Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2023

Is codeine ok with prednisolone.

Foolishly went mad digging garden couple of weeks ago and upset my back....past slipped disc. Seeing pysio and doing all the right things and keeping pain...

Foolishly went mad digging garden couple of weeks ago and upset my back....past ...

Ebiker

•11 months ago

12 Replies

Mycophenolate

Has anyone suffered my experience and what did you do? I am on my first week of taking Mycophenolate and my PMR/Vasculitis pain has increased tremendously,...

Has anyone suffered my experience and what did you do? I am on my first week ...

Ab-12

•11 months ago

16 Replies

UPDATE: PMR Symptoms Reoccuring @ 30 mg. Pred or is it GCA?

Seems like I'm on here often lately, but so many issues ongoing. Last night I awoke with what I thought was a fever and turned out to be low body temp at...

Seems like I'm on here often lately, but so many issues ongoing. Last night I aw...

Missus835

•11 months ago

11 Replies

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Progress

it’s my 5yr PMR/GCA anniversary. After coming off pred completely last October, and struggling through what was obviously a flair. I won’t go into the whole...

it’s my 5yr PMR/GCA anniversary. After coming off pred completely last October,...

Alazarin

•11 months ago

6 Replies

Truro Support Group

A reminder, we meet at Truro Golf Club, Treliske TR1 3LG from 2pm next Monday 12th June. We are a relaxed & friendly group. If you’d like more details do...

A reminder, we meet at Truro Golf Club, Treliske TR1 3LG from 2pm next Monday 1...

Pollyanna16

•11 months ago

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Shingles

Hi all, My friend has Shingles. With PMR is it advisable to stay away until after breakout. Reading conflicting advice. Much appreciated yet again!!...

Hi all, My friend has Shingles. With PMR is it advisable to stay away until aft...

Fredddie

•11 months ago

2 Replies

Don't know What's happening to me!!

JanboC

•11 months ago

36 Replies

Flare at low dose

Hi, I'm looking for some advice again please. I was really pleased to be at 2.5mgs (after 4 years) and felt great, I naively thought I may no longer have PMR...

Hi, I'm looking for some advice again please. I was really pleased to be at 2.5m...

Booboos171

•11 months ago

3 Replies

Sensitive Skin

Hi all, as you can see from my bio, PMR since feb 2023. Taking pred 12.5mg at the moment. Recently been experiencing skin sensitivity at the front of my hips,...

Hi all, as you can see from my bio, PMR since feb 2023. Taking pred 12.5mg at th...

Worthy10

•11 months ago

3 Replies

Mixing Prednisolone and Prednisona

Hi all. I have a question about the Prednisona steroid tablets that I have been prescribed in Spain and the Prednisolone steroid tablets that I am prescribed...

Hi all. I have a question about the Prednisona steroid tablets that I have been ...

Elispeth

•11 months ago

7 Replies

I don't believe it!!

Hi All After posting 9 days ago on advice how to taper from 8 weeks on 1mg I started on a very slow taper. I started the taper last Sunday. The last 3 days I...

Hi All After posting 9 days ago on advice how to taper from 8 weeks on 1mg I st...

Fredddie

•11 months ago

11 Replies

Post Laprascopic Cholecystectomy

so had the Op. All went well. Discharged the same day. Steroids given by injection b4 discharge. notes on discharge paper- take 1 x 5mg twice daily for 2...

so had the Op. All went well. Discharged the same day. Steroids given by injec...

Suffererc

•11 months ago

11 Replies

PMR pro

recall you recommending a magnesium that does NOT cause diarrhea. pls send me a message .

recall you recommending a magnesium that does NOT cause diarrhea. pls send me a...

icu2

•11 months ago

6 Replies

Diarrhea and sickness

Hi just looking for advice or suggestions please. I got diarrhoea and sickness in the early hours of Thursday morning. The sickness lasted 17 hours but I...

Hi just looking for advice or suggestions please. I got diarrhoea and sickness ...

BiBaBo

•11 months ago

11 Replies

newly diagnosed with PMR

hi, I am 78 year old male, had Covid from Christmas Day 2022, lasted 3 weeks and was dreadful. Afterwards was taking time to fully recover, early March 2023,...

hi, I am 78 year old male, had Covid from Christmas Day 2022, lasted 3 weeks and...

Thiago1396

•11 months ago

33 Replies

Drop to 10mg or taper

I started in November 22 on 10mg after 6/7 weeks Doctor reduced pred to 5mg, which turned out to be to low, up to 15mg for one week then reduce to 10mg, a...

I started in November 22 on 10mg after 6/7 weeks Doctor reduced pred to 5mg, whi...

Gardenerlady

•11 months ago

15 Replies

Dosage advice please

I think I already partly know the answer to my question but if anyone has suggestions I would be grateful. I started on 15mg of pred in Feb/March and reduced...

