Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for September 2020

Afraid of Fosamax?

Greetings to all of you wise PMRGC members. Thank you for your responses to my other posts. At 65, I was diagnosed with PMR a month and a half ago and was on...

Greetings to all of you wise PMRGC members. Thank you for your responses to my ...

SandyBoots

•4 years ago

19 Replies

Is this Temporal Arteritis? 33yr

Hello Everyone, I have been having some kind of inflammation going on on my left side of my head for past 3months. Yesterday, I was chewing on some hard food...

Hello Everyone, I have been having some kind of inflammation going on on my left...

Orchid987

•4 years ago

16 Replies

Tapering off update (10 days on prednisone)

Hello Bcol and all my new friends in this group. 💕 (For some reason I cannot respond to Bcol messages on the thread. It fails to send every time...) Thank...

Hello Bcol and all my new friends in this group. 💕 (For some reason I cannot re...

Cpires2323

•4 years ago

9 Replies

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GCA - Hit my first problem after reducing from 30mg to 25mg prednisolone. Advice please. Thank you

I have GCA diagnosed in May this year when I started on 60mg prednisolone. At first I was told to reduce by 10mg every 2weeks until I get down to 20mg and then...

I have GCA diagnosed in May this year when I started on 60mg prednisolone. At fi...

HappyDiamonds

•4 years ago

12 Replies

Cumulative dose of Prednisolone

Are there figures available for the maximum cumulative dose of Prednisolone?

HamishPMR

•4 years ago

16 Replies

ESR and CRP normal - is damage still being done to my blood vessels?

Hi Gang! I'm still waiting for a diagnosis so am not on any medication as yet but seem to be improving VERY slowly and really don't know what to make of it....

Hi Gang! I'm still waiting for a diagnosis so am not on any medication as yet bu...

PurpleNDH

•4 years ago

9 Replies

The last hurdle is higher than it looks

Successfully and steadily came down to 2mg of prednisolone in February this year. Decided, based on what seems to be the current wisdom, to sit on 2mg for 6...

Successfully and steadily came down to 2mg of prednisolone in February this year...

squashie

•4 years ago

27 Replies

GCA patient, with tapering issues after 4 years

Hi, my name is Mac, I have GCA since diagnosis June 2016. I am currently trying to taper down , but just had a flareup! I was at 10mg am/8mgpm predisone daily,...

Hi, my name is Mac, I have GCA since diagnosis June 2016. I am currently trying ...

weatherman69

•4 years ago

20 Replies

Borage Oil and PMR

So we were just watching a documentary in the US that originated in the UK about alcohol and new drinking guidelines in the UK. A hangover remedy that had some...

So we were just watching a documentary in the US that originated in the UK about...

Whitner

•4 years ago

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Great News - My Rheumy Agrees With You!

I’ve seen her twice now and the second time my wife went with me. It always helps when I have her confirm I heard what I thought I heard. I had gone from 15 to...

I’ve seen her twice now and the second time my wife went with me. It always help...

OldGolfer

•4 years ago

18 Replies

Just want to know as time goes on

Hi,just want to know as time goes on,does the sweating and out off breath does it go.i am on 10mg.until the 1st Oct,then back down til 9mg.i get so annoyed...

Hi,just want to know as time goes on,does the sweating and out off breath does ...

Flosy

•4 years ago

6 Replies

Reducing steroids

Hi SheenieJoan . I have been on steroids for two and half years. 10 weeks ago I was down to 4mg and then I started to have problems when I tried to go down to...

Hi SheenieJoan . I have been on steroids for two and half years. 10 weeks ago I ...

Sheenjoanie

•4 years ago

6 Replies

How much to increase Pred.

I saw my rheumatologist back in June and have been tapering very slowly from 15 down to 12.5 Prednisolone (for PMR) . In all honesty never totally pain free...

I saw my rheumatologist back in June and have been tapering very slowly from 15 ...

SurreyFlower

•4 years ago

11 Replies

Hi does anyone take amitriptyline at night?

My rheumatologist has put me on 10mg a night to help reduce my prednisolone. I took my first dose last night but feeling a bit odd this morning. I wonder if I...

My rheumatologist has put me on 10mg a night to help reduce my prednisolone. I t...

cisy

•4 years ago

34 Replies

First Rheumy appointment (since PMR diagnosis by GP) totally disappointing! Sorry no question just bringing myself back to reality!

Sooooo.... Long story short after a telehealth visit- according to the rheumatologist I was too young in March 2020 to be diagnosed at 51 years old with PMR....

Sooooo.... Long story short after a telehealth visit- according to the rheumatol...

Surami2020

•4 years ago

25 Replies

Reasons to be cheerful

For those of us who can remember the heady days of the 1970’s and the wonderful Ian Dury and the Blockheads. I felt this weeks optimistic post should be based...

For those of us who can remember the heady days of the 1970’s and the wonderful ...

Hidden

•4 years ago

7 Replies

A good diet

Can anyone advise on the best diet, I’m getting rather round and having also given up smoking this is making me eat like a horse! I am on 12 mg of press per...

Can anyone advise on the best diet, I’m getting rather round and having also giv...

