Hello! My first post on this forum.
I have GCA, onset Jan 2017.
May I ask other sufferers how many appointments they have had with Rheumatology. I have had one proper appointment since 2017.
I have mostly self medicated. My doctor is quite helpful but when I mention certain problems I have with the preds he doesn't seem to think that they cause any of my problems.
My sympathy to fellow sufferers, this seems to be a very lonely DIY disease.