Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2024

Flare since Nov? Feet!!!Need Help

I have been around the bend on this. In Nov after lots of tension with husbands illness and coming back to US and my having to drive I had a flu vac on Nov 10....

I have been around the bend on this. In Nov after lots of tension with husbands ...

bluegirl7

•2 months ago

9 Replies

Welcome to our new members - March 2024

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•2 months ago

8 Replies

wife of Long term PMR sufferer

Hello. I am not the one suffering from PMR. It is my husband. He is 59 and has had PMR since the summer of 2022. He started with symptoms after having Covid...

Hello. I am not the one suffering from PMR. It is my husband. He is 59 and has...

Whitesmith86

•2 months ago

15 Replies

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Actemra and Extremely Fast Taper off of Prednisone

I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg...

I didn't expect the following during my last appointment with my Rheumatologist:...

newsusy

•2 months ago

14 Replies

Very stiff knees and slightly puffy ankles

I have been putting it down to overdoing it, but don’t think this is the case. My PMR has always been in my knees and hips, not shoulder girdle. I have had it...

I have been putting it down to overdoing it, but don’t think this is the case. ...

Stargiver

•2 months ago

6 Replies

No forum coming in.

I don’t seem to have been receiving any messages on this forum for a few days. Is there a reason for this?

I don’t seem to have been receiving any messages on this forum for a few days. ...

Stargiver

•2 months ago

5 Replies

tooth extraction

I’m having a tooth out next Wednesday. I’m taking 3mg of prednisolone. I’ve been off AA for nearly a year. What is the advice for this procedure please?

I’m having a tooth out next Wednesday. I’m taking 3mg of prednisolone. I’ve been...

AlfredRose

•2 months ago

10 Replies

What to plan with Rheumy?

After four months I have my (10 minute?) appointment with the rheumy on Thursday. I have made these notes as a basis to help me get my thoughts across to him...

After four months I have my (10 minute?) appointment with the rheumy on Thursday...

kangaroojohn

•2 months ago

3 Replies

Time it takes to kick in - prednisone vs prednisilone?

Hello everyone, I'm having trouble finding an answer to this and I was hoping someone here might know. From what I understand, prednisone is a pro drug, so it...

Hello everyone, I'm having trouble finding an answer to this and I was hoping so...

LarMarge6

•2 months ago

4 Replies

flare concern

I am continuing to deal with my latest flare. You good folks gave me some advice a week or two ago. When trying to reduce from 2.5 mg of prednisone to 2 it...

I am continuing to deal with my latest flare. You good folks gave me some advice...

Skier321

•2 months ago

25 Replies

Familiar pains

I am having back pain ,hip pains and arms.This feels like when I first got diagnosed.I know stress has caused this but not sure how much I should increase my...

I am having back pain ,hip pains and arms.This feels like when I first got diagn...

Hunter134

•2 months ago

7 Replies

Glasgow Support Group

Our next meeting in Glasgow is on Monday 11 March at 2pm. We meet in the offices of Health Alliance Scotland at 349 Bath Street, G2 4AA which is just beside...

Our next meeting in Glasgow is on Monday 11 March at 2pm. We meet in the offices...

RichardC

•2 months ago

1 Reply

Update

Hi everyone, thank you for all your comments it helps to know your not alone. Been for blood tests this morning , now have to wait. Im told it takes 7-10 days...

Hi everyone, thank you for all your comments it helps to know your not alone. B...

scooby96

•2 months ago

11 Replies

Thigh pain

I've had PMR for 8 years and then GCA. And came off steroids because I was up and down, then I developed osteoarthritis in last 2 years.in my back, neck and...

I've had PMR for 8 years and then GCA. And came off steroids because I was up an...

Healthliving

•2 months ago

20 Replies

Rheumatologists, physiotherapists South West England

Morning folks , Noted discussion the other day about a couple of highly recommended rheumatologists , forgotten their names ….Oxfordshire way I think .Got me...

Morning folks , Noted discussion the other day about a couple of highly recomme...

Pastamama

•2 months ago

6 Replies

Stop taking lansoprazole

I'm now down to 2.5mg prednisolone. My latest prescription delivered coated tablets which I've been taking without issues. My question is do I need to continue...

I'm now down to 2.5mg prednisolone. My latest prescription delivered coated tabl...

