Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for May 2024

flares and adrenals

hi folks me again I posted 2 weeks ago about statins. I am on 2.5 mg of prednisone and have been for a month. Last couple of days feel a lot more shoulder...

hi folks me again I posted 2 weeks ago about statins. I am on 2.5 mg of predniso...

Skier321

•5 months ago

7 Replies

PMR flare or sciatica getting worse!?

All the original discomfort and pain of the first bout of PMR seems to have returned. In my hips and thighs, so very painful and I feel thoroughly exhausted....

All the original discomfort and pain of the first bout of PMR seems to have retu...

gillsky8

•5 months ago

7 Replies

Results of our GCA and Tocilizumab Survey Published

Hi everyone, earlier this year we surveyed some GCA patients (members of the charity and on our forum here) who had previously been prescribed tocilizumab but...

Hi everyone, earlier this year we surveyed some GCA patients (members of the cha...

Fran_Benson

Partner•5 months ago

19 Replies

Want to take advantage of all our features? Just log in!

I am back! In need of your excellent advice...

After successfully reducing to zero pred last autumn, the symptoms began to reappear. After advice about how to deal with a flare I increased the dose (to...

After successfully reducing to zero pred last autumn, the symptoms began to reap...

Sarnano

•5 months ago

2 Replies

Pain from MRI SCAN

Has anyone had severe overall muscle pain after an MRI scan?

ScrubJayNorth

•5 months ago

5 Replies

Private Rheumatologist in York

I need your help again. I have recently moved to York and have been talking to the Rheumatology nurses about my prescription for Barcitinib which can only be...

I need your help again. I have recently moved to York and have been talking to t...

Mamamia21

•5 months ago

19 Replies

Testosterone Replacement Therapy

Hi all, this thread is really aimed at male PMR patients who are receiving or who are considering Testosterone Replacement Therapy (that's not to say that...

Hi all, this thread is really aimed at male PMR patients who are receiving or w...

OilyWiggles

•5 months ago

20 Replies

Is it back? 🙈

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar...

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. ....

Croft9232

•5 months ago

36 Replies

A Good News Morning

Hi all. I went for my 75 years and annual MOT at the doctors this morning - first time on a f2f with the new ones.It's now official "I'm Perfect Peter!!" Blood...

Hi all. I went for my 75 years and annual MOT at the doctors this morning - firs...

Bcol

•5 months ago

16 Replies

Ibuprofen gel/cream

Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck,...

Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus ...

random901

•5 months ago

17 Replies

PMR - Tales of the Unexpected

I’d been suffering with what I thought was a severe PMR flare for weeks and weeks (very stiff leg muscles and sharp cramps especially in the thighs). I was...

I’d been suffering with what I thought was a severe PMR flare for weeks and week...

7DaysinMay

•5 months ago

12 Replies

Mum's journey with adrenal insuffiency and hypothyroidism

Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pain, on two separate occasions, to two different hospitals. Mum has a history...

Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pa...

quicklyinsignificant

•5 months ago

6 Replies

Dorset Lady 5wk taper plan

please could you post Dorset Lady 5wk taper plan I photo copied it but missed bottom half of it .Thank you

please could you post Dorset Lady 5wk taper plan I photo copied it but missed bo...

Whippetygirl

•5 months ago

9 Replies

adrenal insuffiency

using dsns I’ve been at 4 mg for about 3 weeks. The last few days I felt weak, dizzy, lightheaded, and had diarrhea; couldn’t really function. Dr. Google...

using dsns I’ve been at 4 mg for about 3 weeks. The last few days I felt weak, ...

Twopies

•5 months ago

25 Replies

Should I up my dose?

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a 350km off road ride in Wessex. I’m currently relatively symptom free but wonder...

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a ...

Mervetheswerve

•5 months ago

57 Replies

medical evidence/advice re. tapering at lower doses (below7mg)

Can any of you lovely people give me some references about tapering at lower doses and how symptoms not blood results should be the priority. I want something...

Can any of you lovely people give me some references about tapering at lower dos...

Mfaepink1973

•5 months ago

24 Replies

GCA tapering advice

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very grateful for all the replies I received to my previous post. I was tapering Pred...

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very gratef...

