Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,880 posts

All posts for May 2024

Pmr , Rs3pe

My dad is 78 yrs old was fit and healthy he started having symptoms of limited shoulder movement, pain at the back of his thighs , swollen hands that he...

My dad is 78 yrs old was fit and healthy he started having symptoms of limited s...

bmwm135i

•5 months ago

24 Replies

Stopping Alendronic Acid

I've been taking Alendronic Acid along with pred (on the insistence of GPs and rheumy) for 2 years. At last I've managed to get a Dexa scan and they told me...

I've been taking Alendronic Acid along with pred (on the insistence of GPs and r...

Sammo47

•5 months ago

12 Replies

Is this a flare ?

Hi all. I don't post on here often but I read lots of other posts so know you all know so much more about this than me. I have had PMR for about 4 years and...

Hi all. I don't post on here often but I read lots of other posts so know you al...

lindtbunnynut

•5 months ago

22 Replies

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No Cominarty Vaccine!!

I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out...

I've had the call for my Spring covid booster, but unfortunately I can't have Sp...

Kendrew

•5 months ago

27 Replies

Can you help regarding symptoms?

Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't...

Full disclosure here. My ability to determine my health status is lacking. I eit...

FreeWolf

•5 months ago

10 Replies

Change of treatment

Hi all. Been on prednisone since 2017, trying to come of them several times, last time after seeing Rhemy last Sept who didnt feel I had PMR and was keen for...

Hi all. Been on prednisone since 2017, trying to come of them several times, la...

SRIXON

•5 months ago

21 Replies

Holiday at last!

Well, finally made it to Isle of Wight, despite delaying one day owing to apprehension. Drove camper-van for first time in 6 months. So glad I went. Change of...

Well, finally made it to Isle of Wight, despite delaying one day owing to appreh...

random901

•5 months ago

30 Replies

Back @ work full time and slowly recovering

I haven’t posted in a couple of months and wanted to share how my recovery has been going. Aged 52, I was diagnosed with PMR in Aug-23. I was put on 15mg of...

I haven’t posted in a couple of months and wanted to share how my recovery has b...

SpaghettiWestern99

•5 months ago

13 Replies

update

Seen rheumatologist yesterday, he doesn’t believe it’s GCA but had bloods taken and arranged an urgent MRI brain just for reassurance due to previous bleed in...

Seen rheumatologist yesterday, he doesn’t believe it’s GCA but had bloods taken ...

Numptybrain

•5 months ago

6 Replies

First rheumatologist vist

Hi not been on for a while first got advised by a dr in early 2023 i had pmr also i have fm i fought like mad not to take meds purely selfish...

Hi not been on for a while first got advised by a dr in early 2023 i had pm...

loukh

•5 months ago

23 Replies

Tapering experience

Hi All, I haven’t posted for a couple of months but have been reading the site everyday and gaining valuable information while trying to come to terms with...

Hi All, I haven’t posted for a couple of months but have been reading the site ...

Specialised

•5 months ago

19 Replies

how to handle a flare

I am doing great no pain..I’m down to 7-1/2mg from 20mg with slow taper. 1/2 mg a month over 8 mths but this week my doctor says drop to 6mg from 7-1/2...

I am doing great no pain..I’m down to 7-1/2mg from 20mg with slow taper. ...

Januzzi

•5 months ago

7 Replies

Cough, chest pressure, GCA

I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment...

I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of...

Moaningxcat

•5 months ago

15 Replies

Flare management

Having been down to 0.5mg of pred for 2 months I’m now experiencing what I assume is my first flare (after nearly 4 years of PMR). This is probably due to a...

Having been down to 0.5mg of pred for 2 months I’m now experiencing what I assum...

Dorothy61

•5 months ago

7 Replies

Advice please

I posted lately of shoulder pain but the pain seems to be in upper arms more than joints.Lowerback sore, across shoulders thumbs and wrists Had upped pred to...

I posted lately of shoulder pain but the pain seems to be in upper arms more th...

daisylazy

•5 months ago

13 Replies

GCA worry/Ophthamogist

Since my dealing with PMR for the past several years, i have always had the concern of my developing GCA. So far so good. I have a standing yearly...

Since my dealing with PMR for the past several years, i have always had the conc...

Predniso141

•5 months ago

3 Replies

Is 5 mg Prednisone for life safe

My husband has had PMR for 18 months now. He is 65. He started on 40 mg predniprednisone daily and for the last 6 months he has been on 5 mg....and he feels...

My husband has had PMR for 18 months now. He is 65. He started on 40 mg prednip...

