Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for June 2023

Cardiff meeting

The next meeting is on Friday, 16th June at 11.30 in the Central Library, room 4.

The next meeting is on Friday, 16th June at 11.30 in the Central Library, room 4...

Susanlew

•1 year ago

1 Reply

TinaAird48

I am taking 4 Pred one day & 3 on alternate days I have just started & since have had pain in my right toes is this just a coincidence or has anyone else had...

I am taking 4 Pred one day & 3 on alternate days I have just started & since hav...

TinaAird48

•1 year ago

10 Replies

maybe chest infection ?

I was diagnosed with pmg last September and after a few hours on steroids , a miracle happened, no pain, able to get out of bed, and for the most part still on...

I was diagnosed with pmg last September and after a few hours on steroids , a mi...

Guilluame

•1 year ago

6 Replies

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How long

I have osteoarthritis and waiting hip replacement. The last couple of months I’ve been in agonising pain not only in that hip but ringer down to my knees on...

I have osteoarthritis and waiting hip replacement. The last couple of months I’v...

Holycow2

•1 year ago

61 Replies

Bruising on legs

I have been on medrol now for 8 years. I’m down to 3mg. I have experienced easy bruising on my legs they have lead to severe wounds. I now wear compression...

I have been on medrol now for 8 years. I’m down to 3mg. I have experienced easy ...

smoothilly

•1 year ago

3 Replies

Help please, Getting flare under control

golfnutter

•1 year ago

19 Replies

Bruising reduction.

Have extensive dark bruising esp on legs. Am moisturizing arms and legs and just ordered arnica cream. Can I expect a reduction in this awful bruising...

Have extensive dark bruising esp on legs. Am moisturizing arms and legs and jus...

Merryfield

•1 year ago

24 Replies

Rheumatologist in Surrey

Hi all Thank you all for all the help and advice on this group, I remember reading about a recommended consultant in Surrey think Weybridge or Woking, I am...

Hi all Thank you all for all the help and advice on this group, I remember read...

Mumdadlove

•1 year ago

5 Replies

PMRGCAuk London Event - Armourers' Company

Our events team has been busy arranging a series of events at some of the London livery companies - these were popular before the pandemic and this is the...

Our events team has been busy arranging a series of events at some of the London...

Fran_Benson

Partner•1 year ago

3 Replies

What to do?

Hello, After reducing down Pred to 4.5mg I experienced a lot of PMR pain and a sharp rise in CRP and ESR. Rheumatology agreed it was a flare and advised...

Hello, After reducing down Pred to 4.5mg I experienced a lot of PMR pain and a ...

Pangolin43

•1 year ago

21 Replies

Different drug companies

Not sure why I always feel some unease when my Prednisolone comes from a different company than my norm. My pharmacist invariably gives me my 5mg Prednisolone...

Not sure why I always feel some unease when my Prednisolone comes from a differe...

jaycee444

•1 year ago

5 Replies

scalp dermatitis connected ?

hi. The PMR seems to have been under control slowly getting to 9.5mg of pred This week tho had painful scalp tender to the touch. Not in GCA typical areas....

hi. The PMR seems to have been under control slowly getting to 9.5mg of pred T...

Buttonshutton

•1 year ago

27 Replies

PMR Flare or is it actually GCA?

For the last 4-5 days at least I've had what I thought were PMR symptoms recurring BUT I am at 30 mg. Pred since a GCA scare last Jan. 2023. They started me at...

For the last 4-5 days at least I've had what I thought were PMR symptoms recurri...

Missus835

•1 year ago

3 Replies

From pred to methotrexate.

I'm slowly dropping my prednisolone, and currently taking 20mg methotrexate. When I drop pred completely, with I still have weight issues on the meth? Any...

I'm slowly dropping my prednisolone, and currently taking 20mg methotrexate. Whe...

Sjd224

•1 year ago

6 Replies

Welcome to our new members June 2023

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•1 year ago

2 Replies

Stopping Prolia

Do any members have experience with stopping Prolia and , if so, was it good or bad? Paddy

Do any members have experience with stopping Prolia and , if so, was it good o...

GucciPaddy

•1 year ago

10 Replies

Adrenal function at the lower doses of pred

Hi, I am down to 2mg of Prednisolone and am feeling a bit anxious about the next reduction . The worst I felt was at Christmas when I think I was reducing...

Hi, I am down to 2mg of Prednisolone and am feeling a bit anxious about the next...

