Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2022

Methotrexate and Anxiety

Hello all, I have GCA and PMR. Diagnosed 2 years ago. A few months ago my medication was changed from Tocilizumab to Methotrexate. I am now down to 7 mg of...

Hello all, I have GCA and PMR. Diagnosed 2 years ago. A few months ago my med...

Hiland

•2 years ago

5 Replies

UTI ?

Hi Everyone...are UTIs another pred problem?it has been nearly a year and thought I had got away with it...only slight discomfort sensation in very low...

Hi Everyone...are UTIs another pred problem?it has been nearly a year and thou...

Temoral

•2 years ago

45 Replies

Thank you everyone

Thanks to everyone's for your replys to my questions. I'm a newbie and this very much a learning curve. A bit alarmed by how long some you've had it for AND...

Thanks to everyone's for your replys to my questions. I'm a newbie and this ver...

Caulkhead63

•2 years ago

2 Replies

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feeling hot and biting bugs

does anyone have feeling of hotness keep coming over them? Like menopause hot flushes they went age's ago for me! Plus I keep getting bitten by midgies even...

does anyone have feeling of hotness keep coming over them? Like menopause hot...

Caulkhead63

•2 years ago

13 Replies

splitting tablets

is it okay to split my 1 mg tablet in half? I seem to have read somewhere that this isn’t advisable.

is it okay to split my 1 mg tablet in half? I seem to have read somewhere that t...

Teach48

•2 years ago

9 Replies

Tapering steroids

Hi, I was diagnosed with GCA in June by my GP due to headaches and very high blood test results. I was initially on 40mg prednisone then reduced to 30mg...

Hi, I was diagnosed with GCA in June by my GP due to headaches and very high bl...

Lynlea

•2 years ago

36 Replies

working with PMR

do you all manage work ok? I'm finding it hard top up at 5 to do my early morning cleaning job

do you all manage work ok? I'm finding it hard top up at 5 to do my early morni...

Caulkhead63

•2 years ago

36 Replies

What next - Hydrocortisone?

As per previous posts. I am taking 30mg (divided doses) + 7mg (down from 8mg) of Pred. I emailed my Dr who is away. He may see my message tomorrow or not....

As per previous posts. I am taking 30mg (divided doses) + 7mg (down from 8mg) of...

IdasMum

•2 years ago

5 Replies

Aches and pains

Hello After 7 years+ I am currently on 3mg of pred after doing a slow taper from 3 to 2.5 but going back to 3 as I have upper arm and shoulder pain and...

Hello After 7 years+ I am currently on 3mg of pred after doing a slow taper...

Daisymay

•2 years ago

108 Replies

GCA what to look out for

what symptoms should I be looking out for? I'm due a eye test as need stronger glasses. Do I say I have PMR?

what symptoms should I be looking out for? I'm due a eye test as need strong...

Caulkhead63

•2 years ago

17 Replies

how long have you had this for?

i have read several different things about how long you can have this for making it very confusing

i have read several different things about how long you can have this for maki...

Caulkhead63

•2 years ago

33 Replies

This may seem like a daft question……

I have an arthritic hip - have had one replacement and am on the list waiting for the second. ( I did get the chance of a referall earlier this year to a...

I have an arthritic hip - have had one replacement and am on the list waiting fo...

jaycee444

•2 years ago

3 Replies

Hello to the friends that educated me about PMR.

My name is Alexandria, After tapering last year, from 15mg down to 0 as I told everyone...On August 3 was my last day of Prednisone. About 2 weeks later I was...

My name is Alexandria, After tapering last year, from 15mg down to 0 as I told ...

lisbonportugal

•2 years ago

18 Replies

Scaly red dots -anyone else?

I developed, in the last several weeks, on my left thigh 3 scaly, pinkish, scaly dots. They don’t itch or hurt. I tried a weak steroid type cream I used for...

I developed, in the last several weeks, on my left thigh 3 scaly, pinkish, scaly...

Karenjaninaz

•2 years ago

27 Replies

New to PMR

My wife was recently diagnosed with Polymyalgia Rheumatica. She received a prescription for prednisone, which was adequate, but it had the side effect of...

My wife was recently diagnosed with Polymyalgia Rheumatica. She received a presc...

CrushGrapes

•2 years ago

25 Replies

Sulphites

Thank all so much for your answers to my question. Yes I think stress is a big factor with PMR, I am having another painful flare up in my arms at the moment...

Thank all so much for your answers to my question. Yes I think stress is a big f...

Anieand

•2 years ago

2 Replies

Allergic response to Nitrofuantoin

Two weeks ago I developed the urgency and heat associated with cystitis which rapidly developed into a UTI with blood and responded quickly to 3 days of...

Two weeks ago I developed the urgency and heat associated with cystitis which r...

Zebedee44

•2 years ago

30 Replies

Which Emollient

OH still has some residual itchy patches on shins (off pred for over a year) and we're wondering if anyone has any comments re these creams - Doublebase,...

OH still has some residual itchy patches on shins (off pred for over a year) an...

Nuff1

•2 years ago

7 Replies

Adrenals

Hi all. Thank you for adding to me the group. As a recent member of the PMR club I have alot to learn. I am gained from the experience of you all and...