Piglets1

•5 months ago

8 Replies

Is 5 mg Prednisone for life safe

My husband has had PMR for 18 months now. He is 65. He started on 40 mg predniprednisone daily and for the last 6 months he has been on 5 mg....and he feels...

My husband has had PMR for 18 months now. He is 65. He started on 40 mg prednip...

Piglets1

•5 months ago

10 Replies

tapering, optimistic or impatient?

a cautionary tale! Having got various things out the way, from fractured vertebrae (healing well) to big birthday, I thought it time to start tapering towards...

a cautionary tale! Having got various things out the way, from fractured vertebr...

Japsquar

•5 months ago

14 Replies

Discoveries about immune response

So far in mice, but as the author suggests, this could be a huge discovery: https://www.donotpanic.news/p/scientists-just-made-a-stunning-biological

So far in mice, but as the author suggests, this could be a huge discovery: htt...

HeronNS

•5 months ago

15 Replies

Another injury, wrist this time

Just the other day, for unknown reason, memory of an old acquaintance popped into my mind, specifically her frequent use of the expression, "What fresh hell is...

Just the other day, for unknown reason, memory of an old acquaintance popped int...

HeronNS

•5 months ago

52 Replies

gca/pmr

I did manage to get a Rheumy appt, but no help whatsoever. Wherever I have pain, stiffness etc & how bad it’s not PMR or GCA related. They only really bother...

I did manage to get a Rheumy appt, but no help whatsoever. Wherever I have pain...

CavalierKC3

•5 months ago

4 Replies

Vaccine for UTIs - more details

I posted recently about a vaccine for UTIs - here is an article about it from Medscape....

I posted recently about a vaccine for UTIs - here is an article about it from Me...

PMRpro

Ambassador•5 months ago

10 Replies

Morning cortisol test results have arrived.

For background I should say that I finished with prednisolone at the end of January this year. I’ve had no return of PMR symptoms but have been irritable and...

For background I should say that I finished with prednisolone at the end of Janu...

123-go

•5 months ago

6 Replies

Immediate tapering after 7 day increase of Pred

would just like to know how quick I can get back down to 1.5 mg of Pred after being on 6.5 for 7 days. Thanks

would just like to know how quick I can get back down to 1.5 mg of Pred after be...

MrsPractical

•5 months ago

7 Replies

Lansoprazole & Prednisolone

My question may have been asked before but here goes…….. When diagnosed with PMR eighteen months ago I was prescribed pred plus Lansoprazole as a “stomach...

My question may have been asked before but here goes…….. When diagnosed with PMR...

Bayleaf1

•5 months ago

14 Replies

Unexplained “rash”

I’m currently into 6 years of PMR, having had my fair share of ups and downs, and am now on 3.5mg of Pred, which the Rheumatologist thinks will be necessary...

I’m currently into 6 years of PMR, having had my fair share of ups and downs, an...

Janann25

•5 months ago

23 Replies

Anyone been diagnosed with Interstitial Lung Disease

Today I received a CT report that says I may have Interstitial Lung Disease. I have been researching to see the connection between PMR and that disease. The...

Today I received a CT report that says I may have Interstitial Lung Disease. I h...

singingloud

•5 months ago

13 Replies

Taper again

Hello, I have been strugglng for a over couple of weeks with a sinus infection. My doctor prescribed antibiotics. Which seemed to have cleared up the...

Hello, I have been strugglng for a over couple of weeks with a sinus infection....

Southmead

•5 months ago

13 Replies

statins

Here again for some knowledge and benefit from your wisdom. In February I was told that I have a number of heart conditions. One is two partially blocked...

Here again for some knowledge and benefit from your wisdom. In February I was to...

Skier321

•5 months ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

Pmr , Rs3pe

Stopping Alendronic Acid

Is this a flare ?

No Cominarty Vaccine!!

Can you help regarding symptoms?

Change of treatment

Holiday at last!

Back @ work full time and slowly recovering

update

First rheumatologist vist

Tapering experience

how to handle a flare

Cough, chest pressure, GCA

Flare management

Advice please

GCA worry/Ophthamogist

Is 5 mg Prednisone for life safe

Is 5 mg Prednisone for life safe

tapering, optimistic or impatient?

Discoveries about immune response

Another injury, wrist this time

gca/pmr

Vaccine for UTIs - more details

Morning cortisol test results have arrived.

Immediate tapering after 7 day increase of Pred

Lansoprazole & Prednisolone

Unexplained “rash”

Anyone been diagnosed with Interstitial Lung Disease

Taper again

statins

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