Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2020

No to Prednisolone

Does anybody manage Polymyligia wIth out taking steroids I do not think steroids agree with me but my doctor is insisting I take them .I am on 15mg and still...

Does anybody manage Polymyligia wIth out taking steroids I do not think steroids...

Fitch1

•4 years ago

64 Replies

Long Term PMR

I have also had it since March 2000, so not quite 21 years, but close. My Rheumatologist also says I am one of the unlucky ones. Now on 5mg Prednisolone with...

I have also had it since March 2000, so not quite 21 years, but close. My Rheum...

Dcctrains

•4 years ago

1 Reply

DOMS / PMR

I’m struggling with pains again at the moment. I’m not sure if I am at the start of another flare. I’ve been ok since my recent taper from 8mg down to 7.5mg...

I’m struggling with pains again at the moment. I’m not sure if I am at the start...

Leepeelee

•4 years ago

2 Replies

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I’m sort of back ....have missed you.

It has been a wild ride not feeling that great and planning a move from Maine to Indiana with the hopes of seeing my grandchildren in Canada for a...

It has been a wild ride not feeling that great and planning a move from Maine to...

Grammy80

•4 years ago

14 Replies

Did Pred takers come under shielding list?

I found it difficult to follow (ie keep up with and understand) the various rules and guidelines back in March. Pre dx and hubby and I just stayed home apart...

I found it difficult to follow (ie keep up with and understand) the various rule...

DogAgilityObsessed

•4 years ago

15 Replies

Long term polymyalgia rheumatica

I was diagnosed with PMR almost 21 years ago. My doctor says I am one of the unlucky ones. Several friends got it after me but are now better. Has anyone...

I was diagnosed with PMR almost 21 years ago. My doctor says I am one of the un...

Tilly21

•4 years ago

51 Replies

Letter from Rhuemie

I ave received a letter from the Rhuemie am going to add a paragraph if I can. I was angry when the Rh used my landline as I am hard of hearing. My husband...

I ave received a letter from the Rhuemie am going to add a paragraph if I can. ...

Suffererc

•4 years ago

19 Replies

Shaky and wobbly! Hands trembly. Quick question. Has anyone else had this after increasing Pred dose to manage flair?

When I was first diagnosed with PMR and first started Pred 19 months ago at 15mg I was just fine and felt really good. I then tapered way too fast because of...

When I was first diagnosed with PMR and first started Pred 19 months ago at 15mg...

Loyd

•4 years ago

37 Replies

Consultation upset

So I have just had telephone consultation with my Rheumy. I am upset. 2 years on steroids, I should apparently be off them by now, all the steroids aren’t good...

So I have just had telephone consultation with my Rheumy. I am upset. 2 years on...

Alazarin

•4 years ago

28 Replies

PMR - Pred doses and best timings

As someone recently diagnosed with PMR (although I'm still not full convinced it has been completely confirmed) I am struggling with my day to day differences...

As someone recently diagnosed with PMR (although I'm still not full convinced it...

BrianL7C

•4 years ago

18 Replies

Donations from USA/Canada/Australia etc

We get quite a few queries about how international forum members can make donations to the charity. Firstly, thank you to all of you who donate or join the...

We get quite a few queries about how international forum members can make donati...

Fran_Benson

Partner•4 years ago

3 Replies

tiredness in polymyalgia

I am entering remission with my first bout of polymyalgia but the loss of appetite and tiredness is still very very prevalent, how long does it take to go...

I am entering remission with my first bout of polymyalgia but the loss of appeti...

RRRivers

•4 years ago

2 Replies

Breaking the Taper Rules

I have been diagnosed with PMR since April by my GP by telephone and have since been up and down a bit with the odd issue going back to the previous dosage for...

I have been diagnosed with PMR since April by my GP by telephone and have since ...

Gunflash

•4 years ago

8 Replies

Has anyone solved the 1 mg Prednisalone shortage? ( Gastric Resistant)

I understand that the shortage has been caused by a change of hands in the supply line. The pharmacy attached to my GP surgery has supplied extra 5 mgs, tabs,...

I understand that the shortage has been caused by a change of hands in the suppl...

SheffieldJane

•4 years ago

32 Replies

CPR 30

My doctor was concerned about elevated CPR, wanted to know what my pred dose was. Suggested I go to 2 from 1 mg. Agreed that osteoarthritis can cause...

My doctor was concerned about elevated CPR, wanted to know what my pred dose was...

HeronNS

•4 years ago

42 Replies

advice please!

I have a TAB booked for this Friday. Hospital says I must have a Covid test 72 hours prior (so tomorrow). Bookings clerk says testing team have been notified...

I have a TAB booked for this Friday. Hospital says I must have a Covid test 72 h...

