Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,269 members • 37,944 posts

All posts for July 2018

Rib pain

I am down to 9mg prednisone and was doing well. Monday I had an appointment with my new doctor and that went well. Tuesday I started having a bit of pain in my...

I am down to 9mg prednisone and was doing well. Monday I had an appointment with...

Lanakay

•6 years ago

18 Replies

Sick and tired of being sick and tired

I am 69 yrs old, woke up 2/8/18 and was blind in my right eye. Within a weeks time I was diagnosed with GCA, started 60mg of prednisone. Vision has not...

I am 69 yrs old, woke up 2/8/18 and was blind in my right eye. Within a weeks ti...

Ghostrider69

•6 years ago

19 Replies

Flare-up

What causes a flare-up of PMR symptoms? The pain and stiffness is worse than when I was first diagnosed. I'm currently on 10mg prednisone.

What causes a flare-up of PMR symptoms? The pain and stiffness is worse than whe...

Reader7

•6 years ago

5 Replies

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Hi new to this forum and looking for advice and support

Hi, I was diagnosed with polymyalgia last October and have had two courses of steroids. Every time I come down and stop the pain comes back big time. As my...

Hi, I was diagnosed with polymyalgia last October and have had two courses of st...

empedrola

•6 years ago

7 Replies

Think I'm having a flare up

Hello there This is the first time I have posted here, but I have used the site and read the posts for advice for about 3 years. I was diagnosed with PMR 3...

Hello there This is the first time I have posted here, but I have used the site ...

Jcarling

•6 years ago

18 Replies

Methotrexate and GCA

Has anyone with gca and taking methotrexate felt that it helped them to taper their pred?

Has anyone with gca and taking methotrexate felt that it helped them to taper th...

gtate1914

•6 years ago

23 Replies

Fevers and night sweats

I had been enjoying a remission from my PMR symptoms for about a year. I had successfully tapered off of Prednisone about nine months ago and all seemed well....

I had been enjoying a remission from my PMR symptoms for about a year. I had suc...

Kixx

•6 years ago

14 Replies

Shin Pain

Hi All For the past week I have a brand new pain(lucky me) My shinbones are really painful and sore. Would this also be caused bt PMR or should I be...

Hi All For the past week I have a brand new pain(lucky me) My shinbones are real...

Jeannie29

•6 years ago

19 Replies

PMR caused by statins??

Has this forum discussed or found any causal link between satins and PMR? I have come across this in a Facebook discussion thread.......

Has this forum discussed or found any causal link between satins and PMR? I have...

DevonMichael

•6 years ago

20 Replies

My story

I’m new to this site although I was diagnosed 10 years ago. The rheumatologist, after 3years, suggested that I keep on 3mg for eternity. Each time I try lower...

I’m new to this site although I was diagnosed 10 years ago. The rheumatologist, ...

Mipsie

•6 years ago

7 Replies

Tapering glitch while on Actemra

I was walking to the market this morning when I had to turn back and go home due to severe pain in my hips caused by walking. I lay down for a bit and felt OK....

I was walking to the market this morning when I had to turn back and go home due...

Gaijin

•6 years ago

8 Replies

Methotrexate = low platelets.

I got to zero pred early March also rheumatologist started MTX 18 months ago 8 mgs reducing by 1mgs every 3months , due to Af. Also on 3 mgs warfarin but...

I got to zero pred early March also rheumatologist started MTX 18 months ago 8 m...

Zampalion

•6 years ago

2 Replies

Steroids and Medications

Hi All I have been reading 'Coping with Prednisone' by Eugenia Zukerman and there was interesting info about steroids and medications. "Some meds can bind...

Hi All I have been reading 'Coping with Prednisone' by Eugenia Zukerman and ther...

Linny3

•6 years ago

18 Replies

Are there any specific scans for GCA?

Hi all Been having issues with ears, eyes and jaw again for last 6-7 weeks. Have Atypical PMR since Feb 2018. I spoke to a Rheumy last Friday, he was aware of...

Hi all Been having issues with ears, eyes and jaw again for last 6-7 weeks. Have...

Mike1964

•6 years ago

53 Replies

Big Dick Energy!! WHAT THE!!

BBC.Site." Bick Dick Energy". Right now I'll settle for the energy bit myself!!! Dame Edna even your favourite plant can't take it !! Only the merest smidgen...

BBC.Site." Bick Dick Energy". Right now I'll settle for the energy bit myself!!!...

Hidden

•6 years ago

28 Replies

Does anyone have complications due to high blood pressure.

I am taking medication for high blood pressure, and suspect the steroids for PMR are making my blood pressure worse. Does anyone have the same issues ?

I am taking medication for high blood pressure, and suspect the steroids for PMR...

JuneN

•6 years ago

21 Replies

When to know it the disease and not pred side effects

I'm tapering by 2.5 mg, currently on 45mg day 13, however, in the background I still get fleeting niggles, sometimes a little bit stronger, of ache in my...

