Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for August 2022

recovering from covid and upping steroids

Just recovering from covid this week after coming off a cruise ship!! GP suggesting upping to 15mg from 3mg. See him again in 2 weeks but know others have...

Just recovering from covid this week after coming off a cruise ship!! GP sug...

Rosshigh

•2 years ago

18 Replies

PAUSING tapering for a wedding

I just wanted to share. My daughter gets married in just over two weeks and I’m about due to do a pred drop. I’m on 5mg on which I’m pretty ok and balanced...

I just wanted to share. My daughter gets married in just over two weeks and I’m ...

MiloCollie

•2 years ago

14 Replies

Loss of Bone density

I have just received a low bone density diagnosis due to the 8 months of prednisone, I suppose. I am devastated as I have followed all the recommendations for...

I have just received a low bone density diagnosis due to the 8 months of prednis...

Strelitzia

•2 years ago

41 Replies

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Explaining PMR

Just out of interest how has others like friends and family reacted to being told you have PMR ? Not that I want sympathy but I get you look so well !! Oh...

Just out of interest how has others like friends and family reacted to being t...

rachelbell

•2 years ago

73 Replies

Metformin

I have been on pred for almost three years and am currently at 7 mg. I have just been put on Metformin as my A1C is at 8.2. I’m having problems adjusting to...

I have been on pred for almost three years and am currently at 7 mg. I have just...

TINYdes

•2 years ago

12 Replies

STATINS

I know that several people take statins. I thought you may be interested in New European Guidelines which ‘Drastically’ reduce statin eligibility. In fact they...

I know that several people take statins. I thought you may be interested in New ...

piglette

•2 years ago

44 Replies

pred and metformin

I have been put on metformin as by A1C was to high after being on pred for two and a half years. Anyone out there have any experience with this drug. Thank...

I have been put on metformin as by A1C was to high after being on pred for two a...

tinydes234

•2 years ago

13 Replies

steroids a necessary evil

Just wanted to share with you this. I would love to be free of prednisone I really would but this is what I have experienced. From 15mg I got to 6mg from last...

Just wanted to share with you this. I would love to be free of prednisone I real...

Dartmoor4

•2 years ago

74 Replies

chicken pox and pmr

My granddaughter has just been diagnosed with chicken pox. It’s her first birthday tomorrow and the following day, a party and bbq was planned. This may go...

My granddaughter has just been diagnosed with chicken pox. It’s her first birthd...

Laineydee

•2 years ago

6 Replies

Tapering Prednisone

I dropped from 10mg to 9mg Prednisone 6 days ago. My pain level has stayed at 1 or 2 out of 10. Is it too early to drop to 8mg? Do I need to stay at 9...

I dropped from 10mg to 9mg Prednisone 6 days ago. My pain level has stayed at ...

BuddyBearF

•2 years ago

36 Replies

Anyone have a rheumatologist who is mad keen to get you onto Methotrexate and off Prednisolone even though you have responded well to it?

I was diagnosed with PMR in April and started on 20mg a day of Prednisolone which was reduced to 10mg over eight weeks. The tapering does not seem to have...

I was diagnosed with PMR in April and started on 20mg a day of Prednisolone whic...

Siena62

•2 years ago

29 Replies

Big Ugh = Severe osteoporosis >> Rheumies plan rapid decrease of pred >> methotrexate or tocilizumab?>> how big a drop to next dose?

Hello All, Hope you are experiencing cooler climes! Pennsylvania is finally getting rain and it's much cooler. Thank goodness you are here. I have three...

Hello All, Hope you are experiencing cooler climes! Pennsylvania is finally ge...

Chicama

•2 years ago

12 Replies

Low Dose Pred Side-effect Study

fyi https://evidence.nihr.ac.uk/alert/low-doses-steroids-increase-cardiovascular-risks-in-inflammatory-diseases/

fyi https://evidence.nihr.ac.uk/alert/low-doses-steroids-increase-cardiovasc...

Knit11

•2 years ago

44 Replies

Dead Slow reduction

Hi,iam doing DorsetLady 7 week slow taper just wondering if all good do I go straight on to next reduction or stay for a week or so x .HARRY

Hi,iam doing DorsetLady 7 week slow taper just wondering if all good do I go ...

Harrywogan

•2 years ago

6 Replies

jab for covid protection

since when did it take so many jabs to protect someone!

Uglow

•2 years ago

15 Replies

How Much Can I bear?

Hello everyone. I am in the middle of the hardest time of my life after the death of my dear brother and then the brutal suicide of my beautiful 18 year old...

Hello everyone. I am in the middle of the hardest time of my life after the de...

Louisa1840

•2 years ago

34 Replies

Small flare Advice

After 4.3 years of PMR, I am currently on 2.5 mg Prednisone, after a flare up at 2 mg a couple months ago. I was just going to continue with 2.5 for a few...

After 4.3 years of PMR, I am currently on 2.5 mg Prednisone, after a flare up at...

fishingnut

•2 years ago

7 Replies

PMR totally debilitating!

hi everyone I haven’t been formally diagnosed yet but I believe I got PMR three weeks before my tongue operation to remove leukoplakia suspected tongue cancer...

hi everyone I haven’t been formally diagnosed yet but I believe I got PMR three...

Heidiypi1

•2 years ago

4 Replies

SIXTH COVID VACCINE

Just thought I would let you all know I have had my appointment for sixth vaccine on Sunday, 4th September. Was going to start a slow drop to 9.5 mg Pred next...

Just thought I would let you all know I have had my appointment for sixth vaccin...

