Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for May 2024

Should it take this long to taper with PMR/GCA?

I am so sorry to be needing advice again, but I am wondering if anyone else has struggled to wean from higher doses of Prednisone for PMR and GCA. Since late...

I am so sorry to be needing advice again, but I am wondering if anyone else has ...

Bummed24

•6 months ago

13 Replies

Cortisol levels

I was diagnosed with PMR 16 months ago. I was put on 20mg of Prednisone and not told to taper for several weeks. Since then I've been cautiously tapering by...

I was diagnosed with PMR 16 months ago. I was put on 20mg of Prednisone and not...

musclesinflamed

•6 months ago

3 Replies

Artificial sweeteners

I have reacted to artificial sweeteners for many years .At first I didn't know why I would suddenly have pain and diarrhea. Then I had a violent reaction...

I have reacted to artificial sweeteners for many years .At first I didn't know w...

Busyrobyn

•6 months ago

13 Replies

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Right Temple Pain but Tolerable

I’m currently taking 35 mg of prednisone and dropping to 30 mg on May 11. My first rheumatologist appointment is May 16. GCA was not confirmed by biopsy but...

I’m currently taking 35 mg of prednisone and dropping to 30 mg on May 11. My fi...

Moaningxcat

•6 months ago

25 Replies

Pre-medication issues for suspected PMR

Awaiting final test results for PMR and rheumatologist appt. 3 Drs. have already indicated PMR following examination, history and initial bloods. My question...

Awaiting final test results for PMR and rheumatologist appt. 3 Drs. have alread...

Fatsiajaponica

•6 months ago

4 Replies

Heebeejeebies on low pred??

I have been down to 1mg of prednisone since January and toggling back and forth between 1 and 1/2 mg since April. But I feel mentally out of whack. Paranoid....

I have been down to 1mg of prednisone since January and toggling back and forth ...

Greytree

•6 months ago

61 Replies

PMR cough

I have had PMR for 6 years and on the whole controlled with Leflunomide. Recently I have had a cough for about a month , checked by Gp who didnt feel it was...

I have had PMR for 6 years and on the whole controlled with Leflunomide. Recent...

Ritz02

•6 months ago

12 Replies

Skipping a dose of Methotrexate

Hi All, I have a question re. Is it ok to skip a dose of Methotrexate for 1 week?I am on 10mgs. Not too many symptoms apart from some cramping a day or so...

Hi All, I have a question re. Is it ok to skip a dose of Methotrexate for 1 week...

lkcreedon

•6 months ago

21 Replies

Back up to a high steroid dose

Hi everyone, I was diagnosed with PMR in 2018 if i remember correctly. After 6 years I managed to get down to 0.5mg Pred just 2 weeks ago. Then something...

Hi everyone, I was diagnosed with PMR in 2018 if i remember correctly. After 6 ...

studiomaster

•6 months ago

11 Replies

high inflammation markers but no pain.

I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests...

I was on Prednisolone for about 6 years. For the last year I have been on zero w...

Cycleman

•6 months ago

9 Replies

Pred reduction and feelings of low blood sugar

'Morning everyone! I am using DL's slow taper and have reduced to the dose which has caused flares in the past - between 5mg and 7mg. I have been on 6mg for...

'Morning everyone! I am using DL's slow taper and have reduced to the dose whic...

Miserere

•6 months ago

68 Replies

dexa scan results?

My dexa scan results came through, as below, would very much appreciate anyone being able to give me an idiots insight into the outcome? >> Lumbar spine BMD...

My dexa scan results came through, as below, would very much appreciate anyone ...

Cfmad298601

•6 months ago

5 Replies

D Dims Blood test.

Had Polymyagia for 5 years but have remained active throughout. I Recently had a severe calf pain with associated swelling. Went to A & E and had a d dimer...

Had Polymyagia for 5 years but have remained active throughout. I Recently had ...

South123

•6 months ago

15 Replies

To increase or not?

We finally had a sunny, warm day on Sunday, I went and overdid in the garden, now suffering the consequences with siftness, soreness and achiness in all the...

We finally had a sunny, warm day on Sunday, I went and overdid in the garden, no...

Orangecakes

•6 months ago

14 Replies

meniscus pain or PMR?

I’m waiting for an operation on torn meniscus which MRI confirmed. The pain in my knees has got a lot worse over the last few months and a week ago it was...

I’m waiting for an operation on torn meniscus which MRI confirmed. The pain in m...

