Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,888 posts

All posts for March 2024

Alcasta (zeolodronic acid)

Hi, anyone have any experience with the oral tablets? (Good or bad) My DR wants me to start this and I opted for tablets rather than infusion. He said I'd have...

Hi, anyone have any experience with the oral tablets? (Good or bad) My DR wants ...

Monkey321

•7 months ago

15 Replies

Alendronic Acid - First Day

..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of...

..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am ...

Hidden

•7 months ago

31 Replies

Fibromyalgia?

I went to see my Rheumy last week- I have GCA -& am down to 7.5 mg of Pred. I asked him if the aches & pains I was getting ( particularly in my back, hips,...

I went to see my Rheumy last week- I have GCA -& am down to 7.5 mg of Pred. I as...

Janeval

•7 months ago

52 Replies

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TINGLY FEET

Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for...

Has anyone on here experienced tingly feet during the night after having steroid...

Wallydb

•7 months ago

4 Replies

Taking daily steroid dose with upset tummy

Morning everyone, Over the past week or so, I've been experiencing some lower abdominal discomfort with moderate pain in lower left side. ....windy pains and a...

Morning everyone, Over the past week or so, I've been experiencing some lower ab...

Kendrew

•7 months ago

42 Replies

stopping steroids

I have been on 1mg prednisolone for three months now. Advice would be nice from you the people who have helped me through these last six years. I am quite...

I have been on 1mg prednisolone for three months now. Advice would be nice from ...

Reddev

•7 months ago

28 Replies

Alendronic Acid side effects

I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and...

I've been on Prednisolone for PMR since October 2022, starting on 15mg and now d...

Hercules307

•7 months ago

15 Replies

Forgotten to take 15mg Pred dose this morning

Rushing to visit my husband who is very ill in hospital this morning I think I may have missed taking my 15 mg dose of Prednisolone. The tablets are still in...

Rushing to visit my husband who is very ill in hospital this morning I think I m...

essujay

•7 months ago

19 Replies

Could this be GCA?

I have just the one symptom: intermittent pain on chewing, especially tougher foods like meat: no unusual headaches, scalp tenderness or visual disturbances at...

I have just the one symptom: intermittent pain on chewing, especially tougher fo...

calibriel

•7 months ago

8 Replies

Blood Sugar Monitors. Interesting Read

I know a number of us on the forum still report to Zoe and make use of some their other work and research. I thought this article made interesting reading....

I know a number of us on the forum still report to Zoe and make use of some thei...

Bcol

•7 months ago

26 Replies

Autoimmune diseases and mental health

Attempting to attach article which strikes a chord with me atm....

random901

•7 months ago

20 Replies

day 12: Prednisolone beginning to make a difference!

It’s Day 12 of my steroid trial to see if this is PMR (am on 15mg prednisolone) …. this isn’t a question but I just wanted to share that I woke in the night...

It’s Day 12 of my steroid trial to see if this is PMR (am on 15mg prednisolone)...

Preposterous

•7 months ago

14 Replies

High dose Prednisolone and effects

Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT...

Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, h...

Karil

•7 months ago

57 Replies

Adrenals

My PMR journey is probably in reality nearer 3 years long. From actual diagnosis from the rheumatologist it is just over 2 years. I am currently taking...

My PMR journey is probably in reality nearer 3 years long. From actual diagnosi...

Ruins67

•7 months ago

15 Replies

Help with tapering Prednisone

I was diagnosed with PMR finally in Oct 23 after ending up in hospital unable to move. Doctors have been very dismissive and I have seen rheumatologist once...

I was diagnosed with PMR finally in Oct 23 after ending up in hospital unable to...

Beans-and-Buns

•7 months ago

12 Replies

Statins

I have a cholesterol of 6.6 and GP advises I take a statin . Which statin causes the least amount of muscle pain for those of us with PMR please

I have a cholesterol of 6.6 and GP advises I take a statin . Which statin cause...

Bluepin

•7 months ago

30 Replies

Takes ages finding specific replies

Hi all, I’ve had such good advice on here but often want to refresh my memory regarding specifics, however haven’t found a way of saving/tagging single...