I think I already partly know the answer to my question but if anyone has sugges...

Lclmlbls

•11 months ago

15 Replies

Headaches.

Hi.i came off pred in March 2023,but I still keep getting headaches.i do take paracetamol,sometimes they go,but if it's a bad one,it doesn't go.just wondering...

Hi.i came off pred in March 2023,but I still keep getting headaches.i do take pa...

Flosy

•11 months ago

8 Replies

New tapering

Hi all, I was wondering if you could help me and advise me, when tapering off steroids, how long in between your first cut down dose to the next one do I have...

Hi all, I was wondering if you could help me and advise me, when tapering off st...

Sueloobyloo

•11 months ago

8 Replies

Replies to Kiwi sufferer post.

Thank you all so much for your replies and advice, it was very much appreciated. Makes a body not feel so alone. I find people don't really understand unless...

Thank you all so much for your replies and advice, it was very much appreciated....

Kiwisufferer2019

•11 months ago

2 Replies

Gabapentin

I was first diagnosed with PMR on October 2021. I finished Prednisilone in April 2023. I have been prescribed Gabapentin for a flare up of my symptoms. Has...

I was first diagnosed with PMR on October 2021. I finished Prednisilone in April...

Kingfisher489

•11 months ago

21 Replies

Trying to understand my inflammation

Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 MG, and have weaned down to 12.5 MG at present. Forgive me for being "anal,"...

Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 ...

montebello

•11 months ago

56 Replies

low cortisol

I saw the Rheumy doctor over a month ago and her flippant diagnosis mirrored so many others’. About the same time a random telephone health check from my...

I saw the Rheumy doctor over a month ago and her flippant diagnosis mirrored so ...

AnniesRyder5

•11 months ago

36 Replies

Water retention. Can it disappear, then reappear on a lower dose of Prednisone?

I found that moon face and weight improved when I reduced Prednisone below 10 mg/day. But now, many months later and a few days into 3.5 mg, my face is puffy...

I found that moon face and weight improved when I reduced Prednisone below 10 mg...

Dochaz

•11 months ago

4 Replies

Advice for future treatment of GCA /LVV

I wrote last week to say I had to have urgent PET scan as ESR 49 and CRP 10. Also letter said true iron deficiency. I expect to hear from consultant early...

I wrote last week to say I had to have urgent PET scan as ESR 49 and CRP 10. Als...

5lupins

•11 months ago

8 Replies

Pmr for 2nd time!

Hi, just a question for Members who have had PMR twice. Where your symptoms exactly the same the second time. I am feeling very poorly at the moment and am...

Hi, just a question for Members who have had PMR twice. Where your symptoms exac...

Attic

•11 months ago

12 Replies

At 27 mg. Pred and PMR symptoms returning? Flare?

I have shared prior that I am reducing pred slowly, albeit seems not slowly enough from 60 mg. last January. This week I dropped from 30 to 27 mg. Pred and...

I have shared prior that I am reducing pred slowly, albeit seems not slowly enou...

Missus835

•11 months ago

7 Replies

PMR flare?

For the first time in about 2 years I successfully tapered down from 10 to 9.5 over 4 weeks, then week 5 just 9.5. I was feeling so good, then àbout 4 days...

For the first time in about 2 years I successfully tapered down from 10 to 9.5 ...

Kiwisufferer2019

•11 months ago

21 Replies

Magnesium for cramps?

My mum has GCA and currently just reduced to 20mg pred from starting dose of 60mg.She has recently developed a lot of cramping in her hands/arms and calfs and...

My mum has GCA and currently just reduced to 20mg pred from starting dose of 60m...

Buchanan16

•11 months ago

5 Replies

pred causing shaking/cramps

I have posted before asking if anyone had suffered from shakiness while on pred and some lovely people replied but in my mums case it seems to be getting worse...

I have posted before asking if anyone had suffered from shakiness while on pred ...

Buchanan16

•11 months ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

Is codeine ok with prednisolone.

Mycophenolate

UPDATE: PMR Symptoms Reoccuring @ 30 mg. Pred or is it GCA?

Progress

Truro Support Group

Shingles

Don't know What's happening to me!!

Flare at low dose

Sensitive Skin

Mixing Prednisolone and Prednisona

I don't believe it!!

Post Laprascopic Cholecystectomy

PMR pro

Diarrhea and sickness

newly diagnosed with PMR

Drop to 10mg or taper

Dosage advice please

Headaches.

New tapering

Replies to Kiwi sufferer post.

Gabapentin

Trying to understand my inflammation

low cortisol

Water retention. Can it disappear, then reappear on a lower dose of Prednisone?

Advice for future treatment of GCA /LVV

Pmr for 2nd time!

At 27 mg. Pred and PMR symptoms returning? Flare?

PMR flare?

Magnesium for cramps?

pred causing shaking/cramps

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