Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,298 members • 38,024 posts

All posts for September 2020

Advice re letter from consultant

Could someone explain this to me please . Previously investigated for autoimmune disease. RF was negative, ANA negative but inflammatory markets up. Seeing...

Could someone explain this to me please . Previously investigated for autoimmun...

Suffererc

•4 years ago

8 Replies

Coming off Pred for an operation

In three weeks time I’m having a knee replacement and need to be off steroids as I have many other autoimmune illnesses, heart problems etc. I’m finding...

In three weeks time I’m having a knee replacement and need to be off steroids as...

Kalacik

•4 years ago

46 Replies

When tapering at low doses how long to go back up/stay up if necessary

I am at 4.5 mgm prednisone . Diagnoses in 2015. While tapering to 4.25 felt I had not enough energy to do normal things. Decided I need to up it a little but...

I am at 4.5 mgm prednisone . Diagnoses in 2015. While tapering to 4.25 felt I h...

Karenjaninaz

•4 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Pain in shoulders blades and trapezius area , I was doing ok until the begging of the week thus started. Has anyone had this problem?

another problem which has increased is frequent washroom visits . My blood work does not show sugar spike regardless I do still have very frequent washroom...

another problem which has increased is frequent washroom visits . My blood work ...

Athena2020

•4 years ago

18 Replies

Finger Cramps

On 22.5mg predict for several weeks now. Three or four days ago fingers on both hands started cramping up regularly. Not really painful but just annoying...

On 22.5mg predict for several weeks now. Three or four days ago fingers on both ...

OldGolfer

•4 years ago

10 Replies

Advice please (again)

Sorry to be a pain and I have already posted this week about fatigue, I could do with some advice though please as I am feeling at a complete loss. I have had...

Sorry to be a pain and I have already posted this week about fatigue, I could do...

Hidden

•4 years ago

35 Replies

Vaccines for the immune compromised

Found this article about Shingrix. It is from 2018, however the CDC statement on Shingrix is still making the statement about not knowing enough about this...

Found this article about Shingrix. It is from 2018, however the CDC statement o...

HeronNS

•4 years ago

13 Replies

Hyperparathyroidism

For many years I have had a slight raise in calcium level in bloods. No treatment necessary as long as I don't get a 'spike' Now have steroid and Methotrexate...

For many years I have had a slight raise in calcium level in bloods. No treatmen...

Francesbarbara

•4 years ago

9 Replies

5 days on 5 week taper, first time

Thank you Dorset lady for giving the taper to us.

weatherman69

•4 years ago

Be the first to reply

Flu shot

I was advised by my rheumatologist to get the regular dose not the senior dose even though I am 75 yrs old. Just thought I'd share this.

I was advised by my rheumatologist to get the regular dose not the senior dose e...

Luciejc

•4 years ago

46 Replies

Confused and lost

To say I am confused and just don't understand what is happening let alone what to do for the best now is an understatement. Looking back It started a year and...

To say I am confused and just don't understand what is happening let alone what ...

1Unknown12

•4 years ago

20 Replies

Help with decision making on use of Prednisone for severe lower back pain

Found all of you last night during my middle of the night forays into google searching for answers. I am a 65 year old male suffering from MRI diagnosed severe...

Found all of you last night during my middle of the night forays into google sea...

justpassinthru

•4 years ago

7 Replies

Hi I cannot believe my

Hi my pmr has come back I can't believe it, but it doesn't seem as severe as last time.,has this happened to anyone else 😕☹️

Hi my pmr has come back I can't believe it, but it doesn't seem as severe as las...

Lori23

•4 years ago

19 Replies

Night Sweats

Hello Has anyone experienced increased night sweats on prednisone. Any information would be greatly appreciated. Thank you

Hello Has anyone experienced increased night sweats on prednisone. Any informa...

Athena2020

•4 years ago

32 Replies

Starting actemra this month

Good morning. I have been approved for actemra starting this month. I have had GCA since October 2018. Started at 60prednisone. Reduced to 9 by July 5 2020....

Good morning. I have been approved for actemra starting this month. I have had...

alvertta

•4 years ago

24 Replies

Dead slow, nearly stop taper

I'm following this super slow tapering, but have a (probably stupid) question. When you leave 6 days, then 5, then 4 etc between new dosage, do you include the...

I'm following this super slow tapering, but have a (probably stupid) question. W...

HelenDaisy

•4 years ago

11 Replies

Leflunomide?

I am just back from seeing my rheumy. Interestingly, previously I have seen him as a private patient at his rooms but now we have retired and living on a...

I am just back from seeing my rheumy. Interestingly, previously I have seen him...

Louisa1840

•4 years ago

39 Replies

Jaw pain

Ever since being diagnosed with PMR more than a year ago, I've been scared of getting GCA. After 16 months on prednisone, I have finally managed to get down...

