Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for July 2018

Hmmm?

"Tocilizumab helps patients achieve better control of this illness and fills what has been an unmet need," says Professor Dasgupta....

"Tocilizumab helps patients achieve better control of this illness and fills wha...

Hidden

•6 years ago

47 Replies

Third Actemra Infusion

I am getting ready for my third Actemra infusion scheduled for this Friday. This past week I have been experiencing some transient shooting pains in my head,...

I am getting ready for my third Actemra infusion scheduled for this Friday. Thi...

CRW-68

•6 years ago

4 Replies

Getting old is no fun!

Having been on pred for PMR since Jan 2014, and then developing Arthritis, I thought that that was the lot, but Oh no. In March I developed Anaemia, and am now...

Having been on pred for PMR since Jan 2014, and then developing Arthritis, I tho...

Vanner460

•6 years ago

19 Replies

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Covered in confusion!

I have just seen my rheumatologist this morning and have come home feeling confused and depressed. I haven’t posted for a long time because I have been...

I have just seen my rheumatologist this morning and have come home feeling confu...

Wilts-girl

•6 years ago

11 Replies

Online. Docs. Pharmacy! Not Very Good!

Well! Prescription dates certainly don't link up with reality! Would you believe!! I have one for 2031! It's another wonderful update on their site so they...

Well! Prescription dates certainly don't link up with reality! Would you believ...

Hidden

•6 years ago

2 Replies

Experience with statins??

I know its ot exactly PMR related - but has anybody got experience of being on statins? My main concern is I think one of their main side effects is muscle...

I know its ot exactly PMR related - but has anybody got experience of being on s...

powerwalk

•6 years ago

58 Replies

Adrenals went on holiday

Well, I’m having the first 2 day break away from the house, dogs, teenagers and Grampa in years. I discovered a Triad of Joy with three places within walking...

Well, I’m having the first 2 day break away from the house, dogs, teenagers and ...

SnazzyD

•6 years ago

41 Replies

Heart of the matter

Hi, to all those remember me, It's been a while since I posted. I was due to have 3 coronary heart bypasses and a mitral valve repair. Unfortunately the...

Hi, to all those remember me, It's been a while since I posted. I was due to ha...

bowler

•6 years ago

30 Replies

Pred hair!!

Anyone have problems with "pred hair" as I call it, or it is just me being freaky. I have lost a lot of hair but also had new regrowth on top which is of a...

Anyone have problems with "pred hair" as I call it, or it is just me being freak...

Primarose

•6 years ago

78 Replies

I'm getting very worried reading some posts

Hi I've been reading some posts and am getting very worried about having PMR. It all started with me having small amounts of protein in my blood, I was under...

Hi I've been reading some posts and am getting very worried about having PMR. I...

Dee29

•6 years ago

26 Replies

New here

Hi everyone My name is Dee and I've just found this website today and as I was only diagnosed with PMR by letter last week from my Rheumatologist I am very...

Hi everyone My name is Dee and I've just found this website today and as I was o...

Dee29

•6 years ago

37 Replies

On Being “Freak”

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/09/on-being-freak/ Warning; This blog post may contain strong language. If you are...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/09/on-b...

Hidden

•6 years ago

50 Replies

Follow-on from GCA Relapse!

I saw a doctor this morning, (not my usual). He did indeed think that I was having another flare and told me to continue on 6mgs of pred. With regards to the...

I saw a doctor this morning, (not my usual). He did indeed think that I was hav...

Primarose

•6 years ago

7 Replies

Flare ups

Last few days have been tough, aches in my hips and thighs,feeling awful, been playing bowls in the heat,my body telling me it's too much,but you like too...

Last few days have been tough, aches in my hips and thighs,feeling awful, been p...

Sailormo

•6 years ago

7 Replies

Wee update - still a newbie

HI - here is my med info (so far) My PMR began on 16th March Eventually the 4th GP I saw, although he didn't know what I was suffering from. after raised...

HI - here is my med info (so far) My PMR began on 16th March Eventually the 4th ...

Theziggy

•6 years ago

28 Replies

Love Mondays

Since leaving work forever Monday is my favourite day.I used to dread it on a Sunday evening.Monday at work was always manic and exhausting,I'm so glad I'm not...

Since leaving work forever Monday is my favourite day.I used to dread it on a Su...

Sandradsn

•6 years ago

16 Replies

Zero Pred. March 2013/2018.

