Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for June 2023

dental treatment, MTX , surgery and Co-vid booster all landing at the same time.

having a bit of a meltdown with this one, on 29th of this month I am having some planned renal surgery that I am paying to have done privately , the problem...

having a bit of a meltdown with this one, on 29th of this month I am having some...

Gaz227

•1 year ago

11 Replies

Is this a flare or something else?

Hi, I’m almost three years in with this awful disease (PMR) and still can’t figure it out. I began a Pred reduction from 9.5 to 9mg on 25 April using DL’s...

Hi, I’m almost three years in with this awful disease (PMR) and still can’t figu...

Tiggy70

•1 year ago

18 Replies

Vit B12

Good morning , so following on from my ESR. CRP and Cortisol tests with GP this week they are all in normal range … which is great and gives me some help in...

Good morning , so following on from my ESR. CRP and Cortisol tests with GP this...

5goFlotilla

•1 year ago

35 Replies

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PMR second time around!

Not long ago I posted that I was 1year zero pred....now I'm back on it.Pro often writes that people say the second time around is different, and mine is. First...

Not long ago I posted that I was 1year zero pred....now I'm back on it.Pro often...

MamaBeagle

•1 year ago

11 Replies

Weight Loss :)

Hi everyone. I changed my eating habits last November (ish) and have lost 23lbs since. :) I was not overly overweight but was looking a bit too big for my...

Hi everyone. I changed my eating habits last November (ish) and have lost 23lbs ...

Hidden

•1 year ago

26 Replies

taper

i am sorry i cannot offer anything other than it took me two years plus to get to 1 mg. I would listen to PMR Pro and Snazzy and others in this website. They...

i am sorry i cannot offer anything other than it took me two years plus to get ...

Predniso141

•1 year ago

1 Reply

episode 6 of a limited series!

thank you to everyone who took the time to respond to my previous update Today I was told that contrary to what the rheumatologist nurse told me that I was to...

thank you to everyone who took the time to respond to my previous update Today ...

AnniesRyder5

•1 year ago

4 Replies

General blood test - do I need to worry (not that it helps!)

Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum...

Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassi...

Bluey-1

•1 year ago

42 Replies

PMR or GCA Flare. Can GCA affect head/hearing?

I have written about this previously. I was down to 27 mg. pred about two weeks ago. I started getting PMR flare pain (?) about a week ago. Today, everything...

I have written about this previously. I was down to 27 mg. pred about two weeks ...

Missus835

•1 year ago

19 Replies

Blood tests

Hi, hope everyone is as well as can be. I had some bloods done this week and to my surprise, my CRP had reduced quite a bit but ESR still high but not as...

Hi, hope everyone is as well as can be. I had some bloods done this week and t...

Bramble2000

•1 year ago

4 Replies

ILL AGAIN :-(

Hi had health issues related to PMR since 2017 I am also type 2 diabetes. Been up and down on pred, since Han this year tried to lower dose going 1/2 mg every...

Hi had health issues related to PMR since 2017 I am also type 2 diabetes. Been ...

SRIXON

•1 year ago

29 Replies

query about pred and surgery

I am having a total hip replacement later this month, and had my pre-op assessment this week. After some deliberation the nurse told me that I should not take...

I am having a total hip replacement later this month, and had my pre-op assessme...

Angel_doll

•1 year ago

17 Replies

heart attack

I have just got out of hospital owing to a heart attack, will post later as I need some advice🙏

I have just got out of hospital owing to a heart attack, will post later as I ne...

Blackcat1M

•1 year ago

12 Replies

Info onActemra

Hi everyone, I was diagnosed with GCA Dec 21 and put on 65mg Pred. Then March 22 I started Actemra weekly injections. I have been very fortunate so far as I...

Hi everyone, I was diagnosed with GCA Dec 21 and put on 65mg Pred. Then March ...

MarksPoint

•1 year ago

21 Replies

How medical training works

Obviously people who’ve worked in medicine or allied fields know this but that leaves a lot of people who don’t and might be interested. Keep it simple and...

Obviously people who’ve worked in medicine or allied fields know this but that l...

Mayadill

•1 year ago

36 Replies

Low Cortisol levels

Hello, I’ve been steadily tapering back to 5 mg after a flare, currently on 7 mg of Pred, and I have been feeling pretty rough most days, the usual fatigue,...

Hello, I’ve been steadily tapering back to 5 mg after a flare, currently on 7 m...

Southmead

•1 year ago

6 Replies

anti depressants and prednisone.

