an update on dealing with my flare - lightbulb moment

[Jayneywales]

all you lovely people

Since adding 5mg of pred to deal with my self induced flare (that’ll teach me to overdo it!) I have realised that things hadn’t been right for a while before I embarked on my over walking in the sunshine.

To use the bucket analogy, mine had been full ( and dripping over) and I hadn’t acknowledged it.

Since adding the 5mg I have been experiencing no discomfort, can turn in bed without the ‘oompff’ I had redeveloped and walk down stairs in the morning without having to hang onto the bannister for dear life ( am only 59 3/4!).

I had regressed to the ‘putting up with the pain’ mentality I had utilised before diagnosis for the sake of ‘getting off the steroids’.

No more - the continuing taper journey will give more acknowledgement to symptoms rather than numbers.

Big birthday this year for both hubby and I so need to be more careful - a valuable lesson I will take on board.

wishing you all well in your personal journeys

Jayney

[123-go]

Well done! Best wishes for a smooth onward journey 🙂.

[SnazzyD]

It’s always a bonus when one doesn’t have to grip the banister as if on a mountainside. Honestly, so many of us have ignored that bucket and it’s even easier when there’s an alternative and plausible explanation. Onwards and upwards and also downwards but not too fast!

[DorsetLady PMRGCAuk volunteer]

Always good when you have a lightbulb moment .. even if you don’t really like what it’s telling you…😂🤣…

[PMRpro Ambassador]

Light dawns!!! Now retain the learning experience!

[Sharitone]

So easily done, particulary as the second time round it's often rather different. I have devised a shortlist of symptoms that indicate I should consider a flare, rather than random aches and pains, to stop it going under the radar again.

[Jayneywales in reply to Sharitone]

Good idea Sharitone!

[Leafsong66]

it’s so good to stop and evaluate what’s going on! I’m so used to pushing through pain and discomfort after living with chronic conditions since a teenager. But it can do harm in the wrong circumstances. Thank you for the reminder!

[random901]

I have just admitted the same. Upped my pred by 5mg for 5 days after experiencing ear and temple pain on LHS. Think it's kicking in. Couldn't get hold of Rheumy as weekend hit so followed advice from this forum 🙂