Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for March 2024

Very High blood pressure

I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in...

I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty...

Freshairfiend

•7 months ago

45 Replies

Just some help needed

Hi all, if P M R it's bad enough been I think I've already said I've now got TROCHANTERIC Bursitis, getting a cortisone injection when I get back from...

Hi all, if P M R it's bad enough been I think I've already said I've now got TR...

Harrywogan

•7 months ago

42 Replies

Is this a flare?

Good morning, I’m 68 and diagnosed with PMR last October, 2023. I started at 20mg. No problem with tapering until February 29, 2 weeks after I started 7.5...

Good morning, I’m 68 and diagnosed with PMR last October, 2023. I started at 20...

Hope_full

•7 months ago

13 Replies

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How are your PMR diagnostic skills?

Today's test from Medscape: https://reference.medscape.com/viewarticle/994336?ecd=WNL_spec-casechlg_240312_MSCPREF_etid6369165&uac=150045MJ&impID=6369165 On...

Today's test from Medscape: https://reference.medscape.com/viewarticle/994336?e...

PMRpro

Ambassador•7 months ago

7 Replies

Alcohol taking Pred

What harm/side effects occur when you have a few glasses of wine while on the steroid? We are adised NOT to imibe, but unclear what harm it can do? I usually...

What harm/side effects occur when you have a few glasses of wine while on the st...

jarn

•7 months ago

124 Replies

preparation for cortisol blood test

fatigue and adrenal function has been top of my list for months , as I just can’t cope with the low level of energy and weakness I have . I have been banging...

fatigue and adrenal function has been top of my list for months , as I just can...

Avadip12

•7 months ago

22 Replies

dementia

I have some of the symptoms of dementia and will make a doctors appointment to discuss. I’ve been on pred for 10 years, now down to two and a half mg. Wondered...

I have some of the symptoms of dementia and will make a doctors appointment to d...

Roy46

•7 months ago

9 Replies

putting myself together

on the subject of building strength and muscle rehab. I’m on 3mg, and feeling well . I got a drs referral to the local gym. Sharing all my aches and pains with...

on the subject of building strength and muscle rehab. I’m on 3mg, and feeling we...

Alazarin

•7 months ago

13 Replies

Is some pain necessary when gradually reducing steroids ?

Hi I have been on pred for 6 months now. Originally because of bad polymyalgia pain in lower limbs which eased off - but then 4 months ago when flare up was...

Hi I have been on pred for 6 months now. Originally because of bad polymyalgia ...

Oigami

•7 months ago

23 Replies

OCCIE HEALTH

MorningI had my O.H review yesterday and the lady was good. I'm hoping to return to work next week but am also anxious my job in mental health is stressful...

MorningI had my O.H review yesterday and the lady was good. I'm hoping to retu...

Alliekat65

•7 months ago

12 Replies

The long journey

It seems like an age since last I've wrote a blog on this site, for those who can remember well done, I started approximately 2 1/2 years ago, taking pred...

It seems like an age since last I've wrote a blog on this site, for those who c...

Burnley1959

•7 months ago

14 Replies

Any advice on questions to ask GP at review of 1 week prednisolone trial?

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PMR to some extent). GP will call tomorrow to review and presumably come up with...

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PM...

Preposterous

•7 months ago

55 Replies

shoulder pain switched shoulders

I’ve been getting very bad pain in my right arm shoulder over the last few weeks with much less pain on the left side. Today the pain has moved to the left...

I’ve been getting very bad pain in my right arm shoulder over the last few weeks...

VueltaSkelta

•7 months ago

15 Replies

Is a massage ok with PMR etc?

I have PMR (on 5mg currently) and also have pain on walking caused by spinal stenosis/ degeneration of lumbar spine and left hip etc. I also had a steroid...

I have PMR (on 5mg currently) and also have pain on walking caused by spinal ste...

BadDancer

•7 months ago

45 Replies

Medscape: Adrenal Insufficiency Tips

This dropped into my inbox today:...

AtopicGuy

•7 months ago

Be the first to reply

Adrenals

Have been off pred for sixteen months now, but this morning experienced a horrible hour of nausea , which caused me to abandon breakfast half way through. Sat...

Have been off pred for sixteen months now, but this morning experienced a horrib...

Charlie1boy

•7 months ago

19 Replies

when to stop leflunomide

GCA/PMR since Dec 2018. No symptoms of GCA currently but PMR rumbles. On prednisolone and leflunomide. Have not had a flare since last May and have been...

