Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2018

Sorry! Genetic Vikings! "CUMMON INGERLAND"

Is there a real genetic link with GCA/PMR or not? Anyway! Lets enjoy the game!!! Just quietly practising some rage myself!! But you never know!!

Is there a real genetic link with GCA/PMR or not? Anyway! Lets enjoy the game!!...

Hidden

•6 years ago

4 Replies

Thank you all so much.

I am so grateful for all the replies I have received. I don't feel so much of a freak anymore.:-) I have lurked, where possible but didn't have the courage...

I am so grateful for all the replies I have received. I don't feel so much of a...

Primarose

•6 years ago

7 Replies

STRESS! What stress! It's not me, it's those around me!

I have successfully controlled stress since PMR diagnosis in July 2015 by Mindfullness and meditation. Even survived the hip replacement in May this year. But...

I have successfully controlled stress since PMR diagnosis in July 2015 by Mindfu...

Valnvaughan

•6 years ago

10 Replies

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Diverticulitis anyone?

Yet another horror my body is throwing at me (along with PMR, hypothyroidism, Reynauds, psoriasis etc). And the cure looks worse than the disease - two hideous...

Yet another horror my body is throwing at me (along with PMR, hypothyroidism, Re...

Peggles

•6 years ago

16 Replies

Reduce of not?

I would really love some feedback on this. I’m GCA only since March 2017. One flare in October 2017 but since then a gradual reduction of Pred to current dose...

I would really love some feedback on this. I’m GCA only since March 2017. One fl...

Judy211

•6 years ago

22 Replies

10 + 10 + 10 = 30

Thirty. Good number, right? ...damn, I remember "being" 30! How can that be more than 30 years ago? Great age though. We were, "Old enough to know better;...

Thirty. Good number, right? ...damn, I remember "being" 30! How can that be m...

Hidden

•6 years ago

37 Replies

Evening Primsore Oil and Prednisolone

Would I be safe to take Evening Primrose Oil with my Prednisolone?

Maryfrombury

•6 years ago

13 Replies

Hampton Court Flower Show

A day here yesterday!! For us garden lovers , heaven😃😃😃🌸🌸🌸🌺🌺🌹🌹🌻🌻🌼🌼 Woke up exhausted today, so glad our friends are driving us home!! It will be...

A day here yesterday!! For us garden lovers , heaven😃😃😃🌸🌸🌸🌺🌺🌹🌹🌻🌻🌼🌼...

York54

•6 years ago

4 Replies

Glucose intolerance

Hi. Been a while. Busy with life and stuff and reducing our old friend, the steroids. It’s been 7 years since my first diagnosis of PMR. Also possible GCA so...

Hi. Been a while. Busy with life and stuff and reducing our old friend, the ster...

wendyanne49

•6 years ago

7 Replies

The Lighter Side: Famous Philosophical Quotations - and some Alternative Interpretations for Us Lot with PMR and GCA..? ;-)

Greetings All, from the new South Wing at Benjamin Mansions in sunny Weston super Mare in south west UK. Well, yes. It’s been a busy time recently, what...

Greetings All, from the new South Wing at Benjamin Mansions in sunny Weston supe...

markbenjamin57

•6 years ago

27 Replies

Just a thought

SOMETHING INSIDE SO STRONG. Such wonderful encouraging lyrics for all of us with this disease. ANd just for whatever life hits at us. Google the lyrics and...

SOMETHING INSIDE SO STRONG. Such wonderful encouraging lyrics for all of us with...

morrison

•6 years ago

14 Replies

Private messaging

How does one private message on this forum?

Hidden

•6 years ago

7 Replies

Moving desks hurts!

Well last week I had to move desk. Easy job, 2 monitors, laptop, wireless headset and phone charger. That was the easy bit, next came moving all the cables an...

Well last week I had to move desk. Easy job, 2 monitors, laptop, wireless headse...

JulianJ

•6 years ago

7 Replies

Woo Hoo, I'm Going! >>>> PMRGCAuk Members' Day 2018

Well, okay... I'm "planning" on going! God knows anything can happen between now and then! And, who knows what I'll "feel like" on the day; but damnit, I'm...

Well, okay... I'm "planning" on going! God knows anything can happen between ...

Hidden

•6 years ago

90 Replies

Scoop on latest rheumi visit.

I had my 8th injection of Actemra last week, before I could get the next batch, I needed the rheumi's OK. My rheumi has no interest in any of my symptoms,...

I had my 8th injection of Actemra last week, before I could get the next batch, ...

Gaijin

•6 years ago

34 Replies

Hedgehog cafe

My mum says if you feed them, they will come. Didn’t expect a hedgehog cafe though! Love Ozzy ( I’m a very IT knowledgeable cat) 🐈 PS mum says she might lay...

My mum says if you feed them, they will come. Didn’t expect a hedgehog cafe thou...

peace_lover

•6 years ago

9 Replies

The Chronicles of Ozzy and his mum with PMR. Part 2

Hello peeps. I’m not grumpy today, just hot - again. My mum is grumpy though. She dropped a 1mg of that Pred stuff and is now regretting it, says her shoulders...