Clarbeston

•2 months ago

20 Replies

Michael

I have PMR since Jan 2015 and then went on to get GCA, I stopped steroids 2 years ago, but not without pain, but I was having a lot of Osteoarthritis and I...

I have PMR since Jan 2015 and then went on to get GCA, I stopped steroids 2 year...

Healthliving

•2 months ago

28 Replies

Thank you

Thank you to everyone who has already replied to my post today about my condition. I've been told it's Giant Cell Arteritis, Vasculitis, Aortitis, depending...

Thank you to everyone who has already replied to my post today about my conditio...

Dance62

•2 months ago

11 Replies

How do you know what is the right dose of pred

Just started on my journey, 2 weeks in and still bothering people with questions. Sorry.Was talking to sister and she said how do you know if the dose you are...

Just started on my journey, 2 weeks in and still bothering people with questions...

pastamaid

•2 months ago

4 Replies

How should I feel?

I am newly diagnosed with PMR. Although my symptoms have cleared up, I am easily tired out by most activities and feel the need to rest. Is this normal?

I am newly diagnosed with PMR. Although my symptoms have cleared up, I am easily...

NewPMR

•2 months ago

10 Replies

feel awful

just over 2 weeks ago went diwn to 2 mg prednisolone from 50 in august 2022. Nothing seems to be going right now. After many many years of 75 mg thyroxine...

just over 2 weeks ago went diwn to 2 mg prednisolone from 50 in august 2022. No...

CavalierKC3

•2 months ago

75 Replies

Aortitis

I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most...

I was diagnosed with non cranial Giant Cell Arteritis in September last year. S...

Dance62

•2 months ago

33 Replies

2 weeks on pred and mood swings are awful.

Been on15mg of pred for 2 weeks today and although feeling better in body, it's screwing with my head. I'm either very high or sinking low. Does this settle...

Been on15mg of pred for 2 weeks today and although feeling better in body, it's...

pastamaid

•2 months ago

23 Replies

Food diary.......

HI everyone....I'm planning to do a food diary as I've read on here that the correct food could help....but because I'm on steroids 15mg a day.... would it...

HI everyone....I'm planning to do a food diary as I've read on here that the cor...

Tescohednesford

•2 months ago

73 Replies

Finally finished prednisolone.

Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I...

Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a...

Amstel

•2 months ago

23 Replies

night sweats

does anyone with polymyalgia experience night sweats? Im not on steroids at the moment

does anyone with polymyalgia experience night sweats? Im not on steroids at the ...

scooby96

•2 months ago

18 Replies

Help please!

Goodmorning, I was first diagnosed with PMR back in 2014, usual treatment with pred, taper etc. Then diagnosed in 2021 with Fibromyalgia aand on 2mg...

Goodmorning, I was first diagnosed with PMR back in 2014, usual treatment with ...

September17

•2 months ago

15 Replies

Moving to MTX after 9 years of prednisolone?

I would appreciate the expertise of the forum on my situation. I was diagnosed with PMR 9 years ago and have been on prednisolone since then. With a few...

I would appreciate the expertise of the forum on my situation. I was diagnosed...

SQQQ

•2 months ago

8 Replies

GCA flair

Hello, it has been a nightmare for me since November. My rheumatologist retired in November. His partner took over and has canceled three appointments with...

Hello, it has been a nightmare for me since November. My rheumatologist retired ...

Plains

•2 months ago

11 Replies

Taper question

Hi All, I’ve only joined you last week and I have found the help invaluable. I have a question around tapering. I was on a 2 week dose of 50mg prednisone,...

Hi All, I’ve only joined you last week and I have found the help invaluable. ...

Specialised

•2 months ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

Flare since Nov? Feet!!!Need Help

Welcome to our new members - March 2024

wife of Long term PMR sufferer

Actemra and Extremely Fast Taper off of Prednisone

Very stiff knees and slightly puffy ankles

No forum coming in.

tooth extraction

What to plan with Rheumy?

Time it takes to kick in - prednisone vs prednisilone?

flare concern

Familiar pains

Glasgow Support Group

Update

Thigh pain

Rheumatologists, physiotherapists South West England

Stop taking lansoprazole

Michael

Thank you

How do you know what is the right dose of pred

How should I feel?

feel awful

Aortitis

2 weeks on pred and mood swings are awful.

Food diary.......

Finally finished prednisolone.

night sweats

Help please!

Moving to MTX after 9 years of prednisolone?

GCA flair

Taper question

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