_multistrada

•4 years ago

15 Replies

Flucloxacillin & Kidneys

Is flucloxacillin safe to take with polycystic kidney disease?

Osage

•4 years ago

1 Reply

Update after getting to see rheumy

A brief summary: age 64, living in U.S., typical PMR symptoms came on suddenly 2 1/2 months ago; pcp ran blood tests with ESR 25, everything else normal;...

A brief summary: age 64, living in U.S., typical PMR symptoms came on suddenly 2...

SallyLeon

•4 years ago

18 Replies

Day 11 and counting

Day 11 I am back working from home, have loads of energy and focus and no pain. GP has me on 15mg for another week and then tapering to 12.5mg if everything...

Day 11 I am back working from home, have loads of energy and focus and no pain. ...

Ainenicaodha

•4 years ago

6 Replies

Hypothyroid or PMR

Hi, I was diagnosed with PMR via a phone call with dr. Have also been told I’m hypothyroid by a hormone specialist dr. and have started Levothyroxine, she...

Hi, I was diagnosed with PMR via a phone call with dr. Have also been told I’m h...

S-lly

•4 years ago

30 Replies

PMR or rotator cuff damage?

Diagnosed August 2019 with PMR. Starting dose 15 mg. pred then tapered to 8 mg By April 2020 but had severe pain in right shoulder and bicep. Upped pred by...

Diagnosed August 2019 with PMR. Starting dose 15 mg. pred then tapered to 8 mg ...

Bonbows

•4 years ago

24 Replies

Thank You

Thank you Words that we probably do not use enough. I come from a family where medical matters have often been to the fore, my Mother was a nurse/staff...

Thank you Words that we probably do not use enough. I come from a family where m...

Bcol

•4 years ago

2 Replies

Azathioprine - anyone had experience of this?

I’ve tried three times to reduce Pred dose ( for GCA) and seem to falter at 12.5mg. Consultant has suggested azathioprine as a steroid sparer but I’m wondering...

I’ve tried three times to reduce Pred dose ( for GCA) and seem to falter at 12.5...

Phoenix51

•4 years ago

11 Replies

How does GCA jaw pain feel?

Hi all - I am going down in prednisolon to get more symptoms, so that the doctors can find the correct diagnosis. Looong story. I now have jaw pains - quite...

Hi all - I am going down in prednisolon to get more symptoms, so that the doctor...

krillemy

•4 years ago

15 Replies

Quick introduction open to any questions . Never had need to join any forum and not sure how it works.

I was diagnosed with PMR on 1st May 2020. Due to have appointment with rheumatologist, following findings of last blood test, showing high emzine count. Still...

I was diagnosed with PMR on 1st May 2020. Due to have appointment with rheumatol...

GaryFowler231156

•4 years ago

8 Replies

PMR without Prednisolone

Hi I have been diagnosed with PMR for 4 weeks now but am looking at ways of curing this naturally. Ibuprofen just works but still takes me to midday...

Hi I have been diagnosed with PMR for 4 weeks now but am looking at ways of cur...

mtb210

•4 years ago

64 Replies

General thought

Hi all, nothing to do with what we normally post about and if admins remove it, then totally understand. Since posting on the forum I have been getting...

Hi all, nothing to do with what we normally post about and if admins remove it, ...

Bcol

•4 years ago

32 Replies

Can polymyalgia affect your glands ?

Hi I’m new to your forum and have been having a read through but haven’t found too much related to my question . I’m having a flare up at the min and I know I...

Hi I’m new to your forum and have been having a read through but haven’t found ...

Dawny1970

•4 years ago

9 Replies

New Blood test

I've been on pred now for 4 weeks on 15mg and my 1st blood test was the ESR 26 and CRP 35 now 4 weeks later my new Bloods are ESR 5 and CRP 1.even thou I don't...

I've been on pred now for 4 weeks on 15mg and my 1st blood test was the ESR 26 a...

rustyrussell

•4 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

Afraid of Fosamax?

Is this Temporal Arteritis? 33yr

Tapering off update (10 days on prednisone)

GCA - Hit my first problem after reducing from 30mg to 25mg prednisolone. Advice please. Thank you

Cumulative dose of Prednisolone

ESR and CRP normal - is damage still being done to my blood vessels?

The last hurdle is higher than it looks

GCA patient, with tapering issues after 4 years

Borage Oil and PMR

Great News - My Rheumy Agrees With You!

Just want to know as time goes on

Reducing steroids

How much to increase Pred.

Hi does anyone take amitriptyline at night?

First Rheumy appointment (since PMR diagnosis by GP) totally disappointing! Sorry no question just bringing myself back to reality!

Reasons to be cheerful

A good diet

Flucloxacillin & Kidneys

Update after getting to see rheumy

Day 11 and counting

Hypothyroid or PMR

PMR or rotator cuff damage?

Thank You

Azathioprine - anyone had experience of this?

How does GCA jaw pain feel?

Quick introduction open to any questions . Never had need to join any forum and not sure how it works.

PMR without Prednisolone

General thought

Can polymyalgia affect your glands ?

New Blood test

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