Is anyone taking antidepressants while on prednisone? I’m currently on 9 mg I’ve been on them at various times, but not since I got PMR/GCA. Everything...

Is anyone taking antidepressants while on prednisone? I’m currently on 9 mg I...

Mstiles

•1 year ago

19 Replies

Withdrawal or Flare

Good afternoon I am just 1 year into my PMR journey and have reduced from 15mg Prednisolone to 5mg. I have been 9 days now on 5mg and reduced from 5.5mg and...

Good afternoon I am just 1 year into my PMR journey and have reduced from 15mg P...

5goFlotilla

•1 year ago

7 Replies

Prednisolone out of date

I realised yesterday that all my prednisolone is out of date by at least several months. Because I already had quite a lot of pred in 1mg 5 mg and 2 and a...

I realised yesterday that all my prednisolone is out of date by at least several...

caftan

•1 year ago

5 Replies

Sourcing advice please

Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no...

Hi I went to my GP in April with this problem. My GP practice give you forms fo...

Wonderfullifeandmore

•1 year ago

14 Replies

GCA tapering

Since being diagnosed late Jan this year I have for the 2nd time tapered down to 20mg Pred- both times had to go back up to 30 & 25mg. Last month down to 20mg...

Since being diagnosed late Jan this year I have for the 2nd time tapered down to...

Janeval

•1 year ago

18 Replies

DSNS tapering

hi I have been trying for over a year to get below 7 mg of prednisone Decided to try the DSNS method I am now at 6,5 new and 2. Days of old 7 mg When I...

hi I have been trying for over a year to get below 7 mg of prednisone Decided t...

tulazik3001

•1 year ago

8 Replies

Actemra..any problems when taking this..

Was wondering what problems people have when taking Actemra weekly. I have been on it for a couple of months, slowly reducing Prednezone. Would like some...

Was wondering what problems people have when taking Actemra weekly. I have been...

Wilson1952

•1 year ago

5 Replies

Peroneal Tendonitis

I have just been diagnosed with Peroneal tendonitis at a clinic after an ultrasound on my foot due to quite severe pain after just stepping down a step. The...

I have just been diagnosed with Peroneal tendonitis at a clinic after an ultraso...

Pawscat11

•1 year ago

2 Replies

New diagnosis today , need your advice and guidance please .

I have just received a letter from my visit to the pain clinic , it states my pain in buttocks and hip as right sided trochanteric and right sided ischial...

I have just received a letter from my visit to the pain clinic , it states my pa...

Staffieblue

•1 year ago

29 Replies

Wrong diagnosis

Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago...

Hi everyone, I don't post very much, a bit of a lurker but I will be leaving t...

Gyspysmum

•1 year ago

19 Replies

crp 6.7

Hi, I went to see my gp yesterday with suspected uti. I did a urine sample which was showing Leucocytes present, I was given a three day course of...

Hi, I went to see my gp yesterday with suspected uti. I did a urine sample wh...

Lynlea

•1 year ago

11 Replies

Alt liver test

Alt levels are stable what does this mean?

Researchmad

•1 year ago

5 Replies

Pain in wrists and thumbs.

I was diagnosed with PMR nine years ago and have had my ups and downs but I was fairly settled on 5mgs of Prednisolone. I now have another flare with the usual...

I was diagnosed with PMR nine years ago and have had my ups and downs but I was ...

61EllieCheshire

•1 year ago

40 Replies

Appointment cancelled again!

Last year I couldn’t attend my rheumy appt as I had Covid so I was given an appointment for this July. That was changed to October 2023 and now been cancelled...

Last year I couldn’t attend my rheumy appt as I had Covid so I was given an app...

Suet3942

•1 year ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

dental treatment, MTX , surgery and Co-vid booster all landing at the same time.

Is this a flare or something else?

Vit B12

PMR second time around!

Weight Loss :)

taper

episode 6 of a limited series!

General blood test - do I need to worry (not that it helps!)

PMR or GCA Flare. Can GCA affect head/hearing?

Blood tests

ILL AGAIN :-(

query about pred and surgery

heart attack

Info onActemra

How medical training works

Low Cortisol levels

anti depressants and prednisone.

Withdrawal or Flare

Prednisolone out of date

Sourcing advice please

GCA tapering

DSNS tapering

Actemra..any problems when taking this..

Peroneal Tendonitis

New diagnosis today , need your advice and guidance please .

Wrong diagnosis

crp 6.7

Alt liver test

Pain in wrists and thumbs.

Appointment cancelled again!

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