GCA/PMR since Dec 2018. No symptoms of GCA currently but PMR rumbles. On predni...

Talyfan

•7 months ago

25 Replies

Swap from 4mg pred

dear all I have been prescribed 10 mg hydrocortisone swapping from 4mg pred as from yesterday. things are a bit of a struggle anyway as I’m 3weeks post...

dear all I have been prescribed 10 mg hydrocortisone swapping from 4mg pred as ...

AnniesRyder5

•7 months ago

7 Replies

Travelling whilst taking steroids

I am planning a trip to Australia in May to see my brother-in-law.. We can only go for 10 days but this may be the last chance we get to see him. Sadly he is...

I am planning a trip to Australia in May to see my brother-in-law.. We can only ...

Mamamia21

•7 months ago

6 Replies

flare

What is a PMR and GCA flare up symptoms? I was on prednisone X4 month, on Actemra shots weeklynow,my shoulder is painful, my ear feel stuffy, have knee pain,...

What is a PMR and GCA flare up symptoms? I was on prednisone X4 month, on Actem...

Cubanurse49

•7 months ago

9 Replies

Alendronic Acid and...

Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these...

Hi everyone :) I saw my lovely GP last week and we talked about my problems in...

Hidden

•7 months ago

17 Replies

Inflammatory reaction to sugar and carbohydrate ?

did I read somewhere on this site that people with PMR and or on prednisolone can develop a reaction to carbohydrate ? One of the first things I recall about...

did I read somewhere on this site that people with PMR and or on prednisolone ca...

Seekingasolution

•7 months ago

7 Replies

pmr and pip

Advice needed on pmr and pip Can you claim if its controlled by steroids If so how do you sucessfully fill in the form ps. Im 65

Advice needed on pmr and pip Can you claim if its controlled by steroids If so...

Blackorblue

•7 months ago

50 Replies

thoughts - is this a flare or something else?

dear PMR folks your help and assistance please? Been doing great until about a week ago when things have gone somewhat awry. Been reducing down my steroids...

dear PMR folks your help and assistance please? Been doing great until about a...

Jayneywales

•7 months ago

11 Replies

QUICK TAPER; CRP RISING STEADILY; FLARING

As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR...

As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get ...

Missus835

•7 months ago

51 Replies

After 25 days back on prednisone...

Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain...

Thank you to all who advised on my previous post. I have almost completed the f...

Biba5

•7 months ago

4 Replies

is this neuropathy?

As explained in previous posts I have two spinal fractures from X-ray January. Pain still bad and osteoporosis nurse pressed me to get stronger painkillers....

As explained in previous posts I have two spinal fractures from X-ray January. P...

Japsquar

•7 months ago

35 Replies

Methotrexate again

My Rheumatologist talked me in to to taking met injections, I never learn I have been so ill in bed for for 8 days, being sick eating nothing.Not any more, I...

My Rheumatologist talked me in to to taking met injections, I never learn I have...

Doublef

•7 months ago

4 Replies

Me again....

Hi my boss has asked if I need to be more aware of things like covid as atm they have a patient on ward with this. I am upto date with all covid protocol....

Hi my boss has asked if I need to be more aware of things like covid as atm the...

Alliekat65

•7 months ago

5 Replies

Struggling with flare/withdrawal

Would welcome your advice again.Brief recap .. been on Prednisolone since October 2022. Consultant started me on 15mg and advised to reduce by 1mg per month....

Would welcome your advice again.Brief recap .. been on Prednisolone since Octobe...

Alithia

•7 months ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

Very High blood pressure

Just some help needed

Is this a flare?

How are your PMR diagnostic skills?

Alcohol taking Pred

preparation for cortisol blood test

dementia

putting myself together

Is some pain necessary when gradually reducing steroids ?

OCCIE HEALTH

The long journey

Any advice on questions to ask GP at review of 1 week prednisolone trial?

shoulder pain switched shoulders

Is a massage ok with PMR etc?

Medscape: Adrenal Insufficiency Tips

Adrenals

when to stop leflunomide

Swap from 4mg pred

Travelling whilst taking steroids

flare

Alendronic Acid and...

Inflammatory reaction to sugar and carbohydrate ?

pmr and pip

thoughts - is this a flare or something else?

QUICK TAPER; CRP RISING STEADILY; FLARING

After 25 days back on prednisone...

is this neuropathy?

Methotrexate again

Me again....

Struggling with flare/withdrawal

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