Hollybee21

•2 years ago

15 Replies

Covid

Having dodged this bullet for over two years I tested positive today. Feeling very rough with high temperature and cracking headache and flu like aches....

Having dodged this bullet for over two years I tested positive today. Feeling ve...

Orpheus82

•2 years ago

15 Replies

Which Magnesium?

Hi all, I've been taking a Magnesium Citrate supplement for well over a year now (got a good supply) and originally started it for heavy, restless legs and...

Hi all, I've been taking a Magnesium Citrate supplement for well over a year now...

Artnmusiclover

•2 years ago

21 Replies

Blood Tests to monitor PMR?

Somewhere and I thought it was here someone posted a link to blood tests to monitor PMR - there were about 8-10 tests. Does anyone know where I can get such...

Somewhere and I thought it was here someone posted a link to blood tests to moni...

kp60

•2 years ago

11 Replies

Leflumanide

I'm now into week of 7 of 10mg daily of Leflunomide and have decided after daily diarrhoea and increased blood pressure to give it a miss as a sparing agent...

I'm now into week of 7 of 10mg daily of Leflunomide and have decided after da...

Caloo650

•2 years ago

19 Replies

PMR becomes RA

I suffered from polymyalgia for two years and with no improvement and continuing high inflammation levels the diagnosis changed to rehumatoid arthritis. I...

I suffered from polymyalgia for two years and with no improvement and continuing...

jennyjournalist

•2 years ago

12 Replies

Recently diagnosed with PMR

Hello to the group. I am a 72 year old woman diagnosed with PMR three weeks ago after a month of progressively worsening bilateral pain in my hip, thigh and...

Hello to the group. I am a 72 year old woman diagnosed with PMR three weeks ago...

Donna5658

•2 years ago

20 Replies

Alendronic Acid

I have reduced my Prednisolone to 3 ml a day, I was thinking of stopping my weekly intake of Alendronic acid, but I first of all contacted my GP. She has...

I have reduced my Prednisolone to 3 ml a day, I was thinking of stopping my week...

Gardenbay

•2 years ago

21 Replies

A bit of cheer when we need it.

A bit off topic, but I'm so chuffed at having self published my third book! I'm not bothered about sales, just a few reviews and the sense of achievement...

A bit off topic, but I'm so chuffed at having self published my third book! I...

strawclutching

•2 years ago

12 Replies

Virus or Bacterial infections when on Prednisolone for PMG

Thanks to those who answered my first post on this site asking if anyone contracted PMR following pneumococcal vaccine , that was my question. Many replies...

Thanks to those who answered my first post on this site asking if anyone contrac...

Helag

•2 years ago

17 Replies

Update on my post of Mixed Feelings following first GP appointment since diagnosis

First of all, thank you to everyone for your supportive messages. I've been back to Acute Emergency Care this morning. The good news is a blood clot in the...

First of all, thank you to everyone for your supportive messages. I've been bac...

sewinggranny

•2 years ago

10 Replies

methotrexate

Saw my rheumatologist yesterday and he says I’m having a flare and wants to get it under control ( I ache again and inflammatory markers up) He doesn’t want to...

Saw my rheumatologist yesterday and he says I’m having a flare and wants to get ...

Rebsy

•2 years ago

67 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

recovering from covid and upping steroids

PAUSING tapering for a wedding

Loss of Bone density

Explaining PMR

Metformin

STATINS

pred and metformin

steroids a necessary evil

chicken pox and pmr

Tapering Prednisone

Anyone have a rheumatologist who is mad keen to get you onto Methotrexate and off Prednisolone even though you have responded well to it?

Big Ugh = Severe osteoporosis >> Rheumies plan rapid decrease of pred >> methotrexate or tocilizumab?>> how big a drop to next dose?

Low Dose Pred Side-effect Study

Dead Slow reduction

jab for covid protection

How Much Can I bear?

Small flare Advice

PMR totally debilitating!

SIXTH COVID VACCINE

Covid

Which Magnesium?

Blood Tests to monitor PMR?

Leflumanide

PMR becomes RA

Recently diagnosed with PMR

Alendronic Acid

A bit of cheer when we need it.

Virus or Bacterial infections when on Prednisolone for PMG

Update on my post of Mixed Feelings following first GP appointment since diagnosis

methotrexate

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

﻿recovering from covid and upping steroids

PAUSING tapering for a wedding

Loss of Bone density

﻿Explaining PMR

Metformin

STATINS

pred and metformin

steroids a necessary evil

chicken pox and pmr

﻿Tapering Prednisone

Anyone have a rheumatologist who is mad keen to get you onto Methotrexate and off Prednisolone even though you have responded well to it?

Big Ugh = Severe osteoporosis >> Rheumies plan rapid decrease of pred >> methotrexate or tocilizumab?>> how big a drop to next dose?

﻿Low Dose Pred Side-effect Study

﻿Dead Slow reduction

jab for covid protection

How Much Can I bear?

Small flare Advice

PMR totally debilitating!

SIXTH COVID VACCINE

Covid

Which Magnesium?

Blood Tests to monitor PMR?

﻿Leflumanide

PMR becomes RA

Recently diagnosed with PMR

Alendronic Acid

A bit of cheer when we need it.

Virus or Bacterial infections when on Prednisolone for PMG

Update on my post of Mixed Feelings following first GP appointment since diagnosis

methotrexate

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

recovering from covid and upping steroids

Explaining PMR

Tapering Prednisone

Low Dose Pred Side-effect Study

Dead Slow reduction

Leflumanide