Sick of this: hi all I am down to 1mg from 1... - PMRGCAuk

PMRGCAuk

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Sick of this

Logic profile image
3 Replies

hi all

I am down to 1mg from 15 in October after a second got round with PMR. Having a terrible time so

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Logic profile image
Logic
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3 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

If you’ve reduced to zero in 11 months no wonder you feel rubbish - I know you had PMR previously - in fact I doubt it ever went away…

This time around can you recall the lowest dose you felt okay? If so I would suggest you need to go back to that -get things back under control, and then reduce more slowly.

Guessing your doctor has given you the taper regime -well sorry, but it’s not working so a rethink required.

Whether you are feeling rubbish is due to your PMR or your adrenals not working, or more likely a combination of both is really immaterial -you need to get it sorted -please speak to your doctor asap.

PMRpro profile image
PMRproAmbassador

Not surprised you feel rubbish having gone from 15mg in October to 1mg now. Pred cures nothing, it is a management strategy that you will need as long as the underlying autoimmune disorder is active. And it isn't very often you need that little after less than a year - half of people need more than 18 months to get to 5mg and very few are off pred in a year.

LemonZest11 profile image
LemonZest11

Hi Logic, please listen to DorsetLady and PMRpro, they actually know. My blood pressure is always high at the docs but normal to low at home. Buy yourself a blood pressure machine, relatively inexpensive and a great investment, and test your BP at home.

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