

After I posted, I found some chatter from four years ago addressing my concerns. It seems like I just need to wait to taper until I have better control of my...

After I posted, I found some chatter from four years ago addressing my concerns....

Bummed24

•5 months ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

Stereotypes, getting older and illness

return of GCA

Update- Moderna Spikevax

Wedding

First appointment with nhs Rheumy

Dorset Lady's slow taper

Split dose

Split dose

Stomach upset - link to Omeprazole?

Hi everyone.Back from not so sunny Spain (lashed down)

Update on “aching arm and cold hand” - (and fractured shoulder)

Prednislone reducing and increased glaucoma

Does PMR affect one side of your body more than the other ?

glaucoma

..... and now the next thing comes along !!

cbd gummies and prednisone

gastric upset

Endurance Athlete w PMR

Fatigue..again...Moderna jab?

Sertraline and Dark Circles under Eyes.

Prednisolone tapering below 3mgs

update

PMR Flare Up ?

Stomach problems

Prednisone vs Acterma with steroid induced diabetes. Really terrified

Caffeine and GCA Headaches

Best wishes and thank you!

Feeling a greasy taste

The honey bee

Spoke too soon

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