Mfaepink1973

•6 months ago

16 Replies

Flare after Moderna Spikevax jab

I would like some help from you kind folks please. Successfully tapered down to 6gm of pred. With not too much trouble with all your advice on this forum. On...

I would like some help from you kind folks please. Successfully tapered down to ...

Pebblegod

•6 months ago

17 Replies

Stomach problems and steroids - where next

I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg. But the death of a close friend, for whom I am executor, resulted in a big...

I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg...

Hidcote

•6 months ago

28 Replies

Glasgow support group

Our next meeting is on Monday 13 May at 2pm. We meet in the offices of Health Alliance Scotland located in the Venlaw Building at 349 Bath Street, Glasgow, G2...

Our next meeting is on Monday 13 May at 2pm. We meet in the offices of Health Al...

RichardC

•6 months ago

1 Reply

Reaction to Denosumab injection

I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of...

I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was u...

Japsquar

•6 months ago

11 Replies

Welcome to our new members - May 2024

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•6 months ago

4 Replies

Unrelated PMR question, but asking for a desperate friend in need …

A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from...

A friend of mine is bewildered about what is going on with his wife’s health. H...

LemonZest11

•6 months ago

13 Replies

Is it a flare or something else?

I've had PMR/GCA for seven years and finally down to 4.5mg for many months. Yesterday I went down to 4.25 and have been in awful pain since, as bad as when I...

I've had PMR/GCA for seven years and finally down to 4.5mg for many months. Yes...

crafty_grannie

•6 months ago

14 Replies

After 2 days Prednisone feeling good already.

I have taken the Pret. for 10 days than 15mg for a week and now 10mg for a week and than 5 mg for a week. Reading some literature from the Royal College of...

I have taken the Pret. for 10 days than 15mg for a week and now 10mg for a week ...

HIITlover

•6 months ago

15 Replies

Moderna Vaccination

Had my vaccination last Monday never had a bad reaction before.This time I was rough until Thursday all the suspects headaches chills aches pains nausea....

Had my vaccination last Monday never had a bad reaction before.This time I was ...

Rene20

•6 months ago

12 Replies

where do I begin

I haven’t posted on here for quite a long time, however I read the posts every day. I was diagnosed with PMR and RA in April 2023. I have just been allocated...

I haven’t posted on here for quite a long time, however I read the posts every d...

Wonderfullifeandmore

•6 months ago

7 Replies

Info re another Auto Immune malady. Parkinson's

This info from the Michael J. Fox institute might be of interest to other followers of this site. The topic is dealing with the pain associated with...

This info from the Michael J. Fox institute might be of interest to other follow...

Canuk

•6 months ago

1 Reply

Trigger finger (and toes)

i have for a long time had a tendency for my toes to cramp and ‘lock up’ and also very occasionally my fingers too. However recently, since my PMR diagnosis,...

i have for a long time had a tendency for my toes to cramp and ‘lock up’ and als...

Sally_Bones43

•6 months ago

16 Replies

Turmeric and a Flare and Drama + Thoughts

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges...

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some succe...

Hidden

•6 months ago

35 Replies

Still suffering

Still on 6.5mg of pred just over 6 weeks now I’ve added in the occasional day of 6.25 to start a dead slow reduction again. The anxiety is still severe...

Still on 6.5mg of pred just over 6 weeks now I’ve added in the occasional day of...

Oscarsnan

•6 months ago

4 Replies

Skin problems at low dose

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However...

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though at...

Waves2

•6 months ago

51 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

Should it take this long to taper with PMR/GCA?

Cortisol levels

Artificial sweeteners

Right Temple Pain but Tolerable

Pre-medication issues for suspected PMR

Heebeejeebies on low pred??

PMR cough

Skipping a dose of Methotrexate

Back up to a high steroid dose

high inflammation markers but no pain.

Pred reduction and feelings of low blood sugar

dexa scan results?

D Dims Blood test.

To increase or not?

meniscus pain or PMR?

Flare after Moderna Spikevax jab

Stomach problems and steroids - where next

Glasgow support group

Reaction to Denosumab injection

Welcome to our new members - May 2024

Unrelated PMR question, but asking for a desperate friend in need …

Is it a flare or something else?

After 2 days Prednisone feeling good already.

Moderna Vaccination

where do I begin

Info re another Auto Immune malady. Parkinson's

Trigger finger (and toes)

Turmeric and a Flare and Drama + Thoughts

Still suffering

Skin problems at low dose

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