Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for March 2024

Recently Diagnosed - or not? (UK)

Hello everyone - at last i've found somewhere I can talk about things, because there seems to be precious little else in the UK i've found so far. I'm sure...

Hello everyone - at last i've found somewhere I can talk about things, because t...

riderNoMore

•7 months ago

49 Replies

Me again!!

I just want to ask what my taper would be now.I was in a major flare So I upped my dose from 7.5 mg to 10 mg.That didn't work so I upped it to 12.Iam now on...

I just want to ask what my taper would be now.I was in a major flare So I upped ...

Hunter134

•7 months ago

6 Replies

holiday insurance

any recommendations for holiday insurance with GCA ?

Racow

•7 months ago

9 Replies

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Sorry if this goes a second time,

The muscle loss getting me down any advise, ? Another question can you just stopp steroids, as my sister has said he's putting to much weight on and doesn't...

The muscle loss getting me down any advise, ? Another question can you just stop...

Harrywogan

•7 months ago

9 Replies

Head in Sand...

I don't know what to do so thought I'd be wise to seek advice on this knowledgeable site. My PMR journey started a couple of years ago, since then it's been a...

I don't know what to do so thought I'd be wise to seek advice on this knowledgea...

tempusfugi

•7 months ago

4 Replies

Muscle tone

Hi all feeling low this morning and shouldn't as IAM off to Portugal for 3 weeks soon case packed, but IAM wondering if it just me that's lost a lot of muscle...

Hi all feeling low this morning and shouldn't as IAM off to Portugal for 3 weeks...

Harrywogan

•7 months ago

13 Replies

GCA Scalp tenderness

Quick question for those who have/had GCA. If you had scalp tenderness beforehand, what was it like? Where did you have it and how big an area? I daresay...

Quick question for those who have/had GCA. If you had scalp tenderness beforeha...

Gimme

•7 months ago

40 Replies

involuntary jerking of hands and arms

On reflection this twitching of hands has been happening for some time at a low level but I’m noticing much more this morning. I started on Pregabalin...

On reflection this twitching of hands has been happening for some time at a low ...

Japsquar

•7 months ago

8 Replies

Ambiee

Hi there diagnosed with PMR April 23, after having very bad lower middle back pain, pain in shoulders arms & neck (ha MRI as originally thought it was slipped...

Hi there diagnosed with PMR April 23, after having very bad lower middle back pa...

Singham1

•7 months ago

6 Replies

Splitting Pred dose

On pred for PMR since end of October 2023. I have noticed some folk split their Pred dose. Can anyone tell me the pros and cons of doing this? I don't have...

On pred for PMR since end of October 2023. I have noticed some folk split their ...

Dinahmite

•7 months ago

5 Replies

Headaches

Morning All I haven’t been on pred since last autumn . Pain is manageable @ the mo’ . But I do get these headaches, one sided ( right ) on the whole , from...

Morning All I haven’t been on pred since last autumn . Pain is manageable @ th...

TedTheMaineCoon

•7 months ago

3 Replies

pain killers

I have lower back pain after a strenuous evening of indoor climbing. What pain killers can I take in addition to the steroids I’m on. Many thanks

I have lower back pain after a strenuous evening of indoor climbing. What pain k...

Racer2024

•7 months ago

6 Replies

an update on dealing with my flare - lightbulb moment

all you lovely people Since adding 5mg of pred to deal with my self induced flare (that’ll teach me to overdo it!) I have realised that things hadn’t been...

all you lovely people Since adding 5mg of pred to deal with my self induced fl...

Jayneywales

•7 months ago

8 Replies

Me again sorry

Had this come yesterday and I have no idea what this is I've googled it ..and still unsure if this is to do with GCA or if they are looking for something...

Had this come yesterday and I have no idea what this is I've googled it ..and s...

Alliekat65

•7 months ago

7 Replies

Back pain and spasms

I was diagnosed with PMR in 2020. I have been on prednisolone since then trying to type it off but only actually managed to get off of the drug for about...

I was diagnosed with PMR in 2020. I have been on prednisolone since then trying...

Ladybay0

•7 months ago

10 Replies

Update: DEXA scan today

Hi, results today show osteoporosis. My T score back results: L1 was -2.2, L2 was -2.3, L3 was -2.0, L4 was -3.6 (total -2.6). My left hip scan was Neck -2.7,...

Hi, results today show osteoporosis. My T score back results: L1 was -2.2, L2 w...

