Stopping Prolia

[GucciPaddy]

Do any members have experience with stopping Prolia and , if so, was it good or bad?

Paddy

[PMRpro Ambassador]

If you stop Prolia it is now recommended you are switched to a bisphosphonate for a couple of years at least to consolidate the improved bone density achieved and avoid the rebound loss of bone density which has been identified and is accompanied by a very real risk of spinal fractures, especially in the first 6 months after stopping.

[GucciPaddy in reply to PMRpro]

Spinal fractures! That’s scary. Appreciate, as always, your advice and insight.

Paddy

[PMRpro Ambassador in reply to GucciPaddy]

PS - why do you want to stop Prolia?

[GucciPaddy in reply to PMRpro]

Because of the serious side affects and that I may have experienced two of them!

[PMRpro Ambassador in reply to GucciPaddy]

Fair enough - which ones? Not being nosey but it is the sort of information it is useful for us to have.

[GucciPaddy in reply to PMRpro]

Dizziness and Diarrhoea.

[PMRpro Ambassador in reply to GucciPaddy]

And presumably more than briefly and enough to bother you?

[GucciPaddy in reply to PMRpro]

Very bad dose of diarrhoea (lasted 6/7 days) shorty after injection and attack of dizziness two weeks later. Actually currently in hospital re the latter condition.

[PMRpro Ambassador in reply to GucciPaddy]

Hope they identify a cause that can be dealt with! Get well soon

[GucciPaddy in reply to PMRpro]

appreciate your wishes, many thanks.

P