Hi all. Thank you for adding to me the group. As a recent member of the PMR c...

Geny_H

•2 years ago

10 Replies

GCA, now PMR & Rheumatoid Arthritis as well

Hello everyone, I would be very grateful for your experiences and advice. I saw my rheumatologist last week and she has diagnosed PMR & Rheumatoid arthritis in...

Hello everyone, I would be very grateful for your experiences and advice. I saw ...

Hidden

•2 years ago

14 Replies

Hello

Hi everyone. I'm newly diagnosed with PMR and learning every day about this 'thing' that I've got and never wanted! I'll be very grateful for any the advice...

Hi everyone. I'm newly diagnosed with PMR and learning every day about this 'thi...

ttabby22

•2 years ago

51 Replies

SULPHITES

Anieand

•2 years ago

44 Replies

Is this a flare?

I'm only recently diagnosed with PMR so very much at the start of my journey, and I've been prescribed Pred - 20, then 15, then 12.5 - over a period of 3...

I'm only recently diagnosed with PMR so very much at the start of my journey, an...

ttabby22

•2 years ago

4 Replies

Weak wobbly legs update number 2

I feel very lucky to be getting face to face appointments with my GP. Saw her again yesterday for a follow up to my weak legs issue. We had thought PMR flare...

I feel very lucky to be getting face to face appointments with my GP. Saw her ag...

Janet57

•2 years ago

13 Replies

Stopping Actemra/Tocilizumab

I’m currently self-injecting Tocilizumab once a week and taking 4mgm Prednisolone daily. My prescription runs out in October. No idea what happens then so...

I’m currently self-injecting Tocilizumab once a week and taking 4mgm Prednisolon...

Bachblues

•2 years ago

20 Replies

anyone tried or recommended to use Secukinumab(cosentyx) for GCA?

Prior to developing GCA, I had psoriasis(on scalp) controlled with topical steroid use. Once I began high steroid doses for GCA, the scalp psoriasis...

Prior to developing GCA, I had psoriasis(on scalp) controlled with topical stero...

Elephants2019

•2 years ago

8 Replies

knees stiffness

can anyone help or have experience. I am now on 2 mg. And my knee stiffness has come back. I’m both knees. I had long before pmr. Is this to be expected....

can anyone help or have experience. I am now on 2 mg. And my knee stiffness ha...

zoey12

•2 years ago

29 Replies

prednisone, methotrexate, forteo

I am 6 years into pmr. This is my third try on methotrexate. Gone from 18 mg to 15&1/2mg. In 4 months. Might be having trouble at 15& 1/2 time will tell. (That...

I am 6 years into pmr. This is my third try on methotrexate. Gone from 18 mg to ...

Linny3

•2 years ago

11 Replies

Hip Replacement with PMR and PAD at age 84

A month and a half ago I was in the hospital for four days. Less complicated cases were released the same day or the next. During the second day a nurse...

A month and a half ago I was in the hospital for four days. Less complicated ca...

pegpowell

•2 years ago

7 Replies

Wondering if I've actually got PMR

Hi everyone, this is a bit of a strange question but here we go. I'm now aged 59 and was diagnosed with PMR on Christmas day 2020 at my local A&E based on on...

Hi everyone, this is a bit of a strange question but here we go. I'm now aged 59...

Achyjoints

•2 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

Methotrexate and Anxiety

UTI ?

Thank you everyone

feeling hot and biting bugs

splitting tablets

Tapering steroids

working with PMR

What next - Hydrocortisone?

Aches and pains

GCA what to look out for

how long have you had this for?

This may seem like a daft question……

Hello to the friends that educated me about PMR.

Scaly red dots -anyone else?

New to PMR

Sulphites

Allergic response to Nitrofuantoin

Which Emollient

Adrenals

GCA, now PMR & Rheumatoid Arthritis as well

Hello

SULPHITES

Is this a flare?

Weak wobbly legs update number 2

Stopping Actemra/Tocilizumab

anyone tried or recommended to use Secukinumab(cosentyx) for GCA?

knees stiffness

prednisone, methotrexate, forteo

Hip Replacement with PMR and PAD at age 84

Wondering if I've actually got PMR

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

Methotrexate and Anxiety

﻿UTI ?

﻿Thank you everyone

﻿feeling hot and biting bugs

splitting tablets

Tapering steroids

﻿working with PMR

What next - Hydrocortisone?

﻿Aches and pains

﻿GCA what to look out for

﻿how long have you had this for?

This may seem like a daft question……

Hello to the friends that educated me about PMR.

Scaly red dots -anyone else?

New to PMR

Sulphites

Allergic response to Nitrofuantoin

Which Emollient

﻿Adrenals

GCA, now PMR & Rheumatoid Arthritis as well

Hello

SULPHITES

Is this a flare?

Weak wobbly legs update number 2

Stopping Actemra/Tocilizumab

anyone tried or recommended to use Secukinumab(cosentyx) for GCA?

knees stiffness

prednisone, methotrexate, forteo

Hip Replacement with PMR and PAD at age 84

﻿Wondering if I've actually got PMR

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

UTI ?

Thank you everyone

feeling hot and biting bugs

working with PMR

Aches and pains

GCA what to look out for

how long have you had this for?

Adrenals

Wondering if I've actually got PMR