Adrenals: Im down to 4mg pred daily Im a bit achey... - PMRGCAuk

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Adrenals

deeperpurple profile image
6 Replies

Im down to 4mg pred daily Im a bit achey but it wears off after a bit I just wanted to ask when will I know my adrenals are working thanks

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deeperpurple profile image
deeperpurple
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6 Replies
SnazzyD profile image
SnazzyD

in a nutshell, you shouldn’t feel anything. You are able to go about your day not feeling tired, empty, nauseated, emotional, shakey etc.

deeperpurple profile image
deeperpurple in reply toSnazzyD

thanks I see what you mean apart from what I said about a few morning aches Im good most of the time good enough for a few cold ones this afternoon lol

SnazzyD profile image
SnazzyD in reply todeeperpurple

However, when you leave the house remember to wear some sort of medical alert to say you are on steroids and take some spare pills. The reason is that on a daily basis your adrenal glands might be fine and giving out enough cortisol (plus the Pred). If you have a fall or shock or something and they need to give you a whallop of cortisol they might not be able to just yet. For me it was sustained physical or emotional stress over a day that did for me on a few occasions. One minute I was ok and the next I was a wreck and feeling very ill. As DL says it can take a year for reliable function to occur but for me it was over 18 months. The way I found out was by having the odd crisis, not planned. Sounds like you’re ok on a daily basis which is great.

PMRpro profile image
PMRproAmbassador

It is more about not knowing they are working - but feeling something if they aren't ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Ditto to other replies -but just aware they may not be fully functioning for up to a year after coming off Pred.

PS - agree with SnazzyD about steroid card & steroids

Pollyanna16 profile image
Pollyanna16

I am on 3.5mg indefinitely for Adrenal Insufficiency & generally feel ok. But as others have said any real anxiety or too much going on in my life I start to struggle. I realised 2 weeks ago I just had to stop & reboot. After travelling, various meetings & 2 golf days in extreme humidity I just folded. So pleased the air is clearer now & feeling fine. Another period of travel & seeing relatives coming up though! Take care x

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