Animalover65

•1 year ago

14 Replies

Prolia Injection

Has any member got experiences with Prolia Injection particularly relating to the side affects - bad or good. Paddy

Has any member got experiences with Prolia Injection particularly relating to th...

GucciPaddy

•1 year ago

1 Reply

hair loss

Hi Any advice on my thinning hair Female age 65 and my hair is now so thin currently taking 7mg Pred Thank you

Hi Any advice on my thinning hair Female age 65 and my hair is now so thin c...

Harry8388

•1 year ago

12 Replies

KEVZARA® (SARILUMAB)

Sorry if I've missed any updates on this new med. Can anyone advise or recommend? KEVZARA® (SARILUMAB) Thanks is advance 😊

Sorry if I've missed any updates on this new med. Can anyone advise or recommend...

Capprice

•1 year ago

2 Replies

Safe travel

Apologies if this is not directly relevant. I know there are a few members from New Zealand on the forum so hoping I can pick your brains! I’m travelling next...

Apologies if this is not directly relevant. I know there are a few members from...

Lochy

•1 year ago

10 Replies

Dear PMR or Dorset Lady,

Hello again, Could I have 12 participants in my group Garden Talks ? One is a new participant and the other is me. Thank you.

Hello again, Could I have 12 participants in my group Garden Talks ? One is a ...

Hidden

•1 year ago

16 Replies

What is your experience with oral thrush and nystatin?

I’m experiencing a bad taste in my mouth that’s affecting my taste of food and sometimes feeling like there’s a lump in my throat when swallowing. ....

I’m experiencing a bad taste in my mouth that’s affecting my taste of food a...

Mstiles

•1 year ago

18 Replies

100% pain free

I was diagnosed 6 years ago and prescribed 15mg of prednisolone. I was never 100% pain free, maybe 90%. Am I damaging my body by tapering when only 90%pain...

I was diagnosed 6 years ago and prescribed 15mg of prednisolone. I was never 100...

Koalajane

•1 year ago

4 Replies

Fuzzy head and top of head pressure that comes and goes???

HiI am currently taking 7.5 mg am and 0.75 pm of prednisone and been at this level for a few weeks. During the past week I have had episodes of fuzzy head and...

HiI am currently taking 7.5 mg am and 0.75 pm of prednisone and been at this lev...

dccarver

•1 year ago

9 Replies

minor flare ??

a bit of advice from all you lovely peeps. Currently on 11mg pred (and 15 mg mtx) after tapering from 12 about a month ago. I had a weekend away on the bank...

a bit of advice from all you lovely peeps. Currently on 11mg pred (and 15 mg mt...

Cfmad298601

•1 year ago

4 Replies

Gardening

Dear PMR or Dorset Lady, I have a number of people on my chat site who are all interested in the health benefits of gardening. As I have given them all...

Dear PMR or Dorset Lady, I have a number of people on my chat site who are all ...

Hidden

•1 year ago

29 Replies

CRP and ESR

I know it is a well known fact on this forum that ESR and CRP are unreliable while on Actemra. But most rheumatologists don't seem to know that. So I found...

I know it is a well known fact on this forum that ESR and CRP are unreliable whi...

Joseph14612

•1 year ago

24 Replies

The Double Vision Issue with GCA

Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 MG PRED, and after 9 months have titrated down to 12.5MG. I am under the care...

Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 ...

montebello

•1 year ago

7 Replies

Covid Treatments NHS Changes

Just had an email from the NHS saying that the Covid treatment contact is changing from the 27th June We are writing again because the way that you access...

Just had an email from the NHS saying that the Covid treatment contact is changi...

Alan7690

•1 year ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

Cardiff meeting

TinaAird48

maybe chest infection ?

How long

Bruising on legs

Help please, Getting flare under control

Bruising reduction.

Rheumatologist in Surrey

PMRGCAuk London Event - Armourers' Company

What to do?

Different drug companies

scalp dermatitis connected ?

PMR Flare or is it actually GCA?

From pred to methotrexate.

Welcome to our new members June 2023

Stopping Prolia

Adrenal function at the lower doses of pred

Prolia Injection

hair loss

KEVZARA® (SARILUMAB)

Safe travel

Dear PMR or Dorset Lady,

What is your experience with oral thrush and nystatin?

100% pain free

Fuzzy head and top of head pressure that comes and goes???

minor flare ??

Gardening

CRP and ESR

The Double Vision Issue with GCA

Covid Treatments NHS Changes

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