Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2022

Swelling Below the Eyes

I have been taking Prednisolone regularly for PMR since May 2021. I am on 7 mg at present which controls any PMR pain fairly well. I am prepared to put up with...

I have been taking Prednisolone regularly for PMR since May 2021. I am on 7 mg a...

Geology

•2 years ago

15 Replies

possibly bakers cyst

hi all , I had a fluid lump on both knees right one is more painful a real stinging pain I have not banged or done anything to my knees . I spoke with...

hi all , I had a fluid lump on both knees right one is more painful a real sting...

Rottsuzi

•2 years ago

4 Replies

Am I in Denial?

Is it truly unreasonable to believe I will be able to return to my profession after a 2 1/2 year absence? Am I putting my patients in jeopardy due to my own...

Is it truly unreasonable to believe I will be able to return to my profession a...

SMH4CRNA

•2 years ago

64 Replies

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sick day rules due to covid. Sharing my experience.

Well I was super fed up a few weeks ago and then it went from bad to worse! I cried in my rheumy nurse appointment because I was fed up of feeling sore all the...

Well I was super fed up a few weeks ago and then it went from bad to worse! I cr...

MiloCollie

•2 years ago

35 Replies

two weeks and told to cut meds

Hi I'm new to this as I've said in my previous post so learning all the time. I have been told that after two weeks on 15mg prednisone I should come down...

Hi I'm new to this as I've said in my previous post so learning all the time....

rachelbell

•2 years ago

29 Replies

How long to stay on 2 mg

I should be tapering to 2 mg next month, I seem to remember reading here that Professor Dasgupta recommends staying on 2mg for quite a while. Any...

I should be tapering to 2 mg next month, I seem to remember reading here that P...

Theziggy

•2 years ago

6 Replies

I think a magnesium supplement does make a difference - to me at any rate

I've been on 7.5mg prednisolone since October 2020. Just recently I started a slow taper and during the first few days didn't feel too well. My...

I've been on 7.5mg prednisolone since October 2020. Just recently I started a...

Pr0jection

•2 years ago

6 Replies

protection for the immunocompromised?

Interesting article on protection for the immunocompromised. Not being offered because of the cost apparently. But how much does hospitalisation and treatment...

Interesting article on protection for the immunocompromised. Not being offered b...

Teekay2

•2 years ago

3 Replies

new drug Lefluamide

Its a while since I've posted,slowly tapering and rejection of methotrexate after nausea. Following a return of stiffness at .4.5mg Pred rheumie persuaded...

Its a while since I've posted,slowly tapering and rejection of methotrexate af...

Caloo650

•2 years ago

5 Replies

Happy Birthday Pmrpro

All the very best birthday wishes for a special person who has not had the easiest of years but has still helped so many of us with knowledge, humour and a...

All the very best birthday wishes for a special person who has not had the easie...

herdysheep

•2 years ago

57 Replies

FROM THEB SLEEPING BEAUTY

just like to say a big Thank You to all who responded to my fatigue Im still being a Zombie, BUT as I know the reason, now all is good it is fantastic to...

just like to say a big Thank You to all who responded to my fatigue Im still be...

seamaid

•2 years ago

12 Replies

bleeding

diagnosed this year, March/April, was on 15mgs, now 10mgs, I bleed if I so much as knock against anything, takes a long time to clear up,

diagnosed this year, March/April, was on 15mgs, now 10mgs, I bleed if I so much ...

456again

•2 years ago

14 Replies

on 3.5mgs of Prednisolone & having a colonoscopy with sedation on Saturday. Should I increase my dose of pred beforehand?

Hi all, looking for advice from you lovely knowledgeable people. I’ve tapered down from 10mg in June last year to 3.5mg 2 weeks ago with no problems, (apart...

Hi all, looking for advice from you lovely knowledgeable people. I’ve tapered d...

Cact

•2 years ago

23 Replies

Wasp Bite

Struggling along on Actemra, dealing with nocturnal hypertension, which may be caused by severe reflux. Day before yesterday hubby and I were hauling...

Struggling along on Actemra, dealing with nocturnal hypertension, which may be c...

phebamom

•2 years ago

3 Replies

PMR PREDNISONE TAPERING PLATEAU

I've been on Prednisone since January 2022 for PMR diagnosed at that time. Started at 20 mg. I'm in the process of tapering and seem to be stuck between 12.0...

I've been on Prednisone since January 2022 for PMR diagnosed at that time. Start...

Missus835

•2 years ago

26 Replies

PMR diagnosed August 2020, an ESR blood test taken recently & current taper at 1.25mg prednisolone

I had a rheumatologist appointment on June 14th last. My pred. dose was 1.75mg then & I was told to keep reducing as I was in no pain & some blood tests were...

I had a rheumatologist appointment on June 14th last. My pred. dose was 1.75mg ...

Hidden

•2 years ago

6 Replies

Welcome to our new members August 2022

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•2 years ago

2 Replies

Last time !

I went to my Rheumy app,it was the same man i have seen in the past,my heart sank . Started off bad and went down hill very fast. He asked how i was since our...

I went to my Rheumy app,it was the same man i have seen in the past,my heart san...

Viv54

•2 years ago

37 Replies

Covid and GCA

I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg weekly. I am now having a relapse and am awaiting a PET scan. I now have covid....

I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg week...

Hidden

•2 years ago

4 Replies

GTPS?

Physio appointment for hip pain after waiting 3 months and she is wondering if I have what used to be bursitis,now called GTPS. Doesnt think my symptoms...

