I was doing well on 6mg Pred. On June 3 I went for a cardiac perfusion stress test with the resting perfusion test to be completed on June 4. On the morning of June 4 I was unable to function, was weak,dizzy, nauseated, and unable to walk more than about 10 steps. I managed to complete the test the following Tuesday. The good news is that my heart is functioning normally. The bad news is that I am still struggling and moved up to 7mg for 5 days and am now back at 6mg and doing somewhat better. The Rheumy said to stay at 6mg at least a couple of months, even though my inflammation markers were down,before trying to taper again.
Sorry that I haven’t posted or replied to anyone’s posts as I have been feeling too unwell until now.
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TINYdes
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As the cardiac tests showed normal functioning, I would be wondering about my adrenal function. Has this been suggested to you? Your symptoms do sound like adrenal insufficiency and there was a positive response to more cortisol via Prednisalone . Although the test is normally done when you get under 5 mgs of Pred it might be worth asking about the Synacthen Test that measures the ability of our own adrenals to produce the cortisol that has been hitherto produced by the Pred.
Did it occur to no-one that the extra physical stress at that dose of pred would test your adrenal function - which was then found to be wanting? At 6mg pred dose it is unlikely that your adrenal function is up and running - and I doubt a synacthen test would show anything other.Was that a stress test on an ergometer/bike/treadmill? Patients with physical limitations, as with PMR, should be offered the chemical version of the test where they use drugs.
It was on a treadmill. Thank you for getting back to me. I still feel under the weather today. I feel like I am back to square one. And to make matters worse the C-pap I was using was recalled due to a degrading of the internal sound barrier filter. It can cause some other health issues.
I'm not surprised - I couldn't even dream of a physical stress test and the first one I had done I had to stop so soon there was no question about the next one.
That is good to hear. My Rheumy said that I should put off getting the jab at this time as I am very sensitive to almost every drug including the seasonal flu shot that put me in hospital. He said be extra vigilant and always wear a mask etc. I tend to agree with him at this time. My husband and grown children have all had both shots. I really don’t go to stores or such as don’t like crowds.
I keep myself busy with my garden and hobbies. Can’t really do much more then 15 minutes at a time before I have to rest.
So good to have you and others to talk to that really understand what I am going through.
Best of health to all of us!!
Did the jab put you back at all?
Sorry to hear that you are under stress at this time. Anything that you want to talk about??
I emphasize. With my heart condition and spine problem, I can only get things done for 15 minutes and then need to rest. All this is new to me, and I need to learn to adjust.
I don't think I could say it put me back - and the hope it will serve some protection outweighs all that anyway. Just a husband with chronic health issues - not alone in that
Sorry to hear about all your problems as well. I only hope that we are able to get better. If not to our old selfs at least to a point that we can function in a somewhat normal kind of life.
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It's been a while!
Flare or hiccup or stress?
Feeling breathless
Following on from synacthen test.....
Taper 0.5 mg by alternating dose