Monkey321

•7 months ago

5 Replies

PET scan results and thoughts please :-)

Hello everyone. I haven’t posted for a while and I hope you are all keeping well. I recently had a PET scan which showed absolutely no inflammation in my...

Hello everyone. I haven’t posted for a while and I hope you are all keeping wel...

Pangolin43

•7 months ago

34 Replies

Potentially Heading Flarewards

Long post warning!!! After 4 years since diagnosis I thought I was starting to work towards the home straight. I have had 3 relatively PMR pain-free years...

Long post warning!!! After 4 years since diagnosis I thought I was starting to ...

Burroughs123

•7 months ago

13 Replies

Classification Criteria vs. Diagnosis Criteria

I learned something new while reading this article on PMR: https://www.cmaj.ca/content/193/46/E1770 It says "The European League Against Rheumatism (EULAR)...

I learned something new while reading this article on PMR: https://www.cmaj.ca/...

AtopicGuy

•7 months ago

22 Replies

GCA cortisol levels

I’m on 8 mg prednisone yesterday I tested my cortisol today. The result was 2.2 at 8:30 in the morning. Should I be concerned?

I’m on 8 mg prednisone yesterday I tested my cortisol today. The result was 2.2 ...

Maddie2018

•7 months ago

17 Replies

Adrian Chiles and a Pill Box

I really enjoy reading Adrian Chiles columns in the Guardian. He talks his way through all manner of life and his viewpoints... This one cracked Liz and I......

I really enjoy reading Adrian Chiles columns in the Guardian. He talks his way ...

Hidden

•7 months ago

13 Replies

GCA and PMR now RA

Hi all and hope you get to feel soon. I was diagnosed with PMR just over 4 years and although some set backs I eventually got to 5Mg Pred. I was doing quite...

Hi all and hope you get to feel soon. I was diagnosed with PMR just over 4 years...

cmToddy

•7 months ago

33 Replies

Easter Bake Fundraiser for PMRGCAuk

Hi everyone, we've teamed up with Great British Bake Off finalist Miranda Gore Browne to run a fundraiser over the Easter period. Miranda, whose grandmother...

Hi everyone, we've teamed up with Great British Bake Off finalist Miranda Gore B...

Fran_Benson

Partner•7 months ago

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Lowering pred aches

So, been on pred for last three weeks and went down from 15mg to 12.5 after 3.5 weeks. That was 3 days ago. I take my pred at around 7.30 in the morning. For...

So, been on pred for last three weeks and went down from 15mg to 12.5 after 3.5 ...

pastamaid

•7 months ago

9 Replies

Psoriatic Arthritis?

I've just seen my rheumatologist (who I like very much) and her feeling is that I have Psoriatic Arthritis and not PMR. The reasoning is that - even though I...

I've just seen my rheumatologist (who I like very much) and her feeling is that ...

CupOfEarlGrey

•7 months ago

14 Replies

betahistamine

Can you treat GCA with betahistamine?

PiaLarsson

•7 months ago

12 Replies

Morning all!

woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps....

woke this morning achey and bit shake.. not great night sleep lolmy question is...

Alliekat65

•7 months ago

15 Replies

Advice About Reduction

Hi Everyone. This is my second time around with Pmr, so my recollection is a bit hazy. I have sailed down with no bother at all from 15mg to 4mg, but since...

Hi Everyone. This is my second time around with Pmr, so my recollection is a bit...

Attic

•7 months ago

7 Replies

Pain in Left Eye

Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high...

Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct....

Lenore58

•7 months ago

6 Replies

Atorvastatin

I have been advised to go on the above Statin, having read the reviews I’m concerned about starting it, I have GCA & PMR and have managed to cut down to 3.5mg...

I have been advised to go on the above Statin, having read the reviews I’m conce...

Phed

•7 months ago

75 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

Recently Diagnosed - or not? (UK)

Me again!!

holiday insurance

Sorry if this goes a second time,

Head in Sand...

Muscle tone

GCA Scalp tenderness

involuntary jerking of hands and arms

Ambiee

Splitting Pred dose

Headaches

pain killers

an update on dealing with my flare - lightbulb moment

Me again sorry

Back pain and spasms

Update: DEXA scan today

PET scan results and thoughts please :-)

Potentially Heading Flarewards

Classification Criteria vs. Diagnosis Criteria

GCA cortisol levels

Adrian Chiles and a Pill Box

GCA and PMR now RA

Easter Bake Fundraiser for PMRGCAuk

Lowering pred aches

Psoriatic Arthritis?

betahistamine

Morning all!

Advice About Reduction

Pain in Left Eye

Atorvastatin

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