Velofan

•5 months ago

66 Replies

METHOTREXATE

Hi I wrote a couple of weeks ago but I am looking for comments on the use of this drug for PMR.Saw Rhemy 2 weeks ago, he has recommended that after 7 years...

Hi I wrote a couple of weeks ago but I am looking for comments on the use of t...

SRIXON

•5 months ago

23 Replies

Are Massages okay with PMR?

I have a weekly body massage with oil for an hour at 9 a.m. However as of late I have felt very below parr for the rest of the day and have thought of...

I have a weekly body massage with oil for an hour at 9 a.m. However as of late ...

Motida

•5 months ago

13 Replies

15th May is International Vasculitis Awareness Day

Not that anyone takes much notice! https://www.vasculitis.org.uk/events/international-vasculitis-awareness-day#:

Not that anyone takes much notice! https://www.vasculitis.org.uk/events/interna...

HeronNS

•5 months ago

4 Replies

Meniscus tear/PMR flare update

I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I had requested more 5mg pred tablets on the MyGP app and last Friday got a call...

I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I ...

Mfaepink1973

•5 months ago

21 Replies

steroid reduction problems

I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specific way eg as when having a virus. After showering and dressing I need to sit...

I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specif...

Sheeplegs

•5 months ago

8 Replies

Is it my lungs or PMR

I have gone back in my memory trying to figure out when my issues all began and in what order. I believe my PMR started in early 2019 when preparing for a dog...

I have gone back in my memory trying to figure out when my issues all began and ...

Dydee

•5 months ago

20 Replies

Feet, ankles, wrist pain

I had a flare and had to go up to 15mg pred 2 months ago from 4.5. I was pretty much pain free. Now, as I taper, the pain is coming back in my feet and my...

I had a flare and had to go up to 15mg pred 2 months ago from 4.5. I was pretty ...

Maggieart

•5 months ago

1 Reply

Weakness and heavy legs

I have had PMR since July 2022.I am currently on 5mg having had various flares and increased the pred. My pains in my shoulders and buttocks have decreased...

I have had PMR since July 2022.I am currently on 5mg having had various flares a...

simps999

•5 months ago

11 Replies

Covid Vax and age

I’m in the US and have lupus and many other disqualifying illnesses 😊. I just read a thread in which folks thought their PMR began with Covid jabs. After 3...

I’m in the US and have lupus and many other disqualifying illnesses 😊. I just ...

MrsMarigold

•5 months ago

31 Replies

Increasing Prednisone to 40 mg?

Moaningxcat

•5 months ago

8 Replies

Update on head pain.

I did receive a prompt medical assessment this week. Based on history and bloodwork GCA has been ruled out. The headache I have is being treated with over the...

I did receive a prompt medical assessment this week. Based on history and bloodw...

FreeWolf

•5 months ago

11 Replies

Sorolla

Hello all of you brave, kind people. PMR began January 2022, diagnosed August 2023 when I started taking 10mg prednisolone. I have managed to taper to 2.5,...

Hello all of you brave, kind people. PMR began January 2022, diagnosed August 2...

Sorolla

•5 months ago

4 Replies

Difference between flare and post-exercise stiffness

I have started exercising (moderately) again. I have started going for walks and last Tuesday I did my first proper swim in four years. I did my normal lengths...

I have started exercising (moderately) again. I have started going for walks and...

Siena62

•5 months ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

flares and adrenals

PMR flare or sciatica getting worse!?

Results of our GCA and Tocilizumab Survey Published

I am back! In need of your excellent advice...

Pain from MRI SCAN

Private Rheumatologist in York

Testosterone Replacement Therapy

Is it back? 🙈

A Good News Morning

Ibuprofen gel/cream

PMR - Tales of the Unexpected

Mum's journey with adrenal insuffiency and hypothyroidism

Dorset Lady 5wk taper plan

adrenal insuffiency

Should I up my dose?

medical evidence/advice re. tapering at lower doses (below7mg)

GCA tapering advice

METHOTREXATE

Are Massages okay with PMR?

15th May is International Vasculitis Awareness Day

Meniscus tear/PMR flare update

steroid reduction problems

Is it my lungs or PMR

Feet, ankles, wrist pain

Weakness and heavy legs

Covid Vax and age

Increasing Prednisone to 40 mg?

Update on head pain.

Sorolla

Difference between flare and post-exercise stiffness

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