Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2023

Waltz therapy

Due for my 6th covid vaccination, (spring booster) one month after having covid. Currently on 9 mg prednisolone (slow tapering). Not expecting a problem, am...

Due for my 6th covid vaccination, (spring booster) one month after having covid...

•11 months ago

Tapering confusion

I'm currently on 7.5mg of Pred and have tried various slow tapers but they weren't quite slow enough, which I have written about before. Somebody suggested...

I'm currently on 7.5mg of Pred and have tried various slow tapers but they weren...

•11 months ago

Am I immunosuppressed on 2mg pred?

I’ve just had my third letter from the NHS inviting me to book a Covid vaccination - which I’d happily do, but at 72 (nearly 73) years old I’m under 75, and...

I’ve just had my third letter from the NHS inviting me to book a Covid vaccinati...

•11 months ago

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Yet another hospital stay - side effects of medication

Admitted at the beginning of May with Constipation and subsequent Dehydration from the medication I had been given to treat back pain. Eventually discharged...

Admitted at the beginning of May with Constipation and subsequent Dehydration fr...

•11 months ago

Thank you

I haven't written very much on the forum but I do read the comments every day and have found them very helpful and supportive. The volunteers do a great job....

I haven't written very much on the forum but I do read the comments every day an...

•11 months ago

prednisolone and skin blotches

Can long term use of Pred cause thin skin and red blotches?

Can long term use of Pred cause thin skin and red blotches?

•11 months ago

Tapering from 1mg?

After a few bumps, I am finally down to 1mg a day but wondering how best to go from here. Continue to go down to 0.5 after 6 weeks, then stop after the last 6...

After a few bumps, I am finally down to 1mg a day but wondering how best to go f...

•11 months ago

A little more on Probiotics from Zoe

Probiotics explained: https://joinzoe.com/learn/best-probiotic-foods?mc_cid=b834bdfc9d&mc_eid=28d3317a21

Probiotics explained: https://joinzoe.com/learn/best-probiotic-foods?mc_cid=b83...

•11 months ago

pred dose and bone thinning

Hi- I’m fairly sure I’ve seen somewhere that the risk of osteoporosis is greatly reduced if you can get under a certain dose of pred. But I’m not sure what d...

Hi- I’m fairly sure I’ve seen somewhere that the risk of osteoporosis is greatly...

•11 months ago

RaisinBran

Does anyone know if sunbathing has a negative effect on PMR?

Does anyone know if sunbathing has a negative effect on PMR?

•11 months ago

baby aspirin

Was anyone prescribed baby aspirin (81mg) when diagnosed with GCA? Thank you.

Was anyone prescribed baby aspirin (81mg) when diagnosed with GCA? Thank you. ...

•11 months ago

Otelza Drug for Plaque Psoriasis

Hi all, just a quick question. Not PMR but for another AI disease. Has anyone come across or have experience of using Otelza (Apremilast, Aplex)? An earlier...

Hi all, just a quick question. Not PMR but for another AI disease. Has anyone co...

•11 months ago

Normal bloods

Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium,...

Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 ...

•11 months ago

Thank you to our volunteers

It's Volunteers Week 2023 and we'd like to say a big thank you to all our volunteers, particularly PMRPro and DorsetLady who put so much time and effort into...

It's Volunteers Week 2023 and we'd like to say a big thank you to all our volunt...

Partner•11 months ago

4/30 FLARE better but shoulder pain continues. Need feedback, please!

Good evening/ good morning/ good afternoon ALL! Hope you are enjoying spring. It’s cool here so spring has held on. The scent of mock orange and honeysuckle...

Good evening/ good morning/ good afternoon ALL! Hope you are enjoying spring....

•11 months ago

feeling dizzy on 5mg is this normal

I am reducing on 5mg feeling dizzy during the day . Take my prednisolone at 2.00 am is this normal

I am reducing on 5mg feeling dizzy during the day . Take my prednisolone at 2.00...

•11 months ago

2 1/2mg feeling so sick

Hello again, can anyone answer if what I’m suffering is normal I am now down to 2&1/2mg for 4wks the fatigue and nausea is terrible 😢 With the fatigue I...

Hello again, can anyone answer if what I’m suffering is normal I am now down to ...

•11 months ago

seronegative arthritis

Hi everyone I feel very sad that for 5 years have been on steroids and now it looks like I have seronegative arthritis with massively damaged knee and had op...

Hi everyone I feel very sad that for 5 years have been on steroids and now it l...

•11 months ago

tapering, on methotrexate, additional painkillers

I am tapering down prednisone, under specialist advise, at 6mg for one month, alternate 5mg/6mg, then 5 mg over a three month period. I still have pain and...

I am tapering down prednisone, under specialist advise, at 6mg for one month, ...

•11 months ago

fed up

feeling very low today,I’ve been trying really hard to taper my steroids,I was on 13 and a half mg and got down to 11 over 12 weeks but now all my pain in...

feeling very low today,I’ve been trying really hard to taper my steroids,I was o...

•11 months ago

Stiffness & Aching

For the past several months I wake around 3-4 in the morning with stiffness and aching, I toss and turn but cannot get comfortable. I either eventually go...

For the past several months I wake around 3-4 in the morning with stiffness and ...

•11 months ago

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