I'm tapering by 2.5 mg, currently on 45mg day 13, however, in the background I s...

gtate1914

•6 years ago

23 Replies

Bakers Cydt

Hi All I have had ruptured Bakers Cyst in both knees, don’t know if this is anything to do with PMR, has anyone else experienced this Jean

Hi All I have had ruptured Bakers Cyst in both knees, don’t know if this is anyt...

Jeannie29

•6 years ago

10 Replies

Flare up?

I have never been quite sure on what is an actual flare-up. When I saw the Rheumatologist in April, he put on my notes that my PMR didn’t appear to be active....

I have never been quite sure on what is an actual flare-up. When I saw the Rheum...

ClarkB

•6 years ago

13 Replies

Bruising

Thank you once again for your helpful replies. May I ask has anyone used Vitamin K cream for the awful bruising on legs and arms. Kyrenia

Thank you once again for your helpful replies. May I ask has anyone used Vitamin...

Kyrenia

•6 years ago

5 Replies

Thinking of increasing my dose of prednisone

I'm newly diagnosed with PMR and struggling with reducing prednisone dosage. I started with 30mg at the beginning of June and am now down to 10mg. I'm thinking...

I'm newly diagnosed with PMR and struggling with reducing prednisone dosage. I s...

Reader7

•6 years ago

12 Replies

PMR, shoulder, arm injuries

I have had PMR For almost 5 years. I have been on Actemra for a year while tapering the prednisone down to 3m. I remember some of you posting of rotator cuff...

I have had PMR For almost 5 years. I have been on Actemra for a year while taper...

Klah

•6 years ago

2 Replies

Update regarding AA and Omeprazole

Hi everyone Hope you are all coping with the heat wave and managing to keep cool. Since my post I have only taken Omeprazole alternate days and taken the...

Hi everyone Hope you are all coping with the heat wave and managing to keep cool...

Mitziecat

•6 years ago

16 Replies

I’m new here.

Hi All, I’m a Carer for the elderly. I’ve had 7 years experience in the care sector. I’ve learned a lot and picked up a few tips along the way that have...

Hi All, I’m a Carer for the elderly. I’ve had 7 years experience in the care sec...

strawheart

•6 years ago

1 Reply

Tired muscles

Down to 6.5mg of pred experiencing tired muscles in the morning, no stiffness and a good range of flexibility just a slowness in arms and legs. Any ideas?

Down to 6.5mg of pred experiencing tired muscles in the morning, no stiffness an...

Hidden

•6 years ago

5 Replies

Swim in your own lane

I heard something on the radio yesterday and she said "swim in your own lane"... she made reference to Gold Medal Winner (swimmer) Michael Phelps and said the...

I heard something on the radio yesterday and she said "swim in your own lane"......

bunnymom

•6 years ago

27 Replies

Exaggerated Lordosis of the lumber spine

My rheumatologist has informed me that I have the above and I would like to know if anyone has had this with PMR/GCA.

My rheumatologist has informed me that I have the above and I would like to know...

Berylholley

•6 years ago

4 Replies

Toggling Prednisone?

My CRP is down to 12, but I've only ever been on 10mg of pred, so I asked my GP (and told him I learned it from this forum) if we should up the dose and knock...

My CRP is down to 12, but I've only ever been on 10mg of pred, so I asked my GP ...

schmuppy

•6 years ago

15 Replies

Eyesight Improving .... !!?

Hi Everyone I have read tons on here about prevention of eyesight loss for GCA andthe somewhat then ironic problem of Pred blurring eyesight as well - but...

Hi Everyone I have read tons on here about prevention of eyesight loss for GCA ...

Rimmy

•6 years ago

33 Replies

Thank

Thank you everyone who posted help and sympathies. It's reassuring to know I'm not the only one feeling so awful. Kyrenia

Thank you everyone who posted help and sympathies. It's reassuring to know I'm n...

Kyrenia

•6 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

Rib pain

Sick and tired of being sick and tired

Flare-up

Hi new to this forum and looking for advice and support

Think I'm having a flare up

Methotrexate and GCA

Fevers and night sweats

Shin Pain

PMR caused by statins??

My story

Tapering glitch while on Actemra

Methotrexate = low platelets.

Steroids and Medications

Are there any specific scans for GCA?

Big Dick Energy!! WHAT THE!!

Does anyone have complications due to high blood pressure.

When to know it the disease and not pred side effects

Bakers Cydt

Flare up?

Bruising

Thinking of increasing my dose of prednisone

PMR, shoulder, arm injuries

Update regarding AA and Omeprazole

I’m new here.

Tired muscles

Swim in your own lane

Exaggerated Lordosis of the lumber spine

Toggling Prednisone?

Eyesight Improving .... !!?

Thank

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