Physio appointment for hip pain after waiting 3 months and she is wondering if I...

granofthewest

•2 years ago

9 Replies

Advice on taking Leflunomide

Hi I’m new to the forum but have reading all your posts and do not feel alone in this awful condition of PMR. I was diagnosed October 2021 at the age of 60. I...

Hi I’m new to the forum but have reading all your posts and do not feel alone in...

Hidden

•2 years ago

12 Replies

Leg Edema-Fluid Leaking

Legs leaking fluid. On high dose prednisolone 60mgs. for PMR and GCA for 4 months. Going on second week of leaking. Started with right leg. Left leg not...

Legs leaking fluid. On high dose prednisolone 60mgs. for PMR and GCA for 4 mont...

pomeranion

•2 years ago

7 Replies

Posted 2 mths ago adrenal insufficiency fatigue . Update. Not sure where I am.

If you followed my posts 2mths ago you will know I was suffering from gerd and dreadful fatigue...moving on.. Doc finally listened to me about the apixaban...

If you followed my posts 2mths ago you will know I was suffering from gerd and...

Ebiker

•2 years ago

2 Replies

physio

saw Phsio today said that yes I’d overdone at it was delayed muscle soreness. He said he has spoken with a rhumi to understand pmr better. He said to go slowly...

saw Phsio today said that yes I’d overdone at it was delayed muscle soreness. He...

Uglow

•2 years ago

34 Replies

Tapering side effects?

Yet another question about tapering side effects,sorry! After 8 years on pred i am finally trying to go from 2mg to 1.5mg per day using deadslow method....

Yet another question about tapering side effects,sorry! After 8 years on pred...

Crochetgirl65_

•2 years ago

34 Replies

does PMR eventually go away

i have been diagnosed by GP with PMR since 2019 and probably had it before then. I have been prescribed preds 15 mg at the outset, tapered to 3 over 18 months...

i have been diagnosed by GP with PMR since 2019 and probably had it before then....

Pommygranny

•2 years ago

34 Replies

Heat affecting prednisolone dosage

Out of interest I wondered if the constant draining effects of the heat we are experiencing affects the dosage of prednisolone. Does the body need more to cope...

Out of interest I wondered if the constant draining effects of the heat we are e...

Sorop

•2 years ago

14 Replies

Increase dose or accept where I am?

I have been taking steroids since May/June 2021 and been tapering since. Currently transitioning from 4-3 mg based on a modified DSNS regime of 35 days. I...

I have been taking steroids since May/June 2021 and been tapering since. Curren...

LBM1953

•2 years ago

23 Replies

tattoo

hi there I’m new to this having only been diagnosed with PMR a month ago and am on 20 mg pred and omeprozole and GP has just prescribed AA which I am due to...

hi there I’m new to this having only been diagnosed with PMR a month ago and am ...

Toffeeboyblue

•2 years ago

55 Replies

The Sleeping Beauty has nothing on me .

Hi all. at the moment I am on week three of tapering my Preds from 8mg to 7.5mg all is well, I am comfortable and no pain anywhere, BUT , I am so tired all...

Hi all. at the moment I am on week three of tapering my Preds from 8mg to 7.5...

seamaid

•2 years ago

37 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

Swelling Below the Eyes

possibly bakers cyst

Am I in Denial?

sick day rules due to covid. Sharing my experience.

two weeks and told to cut meds

How long to stay on 2 mg

I think a magnesium supplement does make a difference - to me at any rate

protection for the immunocompromised?

new drug Lefluamide

Happy Birthday Pmrpro

FROM THEB SLEEPING BEAUTY

bleeding

on 3.5mgs of Prednisolone & having a colonoscopy with sedation on Saturday. Should I increase my dose of pred beforehand?

Wasp Bite

PMR PREDNISONE TAPERING PLATEAU

PMR diagnosed August 2020, an ESR blood test taken recently & current taper at 1.25mg prednisolone

Welcome to our new members August 2022

Last time !

Covid and GCA

GTPS?

Advice on taking Leflunomide

Leg Edema-Fluid Leaking

Posted 2 mths ago adrenal insufficiency fatigue . Update. Not sure where I am.

physio

Tapering side effects?

does PMR eventually go away

Heat affecting prednisolone dosage

Increase dose or accept where I am?

tattoo

The Sleeping Beauty has nothing on me .

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

Swelling Below the Eyes

possibly bakers cyst

﻿Am I in Denial?

sick day rules due to covid. Sharing my experience.

﻿two weeks and told to cut meds

How long to stay on 2 mg

I think a magnesium supplement does make a difference - to me at any rate

protection for the immunocompromised?

﻿new drug Lefluamide

Happy Birthday Pmrpro

FROM THEB SLEEPING BEAUTY

bleeding

on 3.5mgs of Prednisolone & having a colonoscopy with sedation on Saturday. Should I increase my dose of pred beforehand?

Wasp Bite

PMR PREDNISONE TAPERING PLATEAU

PMR diagnosed August 2020, an ESR blood test taken recently & current taper at 1.25mg prednisolone

Welcome to our new members August 2022

Last time !

﻿Covid and GCA

﻿GTPS?

Advice on taking Leflunomide

Leg Edema-Fluid Leaking

Posted 2 mths ago adrenal insufficiency fatigue . Update. Not sure where I am.

physio

﻿Tapering side effects?

does PMR eventually go away

Heat affecting prednisolone dosage

Increase dose or accept where I am?

tattoo

The Sleeping Beauty has nothing on me .

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Am I in Denial?

two weeks and told to cut meds

new drug Lefluamide

Covid and GCA

GTPS?

Tapering side effects?