Hello peeps. I’m not grumpy today, just hot - again. My mum is grumpy though. Sh...

peace_lover

•6 years ago

19 Replies

Newbie here!

Hello! My first post on this forum. I have GCA, onset Jan 2017. May I ask other sufferers how many appointments they have had with Rheumatology. I have had...

Hello! My first post on this forum. I have GCA, onset Jan 2017. May I ask other...

Primarose

•6 years ago

35 Replies

Cardiff Meeting

Prof Dasgupta is going to speak at the next meeting. 25 th July, 1 till 3 in the Central Library, Cardiff. Please contact me for further information.

Prof Dasgupta is going to speak at the next meeting. 25 th July, 1 till 3 in the...

slewis

•6 years ago

2 Replies

PMR sufferer wanting help

I have PMR and I am on Steroids I have come down to 3g a day.since I have been on them I have become a different person one of whom I don’t like there are...

I have PMR and I am on Steroids I have come down to 3g a day.since I have been o...

Vejay

•6 years ago

19 Replies

Having a "TURN"

Hello Everyone I'm having a bit of a 'turn' today - I LOVE that particular word which my grandmother used to use (in about the 1950s/60s) - she'd say:...

Hello Everyone I'm having a bit of a 'turn' today - I LOVE that particular word ...

Rimmy

•6 years ago

61 Replies

Next Chelmsford/Southend meet will be on:

Wednesday 15th August, 1.30 @ Rettondon Memorial Hall...

Telian

•6 years ago

9 Replies

Wish Me Luck! Update #4

(Following on from my previous posts: Wish Me Luck! and Wish Me Luck! Updates #1 to #3) Since April 2nd I’ve been following the AutoImmune Protocol (AIP) and...

(Following on from my previous posts: Wish Me Luck! and Wish Me Luck! Updates #1...

xdbx

•6 years ago

12 Replies

GCA FLARE. ADVICE PLEASE

Hello I have had a GCA diagnosis for a year now and have been successful in tapering down to 5mg of Pred. No problems whatsoever when taking 6 mg for 4 weeks....

Hello I have had a GCA diagnosis for a year now and have been successful in tap...

GrannyReid

•6 years ago

19 Replies

Methotrexate anyone?

I had my first appointment at the rheumatology clinic 6 weeks ago where they diagnosed me with PMR and gave me a Depo-Mendrone injection. This wore off last...

I had my first appointment at the rheumatology clinic 6 weeks ago where they dia...

Omanain

•6 years ago

33 Replies

Happy Birthday NHS!

On the 70th birthday of the National Health Service, I have spent the morning at New Cross Hospital with my 91 year old father and the deeply compassionate...

On the 70th birthday of the National Health Service, I have spent the morning at...

Polywotsit

PMRGCAuk team member•6 years ago

12 Replies

Thank you..

Thank you for your wise replies. I am glad that you all seem to pretty much agree with my strategy but it won't be easy resisting the persistence of the Rheumy...

Thank you for your wise replies. I am glad that you all seem to pretty much agre...

wendythom

•6 years ago

4 Replies

Fit-flops (not flip flops!)

I wonder if anyone has any advice or experience of wearing fit flops? I have had a pair of sandals for around 20 years, and they have been so comfortable that...

I wonder if anyone has any advice or experience of wearing fit flops? I have ha...

ClarkB

•6 years ago

68 Replies

Memory Foam Pillows & Mattress. Any Good?

Do these items help get a decent nights sleep? My shoulders & neck are the biggest problem for myself along with breathing congestion. Does anyone find...

Do these items help get a decent nights sleep? My shoulders & neck are the bigge...

Hidden

•6 years ago

66 Replies

head pain

i keep geeting tingling and mooving in my head what can that be

ballyboy

•6 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

Sorry! Genetic Vikings! "CUMMON INGERLAND"

Thank you all so much.

STRESS! What stress! It's not me, it's those around me!

Diverticulitis anyone?

Reduce of not?

10 + 10 + 10 = 30

Evening Primsore Oil and Prednisolone

Hampton Court Flower Show

Glucose intolerance

The Lighter Side: Famous Philosophical Quotations - and some Alternative Interpretations for Us Lot with PMR and GCA..? ;-)

Just a thought

Private messaging

Moving desks hurts!

Woo Hoo, I'm Going! >>>> PMRGCAuk Members' Day 2018

Scoop on latest rheumi visit.

Hedgehog cafe

The Chronicles of Ozzy and his mum with PMR. Part 2

Newbie here!

Cardiff Meeting

PMR sufferer wanting help

Having a "TURN"

Next Chelmsford/Southend meet will be on:

Wish Me Luck! Update #4

GCA FLARE. ADVICE PLEASE

Methotrexate anyone?

Happy Birthday NHS!

Thank you..

Fit-flops (not flip flops!)

Memory Foam Pillows & Mattress. Any Good?

head pain

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