My joy did not last long, now diagnosed Atrial fibrillation steroids now replaced with warfarin and bisoprolol medication And regular blood checks, anyone have...

My joy did not last long, now diagnosed Atrial fibrillation steroids now replace...

Zampalion

•6 years ago

6 Replies

Smile and the whole world smiles with you, cry and you..............blah blah blah!

Had my long awaited Rheumy appointment on Friday. Have been struggling with PMR? since Feb 2018, GP agreed to try me on 15mg of Pred, fantastic improvement...

Had my long awaited Rheumy appointment on Friday. Have been struggling with PMR?...

Mike1964

•6 years ago

55 Replies

Fatigue

I have just reduced steroids from 8mgs to 7 over 6 week span. No pains as such just extreme tiredness. I am not sure if its steroid withdrawal or the...

I have just reduced steroids from 8mgs to 7 over 6 week span. No pains as such ...

Xanthe12345

•6 years ago

26 Replies

Ups and downs and Ups!

The first up was when I managed to get up to a rocky outcrop in our back field. It is shaped in such a way that it has a naturally shaped seat in it so it's...

The first up was when I managed to get up to a rocky outcrop in our back field. ...

Louisepenygraig

•6 years ago

9 Replies

Acute foot pain.

I have just returned from a four week holiday in Spain. I was far more active than usual. I thought I had coped well with it. However, yesterday I suddenly...

I have just returned from a four week holiday in Spain. I was far more active th...

Jeanjean16

•6 years ago

11 Replies

Introduction

Hi All, I have found your contributions invaluable and express my appreciation. My situation is as follows: - Diagnosed with PMR and commenced on 50mg Pred by...

Hi All, I have found your contributions invaluable and express my appreciation. ...

7Angie3

•6 years ago

21 Replies

GCA Relapse?

I think I have had a relapse or as they call it now a "flair". As well as the nasty shoulder pains I had really intense head pain on the right side yesterday....

I think I have had a relapse or as they call it now a "flair". As well as the na...

Primarose

•6 years ago

25 Replies

So sick of this heat.

Anyone got any rain dances we could try?

teesher

•6 years ago

21 Replies

Adcal-D3 clashing

Hallo, my doctor has prescribed Adcal-D3. I have been taking MacuShield for eyes along with Centrum multivitamin for women over 50. Any views on taking all...

Hallo, my doctor has prescribed Adcal-D3. I have been taking MacuShield for eye...

Reethebeat

•6 years ago

21 Replies

Reducing pred from 20

I appreciate all the helpful responses about everyone’s tapering experiences, thanks to all who replied. Seems like at 20 is where going slower...

I appreciate all the helpful responses about everyone’s tapering experienc...

Mstiles

•6 years ago

8 Replies

Update to shingles and stressful rheumy appointment

Thanks to everyone for your support and replies to my freaked out post! I think what I have are insect bites, maybe a spider? I’ve seen some in the...

Thanks to everyone for your support and replies to my freaked out post! ...

Mstiles

•6 years ago

6 Replies

Any advice please re hernia op?

I'm having a femoral hernia repaired next week. I put off the op before but now I'm having it. It involves general anaesthetic. I've had GCA since March...

I'm having a femoral hernia repaired next week. I put off the op before but now...

Maur1

•6 years ago

10 Replies

Heat Intolerance!

I'm 81, and 6 weeks post op and am finding this heat intolerable. Before the heat wave I was struggling to get down to 7mg, doing 8 one day and 7 the next....

I'm 81, and 6 weeks post op and am finding this heat intolerable. Before the he...

stellafmdm

•6 years ago

10 Replies

Sweden 0 England 2

Come on lads - you can do it!!!

Telian

•6 years ago

43 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

Hmmm?

Third Actemra Infusion

Getting old is no fun!

Covered in confusion!

Online. Docs. Pharmacy! Not Very Good!

Experience with statins??

Adrenals went on holiday

Heart of the matter

Pred hair!!

I'm getting very worried reading some posts

New here

On Being “Freak”

Follow-on from GCA Relapse!

Flare ups

Wee update - still a newbie

Love Mondays

Zero Pred. March 2013/2018.

Smile and the whole world smiles with you, cry and you..............blah blah blah!

Fatigue

Ups and downs and Ups!

Acute foot pain.

Introduction

GCA Relapse?

So sick of this heat.

Adcal-D3 clashing

Reducing pred from 20

Update to shingles and stressful rheumy appointment

Any advice please re hernia op?

Heat Intolerance!

Sweden 0 England 2

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