Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for August 2022

Wasn't expecting that!

Being having a few shoulder niggles recently and more aches and pains than usual. Due for my monthly 3 review,so I rang on the off chance I could get an...

Being having a few shoulder niggles recently and more aches and pains than usu...

artisam

•2 years ago

6 Replies

This is a bit frightening!

My daughter-in-law has just been diagnosed with PMR,an odd coincidence for is both to have it.She is only 62 years old and Chinese American so there goes...

My daughter-in-law has just been diagnosed with PMR,an odd coincidence for is ...

Logic

•2 years ago

5 Replies

shringrix vaccine

my surgery has spoken to rheumatology regarding the smallpox vaccine. They said as I’m on less than 10mg I can have the live vaccine. Any thoughts?

my surgery has spoken to rheumatology regarding the smallpox vaccine. They said ...

Rosina1871

•2 years ago

37 Replies

Want to take advantage of all our features? Just log in!

PMR reducing question

have reduced from 20 to 14 every 5 days at 1 drop each 5 days. It’s never been this easy. Am beginning to feel tired- am I going too fast?

have reduced from 20 to 14 every 5 days at 1 drop each 5 days. It’s never been t...

Artwatercolour

•2 years ago

16 Replies

How pain free should I hope for?

Hi all - thanks so much for this forum. I'm after some advice please. I was diagnosed with PMR in September 2021 and have been on tapering steroids (starting...

Hi all - thanks so much for this forum. I'm after some advice please. I was di...

Hot_Water

•2 years ago

7 Replies

Fractured ribs

We had a nasty car accident last week ( elderly gentleman driving a large Dormobile from Europe had no idea of the rules of single- track- driving here in the...

We had a nasty car accident last week ( elderly gentleman driving a large Dormob...

Francesbarbara

•2 years ago

6 Replies

Low White Blood Cell Count. Could it be Prednisolone?

I was diagnosed with PMR eight months ago but have been doing well, with only one flair and am currently on eight mg of Prednisolone daily. I have other...

I was diagnosed with PMR eight months ago but have been doing well, with only ...

Rostom

•2 years ago

7 Replies

Swollen knees and legs

PMR I was diagnosed in early July and am on 25gms of Pred after starting on 30mg for a month. Has anyone experienced swollen knees and legs ? mine are very...

PMR I was diagnosed in early July and am on 25gms of Pred after starting on 30m...

PepJac

•2 years ago

5 Replies

duloxotine

i am taking 20 mg once a day about half an hour before bed as i have a disc bulged in my spine pressing on a nerve in my leg and so far with Gabapentin it...

i am taking 20 mg once a day about half an hour before bed as i have a disc bu...

nottowell

•2 years ago

3 Replies

Recent diagnosis of PMR

Other peoples reaction, physical / mental feeling when on steroid treatment ..

Other peoples reaction, physical / mental feeling when on steroid treatment .....

PMRRMP

•2 years ago

63 Replies

Day 2 of the swap to Hydrocortisone.

I have dropped 1mg of Pred on each day to 7mg, taking 30mgs of Hydrocortisone in divided doses. Is it too soon to be feeling the effect? I seem to have...

I have dropped 1mg of Pred on each day to 7mg, taking 30mgs of Hydrocortisone in...

IdasMum

•2 years ago

14 Replies

up, down, or stay on what level prednisolone

the consultant I saw last month said take 10mgs a day for the next month, then 5mg a day for following 8 weeks. I was doing ok and even socialised away and...

the consultant I saw last month said take 10mgs a day for the next month, then 5...

456again

•2 years ago

20 Replies

Vitamin B12 deficiency update

After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Intrinsic Factor ABS 2.30 - so I am to take CyanocoMinn 50mg - 2 each day for 8...

After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Int...

jules1955

•2 years ago

6 Replies

I cannot respond to others

Hoping I can post this..just to say.. thinking of you all. could this problem be because I am in Sweden now and not US

Hoping I can post this..just to say.. thinking of you all. could this problem be...

yogabonnie

•2 years ago

8 Replies

bladder control

Has anyone else experienced a loss of bladder control while on prednisone. I've had PMR for about 5 years and had worked my way down very slowly to 2mg when...

Has anyone else experienced a loss of bladder control while on prednisone. I've...

blueisgreen

•2 years ago

18 Replies

Struggling to reduce Pred from initial dose of 20mg

I was diagnosed with PMR on 26 May after two months of symptoms. Started on 15mg Pred but had to raise it to 20mg after 10 days to really sort the pain out....

I was diagnosed with PMR on 26 May after two months of symptoms. Started on 15mg...

Lyra42

•2 years ago

10 Replies

Latent arthritis or PMR

I have had PMR for five years, with classic shoulder and hip symptoms, initially and during flares. Never been able to get lower than 8.5mg Pred until this...

I have had PMR for five years, with classic shoulder and hip symptoms, initially...

dmart7

•2 years ago

11 Replies

pred dose and immunosuppression - teaching & covid

Can anyone advise the red dose at which the immune system is considered working? .I am down to 2.5mg pred daily. I've had 4 covid jabs. I've been...

Can anyone advise the red dose at which the immune system is considered workin...

Sanekate

•2 years ago

7 Replies

confusing picture after Covid

I had Covid (positive 8th July), seemed to do well after 2 weeks, but now very much struggling. I was busy, but had loads of sleep and slept well. I think it...

I had Covid (positive 8th July), seemed to do well after 2 weeks, but now very m...