Hi all, I’ve had such good advice on here but often want to refresh my memory re...

Tribie

•7 months ago

18 Replies

10 year PMR anniversary! A new drug for me called Etanercept being advised.

Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and...

Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone ...

MC60

•7 months ago

19 Replies

Is it PMR?

diagnosed with cranial GCA April 2023, on 60 mg and now, following orders from Leicester rheumy I am titrating to 4.5 by .5 every mth UNTIL i was hit by awful...

diagnosed with cranial GCA April 2023, on 60 mg and now, following orders from L...

Trovatello

•7 months ago

6 Replies

vasculitis

Is vasculitis often associated with PMR?

HamishPMR

•7 months ago

6 Replies

Ankle pain and knee pain

Started on 15mg of pred at end of March 2023, now on 7mg after tapering advice on this forum and doing OK. I swim twice a week and do either Pilates or yoga...

Started on 15mg of pred at end of March 2023, now on 7mg after tapering advice o...

EnyaBlue

•7 months ago

18 Replies

Does it sound like PMR?

I have been to several specialists, but no one understands what is happening to me, their eyes always ends up swimming in their faces. After countless hours...

I have been to several specialists, but no one understands what is happening to...

Liljeblad

•7 months ago

36 Replies

The pain of PMR before being prescribed prednisone

I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating...

I want to ask you how you dealt with the pain of PMR before being prescribed pre...

Markandevie

•7 months ago

41 Replies

Taper Advice after too fast a taper

Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and...

Sorry in advance that this is such a long post. Thank you for your consideration...

Leafsong66

•7 months ago

8 Replies

4 days in

Good morning everyone, Ive just taken my fourth dose of prednisone (20mg). Definitely feeling a bit better but still bit achey & stiff. Should I be feeling...

Good morning everyone, Ive just taken my fourth dose of prednisone (20mg). Defin...

scooby96

•7 months ago

4 Replies

Synacthen Test

Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to...

Hi, I received a letter from my Rheumatologist saying that my cortisol levels ar...

studiomaster

•7 months ago

17 Replies

Another Pred journey

I have been 5 years on Pred and 3 years on Actemra A bit of up’s and downs but did very well with no side effects ( except bone loss) Lately got to 3 and poof...

I have been 5 years on Pred and 3 years on Actemra A bit of up’s and downs but ...

Sunny1947

•7 months ago

2 Replies

Thank you and praying

I've been blessed to find this sitethere are no judgment on questions some of you have had millions of times. tomorrow my pred is due a decrease and after...

I've been blessed to find this sitethere are no judgment on questions some of yo...

Alliekat65

•7 months ago

7 Replies

Methotrexate added to Pred now

Hello lovely support group, 20 months into my PMR GCA journey now. I saw my rheumy yesterday and she wants me to get lower on the Pred. She suggested...

Hello lovely support group, 20 months into my PMR GCA journey now. I saw my rhe...

potterylady

•7 months ago

37 Replies

GCA what are the symptoms

I have had PMR for many years started in 2016 I started on 10 mg Pred and have been ok on 3 mg pred for many years I have been suffering from similar symptoms...

I have had PMR for many years started in 2016 I started on 10 mg Pred and have b...

sailorman

•7 months ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

Alcasta (zeolodronic acid)

Alendronic Acid - First Day

Fibromyalgia?

TINGLY FEET

Taking daily steroid dose with upset tummy

stopping steroids

Alendronic Acid side effects

Forgotten to take 15mg Pred dose this morning

Could this be GCA?

Blood Sugar Monitors. Interesting Read

Autoimmune diseases and mental health

day 12: Prednisolone beginning to make a difference!

High dose Prednisolone and effects

Adrenals

Help with tapering Prednisone

Statins

Takes ages finding specific replies

10 year PMR anniversary! A new drug for me called Etanercept being advised.

Is it PMR?

vasculitis

Ankle pain and knee pain

Does it sound like PMR?

The pain of PMR before being prescribed prednisone

Taper Advice after too fast a taper

4 days in

Synacthen Test

Another Pred journey

Thank you and praying

Methotrexate added to Pred now

GCA what are the symptoms

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