Diverticulitis anyone?: Yet another horror my body... - PMRGCAuk

PMRGCAuk
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Diverticulitis anyone?

Peggles
Peggles

Yet another horror my body is throwing at me (along with PMR, hypothyroidism, Reynauds, psoriasis etc).

And the cure looks worse than the disease - two hideous antibiotics, which I told my dr I didn't want to take as I was trying to look after my gut bacteria, and how he laughed! These two are guaranteed to knock out all the bacteria in my gut and no self medicating with a gin and tonic for two weeks.

My pill box is now overflowing and I don't really want to take any of them at all.

16 Replies
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Hmmmmm? No thanks, I'll pass.

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In all seriousness, I am so sorry... that sucks! Sending healing thoughts!

Poor you Peggles. I have everthing except the Diverticulitis . I would settle for 2 weeks of unpleasantness and sobriety if my doctor could assure me that this would knock the nasty disease on the head. We become quite practised at suffering, I’d like something with an end date. He should not have laughed, the clown 🤡. You can work on your gut when the attacker is dead ( diverticulitis not the clown).

Ouch. It’s a tricky one ,flora damaging antibiotics, I suspect Metronidazole is one, or risk of serious complications if the diverticuli are left inflamed. That’s probably why he laughed because he’s seen the perforated bowels or sepsis. I do know the upset of knowing a treatment is damaging you in some way, so you have my sympathy.

Plod through G&T bereft and patch up the gut flora later I guess.

Not a great situation but probably will all be sorted eventually. I was in the same situation a few years ago. I think my gut bacteria eventually returned to sort of normal but I also had IBS so not absolutely convinced. Sorry about the gin. All good wishes for a speedy recovery.

I had a bout of diverticulitis earlier this year which resulted in an emergency ride in an ambulance to A and E. It was agonisingly painful and the infection had to be treated with intravenous and oral antibiotics. After a couple of colonoscopies and CTC scans my gut bacteria were probably non-existent! However, there were no long lasting problems once I was able to get back to enjoying my daily dose of yoghurt and a fibre rich diet. Best wishes for a speedy recovery.

Thank you all - I'll stop delaying!

It's not even a confirmed diagnosis - but possibly 10mg of pred means I'm not experiencing any pain (except for yukky bloody mucous stools and diarrhoea- sorry).

And taking the antibiotics is complicated as one of them can't be taken with dairy or omezaprole (?) which I take with my steroids.

And the dr also said I'd feel awful.

So fed up with all of this and still can't understand it all!

Hindags
Hindags
in reply to Peggles

I have had diverticulitis. Close to needing surgery. Flagyl and Cipro we're life-saving. Now I'm back from a vacation in Mexico with a case of the turistas.... Not a pleasant business. But the pain is nothing like the diverticulitis.

I was offered Cipro, but am concerned about the combo of Cipro and Pred. I've read here that torn tendons can occur. My Dr says that at my current dose of Pred, 5mg, they don't worry about that so much. I was going to ask the experts here.

HeronNS
HeronNS
in reply to Hindags

What I've heard is avoid cipro when on pred. Five mg is still a significant dose, still has effects on your bones, for example.

healthunlocked.com/blf/post...

PMRpro posted a couple of links in this thread, which I assume you already read:

healthunlocked.com/pmrgcauk...

Hindags
Hindags
in reply to HeronNS

Thanks so much for gathering all this info. Luckily my fever has broken today. So hopefully I’ll be on the mend. I

Have some azithromycin to try next if things don’t improve much in the next day or so.

HeronNS
HeronNS
in reply to Hindags

Glad things seem to be taking a turn for the better! Hope you feel much better by tomorrow.

PMRpro
PMRproAmbassador
in reply to Hindags

He may not worry about it - but it is a very real risk. The risk is also said to persist even when you are long off pred - so the current dose would appear to be immaterial.

PMRpro
PMRproAmbassador
in reply to Peggles

"possibly 10mg of pred means I'm not experiencing any pain"

Pred has been blamed for causing gut perforation - what is far more likely is that it masks the symptoms when it does happen.

Lucky you to be offered antibiotics! I wasn't as hospital consultant convinced was cancer ignoring experienced GP s earlier and as it turned out accurate diagnosis. Result was a stricture then a fistula and eventually a colectomy. I think restoring your gut flora might be easier! Also went into surgery not knowing if was to be a colectomy or a colostomy, fortunately very woozy when i woke up so didn't panic and luckily didn't have to!

These diagnoses by exclusion are a nightmare, i couldn't believe it when another turned up, GCA, about which some of the medics still have doubts. Hopefully lightening hasn't struck twice as cataracts and osteoporosis are hard enough to bear if the steroids are necessary.

Discovered last week that I am hypermobile, does anyone know if this affects how one presents with these diseases and if that is what is sending some medics off at a tangent?

PMRpro
PMRproAmbassador
in reply to Cally55

Hypermobility could be a sign it isn't "just" PMR - it certainly is a part of other a/i disorders.

So sorry to hear this! I definitely think you must go with the antibiotics since it is prescribed.. but in the future here is what I have done. I had 3 rounds of 10 days of antibiotics once and next step was surgery but it cleared itself up. And since then, in the last 10 years I have had it maybe 4-5 times.. and only once needed to use antibiotics again. This last time I didn't want to use the Cipro because of the tendons etc. In any case now that I have HAD diverticulitis..Iknow the feeling at the first symptom. AND Immediately I go to a CLEAR BROTH diet for 2 days and then a liquid diet for 3-5 days and then soft food for a couple days. and it is GONE!!!!! It is NOT a nice way but it does work for me and also for a friend of mine who has it too. Your bowel needs a complete REST and the infection won't set in and the antibiotics will be unnecessary. My Doc in fact thinks it is a great idea and always thinks I should try it..unless it gets worse etc. because antibiotics are not great for us or the world at large! Good luck. I am sorry you have to take them now. And I HOPE there is not a Next time! but.. if there is. contact me by message if you like and I can be more detailed.

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