Predderman2020

•2 years ago

2 Replies

pain in the neck.

I have managed to taper down to 3.5mgs and managing well ,however ,I have a sensation,I wouldn't really call it pain as in a full flare up,in the right side of...

I have managed to taper down to 3.5mgs and managing well ,however ,I have a sens...

Nursey30

•2 years ago

13 Replies

Much needed feedback

Hello dear PMR’rs... I have been having PMR like symptoms for four years now. I moved 5 years ago and needed a new doctor here in Utah ( if someone from Utah...

Hello dear PMR’rs... I have been having PMR like symptoms for four years now. ...

Alliswellforever

•2 years ago

23 Replies

Holiday in Italy!

We are back from a wonderful week in Ostuni. Lots of walking up and down as the city is basically lots of winding streets linked by steps! I did lots of doing...

We are back from a wonderful week in Ostuni. Lots of walking up and down as the...

Jigsawlass

•2 years ago

32 Replies

Other HealthUnlocked groups

Am I being a bit brain foggy thick today? Trying to find out if there are any groups for AF, CKD and AMD for my parents. Can't seem to find any way to...

Am I being a bit brain foggy thick today? Trying to find out if there are any g...

Nagswoman

•2 years ago

2 Replies

Rheumatology phone appt.

I have had pmr since Sept.2020. I know it's still with me,I recently tried to taper to 3.5 from 4 without success. I have been tapering using the slow...

I have had pmr since Sept.2020. I know it's still with me,I recently tried to...

Exhiker

•2 years ago

17 Replies

struggle to get from 8.5 to 8mg.

Just want to say a big thank you when i asked for advice as i was struggling to go from 8.5 to 8mg.Ive finally managed it after 12 weeks.now on week 2 of...

Just want to say a big thank you when i asked for advice as i was struggling to...

vangelis8

•2 years ago

26 Replies

I need to get OFF pred ASAP

doing me no faves. Last time I had pmr/cga no symptoms atall .this time lots and lots 😩 Now looking into Cushion Syndrome A rare one I know but seem...

doing me no faves. Last time I had pmr/cga no symptoms atall .this time lots...

Ronzy

•2 years ago

54 Replies

CRP and ESR blood tests

I am having blood tests for CRP and ESR and forgot to ask the doctor whether I should stop taking the steroids the day before. I am currently on 6 mgs and it's...

I am having blood tests for CRP and ESR and forgot to ask the doctor whether I s...

sail26

•2 years ago

7 Replies

Reddened Skin and prednisolone

In my personal experience, the recent hot weather may have been instrumental in bringing about a couple of redenned areas in an area where perspiration cannot...

In my personal experience, the recent hot weather may have been instrumental in...

Nominem

•2 years ago

8 Replies

BACK AGAIN

Hi everyone I am back again!!! Which in itself signifys that the PAIN is back coupled with facet joint problems in the lumber region ugh I broke my femur...

Hi everyone I am back again!!! Which in itself signifys that the PAIN is back c...

IRISH1916

•2 years ago

1 Reply

Adrenals?

So I'm almost at the end of my taper down to 4½mg of pred and have been feeling increasingly more fatigued since the beginning of the year when I was on 6mg....

So I'm almost at the end of my taper down to 4½mg of pred and have been feeling...

Kendrew

•2 years ago

63 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

Wasn't expecting that!

This is a bit frightening!

shringrix vaccine

PMR reducing question

How pain free should I hope for?

Fractured ribs

Low White Blood Cell Count. Could it be Prednisolone?

Swollen knees and legs

duloxotine

Recent diagnosis of PMR

Day 2 of the swap to Hydrocortisone.

up, down, or stay on what level prednisolone

Vitamin B12 deficiency update

I cannot respond to others

bladder control

Struggling to reduce Pred from initial dose of 20mg

Latent arthritis or PMR

pred dose and immunosuppression - teaching & covid

confusing picture after Covid

pain in the neck.

Much needed feedback

Holiday in Italy!

Other HealthUnlocked groups

Rheumatology phone appt.

struggle to get from 8.5 to 8mg.

I need to get OFF pred ASAP

CRP and ESR blood tests

Reddened Skin and prednisolone

BACK AGAIN

Adrenals?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

﻿Wasn't expecting that!

﻿This is a bit frightening!

shringrix vaccine

PMR reducing question

How pain free should I hope for?

Fractured ribs

﻿Low White Blood Cell Count. Could it be Prednisolone?

Swollen knees and legs

﻿duloxotine

Recent diagnosis of PMR

Day 2 of the swap to Hydrocortisone.

up, down, or stay on what level prednisolone

Vitamin B12 deficiency update

I cannot respond to others

bladder control

Struggling to reduce Pred from initial dose of 20mg

Latent arthritis or PMR

﻿pred dose and immunosuppression - teaching & covid

confusing picture after Covid

pain in the neck.

Much needed feedback

Holiday in Italy!

﻿Other HealthUnlocked groups

﻿Rheumatology phone appt.

﻿struggle to get from 8.5 to 8mg.

I need to get OFF pred ASAP

CRP and ESR blood tests

Reddened Skin and prednisolone

BACK AGAIN

﻿Adrenals?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Wasn't expecting that!

This is a bit frightening!

Low White Blood Cell Count. Could it be Prednisolone?

duloxotine

pred dose and immunosuppression - teaching & covid

Other HealthUnlocked groups

Rheumatology phone appt.

struggle to get from 8.5 to 8mg.

Adrenals?