SomersetWife

•4 years ago

21 Replies

Reducing prendisalone

I had reduced my intake down to 1mg by the start of Covid 19.I was worried about continuing to take it for fear of what it does to your immune system.I spoke...

I had reduced my intake down to 1mg by the start of Covid 19.I was worried about...

Boaty_bill

•4 years ago

20 Replies

Update on T 11 fracture

Hello. I just wanted to update everyone as you were so kind several months ago when l was misdiagnosed with a thoracic fracture. A subsequent cat scan 6...

Hello. I just wanted to update everyone as you were so kind several months ago w...

Anniegal

•4 years ago

1 Reply

PMR and learning about it!

Hello. I have just joined after reading the excellent book by Kate Gilbert about PMR and GCA. After several months of assuming I had aches, pains and stiffness...

Hello. I have just joined after reading the excellent book by Kate Gilbert about...

Queenie1901

•4 years ago

19 Replies

Reminder about no politics please

Dear forum members, just a gentle reminder to you not to stray into political debate. It's fine to flag up emerging rules and science that impacts those with...

Dear forum members, just a gentle reminder to you not to stray into political de...

Fran_Benson

Partner•4 years ago

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Prednisone side effect?

Was on prednisone for a week for an inflammation in left side of my head. Am now off it. But I observed my temple area on my right has swollen up after chewing...

Was on prednisone for a week for an inflammation in left side of my head. Am now...

Orchid987

•4 years ago

5 Replies

it takes 12 month

i offten read on the forum, that once off pred it takes 12 month to get back to normal what does this mean please

i offten read on the forum, that once off pred it takes 12 month to get back to ...

pollyg263

•4 years ago

4 Replies

Alternative to Prednisolone

PMR 3rd day Prednisolone hair began falling out. Now stopped. Am considering naturopathy. Has anyone had any success with this or anything else?

PMR 3rd day Prednisolone hair began falling out. Now stopped. Am considering ...

19741977

•4 years ago

4 Replies

My teenage helper.💥

63rd wedding anniversary and woke up with this in the local paper.😂😂

Constance13

•4 years ago

12 Replies

Conflicting ESR and CRP results, GCA

Have had GCA for 9 years. 4 relapses, first at 1mg Pred, others between 7-10, although I believe one or all of them, may have been false ESR/CRP results due...

Have had GCA for 9 years. 4 relapses, first at 1mg Pred, others between 7-10, al...

tomh

•4 years ago

5 Replies

does it afect ears.

just wondering if stertiods afect the ears,like making noiseslike sounds likes rees buzzing etc.i am on 10mg.

just wondering if stertiods afect the ears,like making noiseslike sounds likes r...

Flosy

•4 years ago

13 Replies

2mg Pred a disaster :(

Hello all :) looking for advice yet again. I wrote a post about a month ago as I was having problems with 2mg Pred well things got pretty rough, gca and pmr...

Hello all :) looking for advice yet again. I wrote a post about a month ago as I...

suszannah

•4 years ago

31 Replies

Groin pain

l have had GCA for a year and a half now and started having PMR pains a while ago. Just recently l have been having groin pains as well as hip and buttock...

l have had GCA for a year and a half now and started having PMR pains a while ag...

Ryliefew123dogcat

•4 years ago

18 Replies

Everyone should see this

This closed Government consultation proposes that, after EU regulations no longer apply to UK laws on vaccines (after Dec 31st), that unlicensed vaccines for...

This closed Government consultation proposes that, after EU regulations no longe...

maria40

•4 years ago

19 Replies

Reducing on a very low dose

When reducing your Prednisolone at low dosage, say 4mg daily, I have found it useful to think of the dosage for a week, i.e. 28mg and reduce by say 5% to...

When reducing your Prednisolone at low dosage, say 4mg daily, I have found it us...

HamishPMR

•4 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

No to Prednisolone

Long Term PMR

DOMS / PMR

I’m sort of back ....have missed you.

Did Pred takers come under shielding list?

Long term polymyalgia rheumatica

Letter from Rhuemie

Shaky and wobbly! Hands trembly. Quick question. Has anyone else had this after increasing Pred dose to manage flair?

Consultation upset

PMR - Pred doses and best timings

Donations from USA/Canada/Australia etc

tiredness in polymyalgia

Breaking the Taper Rules

Has anyone solved the 1 mg Prednisalone shortage? ( Gastric Resistant)

CPR 30

advice please!

Reducing prendisalone

Update on T 11 fracture

PMR and learning about it!

Reminder about no politics please

Prednisone side effect?

it takes 12 month

Alternative to Prednisolone

My teenage helper.💥

Conflicting ESR and CRP results, GCA

does it afect ears.

2mg Pred a disaster :(

Groin pain

Everyone should see this

Reducing on a very low dose

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