Ever since being diagnosed with PMR more than a year ago, I've been scared of ge...

Navion

•4 years ago

24 Replies

I am still here my friends x

I have really struggled this last few months, got down to 4mg then yes mighty flare up of PMR ! Was very depressed because of it, so I upped to 7mg, fantastic...

I have really struggled this last few months, got down to 4mg then yes mighty fl...

Margaret1951

•4 years ago

28 Replies

are these pains with steroids

hi,just a question feeling sick,pains in stomach feeling bloated,do ankles swell up.job to sleep at nite.pains in arms and shoulders. iam on 10mg. due to go...

hi,just a question feeling sick,pains in stomach feeling bloated,do ankles swel...

Flosy

•4 years ago

3 Replies

Wasp sting and Anaphylaxis /PMR

A couple of month ago I got stung and had a bad reaction to a wasp sting ended up in hospital was give two very large does of steroids 100mg each plus...

A couple of month ago I got stung and had a bad reaction to a wasp sting ended u...

Flrchrs

•4 years ago

2 Replies

Sensitive Teeth

My teeth have become very sensitive lately. Have always had “perfect” teeth according to my dentist. I did read one study that linked prednisone use with teeth...

My teeth have become very sensitive lately. Have always had “perfect” teeth acco...

kimsaunsc

•4 years ago

71 Replies

GCA and Ears

Hi Has anyone with GCA experienced balance problems and pressure in ears? When getting up off sofa I invariably get pressure in my ears (like they are blocked)...

Hi Has anyone with GCA experienced balance problems and pressure in ears? When g...

fairy100

•4 years ago

8 Replies

Reducing prednisolone slowly.....advice about withdrawal pains versus flare needed.

Good morning all . I was diagnosed with PMR in June this year and after initially responding well to 15mgs had to increase to 20mgs for 2 weeks before starting...

Good morning all . I was diagnosed with PMR in June this year and after initiall...

larkthebark

•4 years ago

20 Replies

New diagnosis PMR

Please, is there a post somewhere that contains an idiots guide to the terminology, and best practice. I am new to this condition and am currently a little...

Please, is there a post somewhere that contains an idiots guide to the terminolo...

Ann1A

•4 years ago

4 Replies

Annual Flu Jab/Shot

Today, I received my 2020annual influenza immunization. I was diagnosed with PMR in Sept. 2013. Currently I use 7 mg. Prednisone. I have had an annual flu...

Today, I received my 2020annual influenza immunization. I was diagnosed with PMR...

Purplecrow

•4 years ago

8 Replies

Flu jab and tapering

Recently diagnosed and now slowly tapering from 35mgs, about to start 30mg after being on 35 for two weeks. Not much help at all from G.P., taking...

Recently diagnosed and now slowly tapering from 35mgs, about to start 30mg...

Crossstitchfanatic

•4 years ago

5 Replies

Are my symptoms simply par for the course?

Hello, I’m almost two weeks into 15mg pred, and I have significant improvements across my symptoms per se. Residual symptoms are ongoing but I don’t expect...

Hello, I’m almost two weeks into 15mg pred, and I have significant improvements ...

Hidden

•4 years ago

10 Replies

GCA diagnosis, but no high dose steroids.

I have a wonderful, caring rheumy. She sends me for every test. She calls me at home regularly . She told me she wants to give me the best care possible. I...

I have a wonderful, caring rheumy. She sends me for every test. She calls me at ...

Chopin002

•4 years ago

6 Replies

Steroid induced Diabetes and Flare

Yesterday was told I have developed Steroid induced Diabetes based on a Hbg a1c1 results. Prescribed Metformin..was pretty upset yesterday. Have been...

Yesterday was told I have developed Steroid induced Diabetes based on a Hbg a1c1...

Knitwit2020

•4 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

Advice re letter from consultant

Coming off Pred for an operation

When tapering at low doses how long to go back up/stay up if necessary

Pain in shoulders blades and trapezius area , I was doing ok until the begging of the week thus started. Has anyone had this problem?

Finger Cramps

Advice please (again)

Vaccines for the immune compromised

Hyperparathyroidism

5 days on 5 week taper, first time

Flu shot

Confused and lost

Help with decision making on use of Prednisone for severe lower back pain

Hi I cannot believe my

Night Sweats

Starting actemra this month

Dead slow, nearly stop taper

Leflunomide?

Jaw pain

I am still here my friends x

are these pains with steroids

Wasp sting and Anaphylaxis /PMR

Sensitive Teeth

GCA and Ears

Reducing prednisolone slowly.....advice about withdrawal pains versus flare needed.

New diagnosis PMR

Annual Flu Jab/Shot

Flu jab and tapering

Are my symptoms simply par for the course?

GCA diagnosis, but no high dose steroids.

Steroid induced Diabetes and Flare

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive