So… yesterday was “D Day.” My long awaited appointment with the “Big Dawg,” the Consultant Neurologist!!
I had seen the neurology registrar, back on August 22, and she had ordered a battery of tests. Yesterday’s appointment was the follow-up, to go over the test results, that had hopefully determined what’s causing my neuropathy.
He was warm, welcoming and very thorough. He asked many of the same questions the registrar had asked, back in August, and performed many of the same tests; the old pinprick in the feet and legs, the tuning fork exam, the “hit you with a hammer” reflex test, “touch my finger touch your nose,” etc, etc, etc.
He had a strong constitution, I’ll give him that! He didn’t even flinch when I rolled up my jeans to reveal my bloody, bruised legs; although I may have seen him gag ever so slightly, but I can’t be 100% sure, because the cataracts prevent me from seeing anything clearly!!!!!
Unfortunately (or fortunately, depending on how you look at it) the test results were, in the Consultants’ words, “unremarkable.” (Hmmm? I’ve been called a LOT of things in my life, but unremarkable was never one them!) There was nothing out of the ordinary, although the genetic test results were still not back, so the jury's still out on whether my parents are to blame or not!
Bottom line… he has no idea what’s causing my neuropathy, but he is not rolling over just yet! He ordered a bunch of different blood tests, a CAT scan of my chest, abdomen and pelvic area and will put in a referral to the gastro team, because the “problem” that reared its ugly head in France, is still with me! *ahem* Enough said on that delicate subject!
He did say that in about 30% of cases where a patient suffers from neuropathy, they NEVER find the cause! (WTF? That’s a very high percentage!!!!) In those cases, they treat the symptoms, as best they can, and try to alleviate the uncomfortableness, but they don't ever find the actual cause.
However, he said if this next round of tests come up empty, he will refer me to a guy in London, who is a neurologist as well, but specialises in nerve and nerve damage.
So, I guess... no news was kind of good news, but the chase continues…
Watch this space.