My story

[Mipsie]

I’m new to this site although I was diagnosed 10 years ago. The rheumatologist, after 3years, suggested that I keep on 3mg for eternity. Each time I try lower the dose I get a resurgence, I find 5mgs makes life bearable but my prescription is for 3mg. Strangely when I had pneumonia 4years ago and all medication was halted for intravenous antibiotics I didn’t seem to suffer, perhaps because I was so ill I didn’t notice ! Tiredness is a problem but that is exacerbated by atrial fibrillation.

Except when the pain is so severe, I feel very lucky. I am in my 90th decade,live independently and am able to get out and about, on my own and with kind friends and family who are prepared to drive 80+ miles to take me to hospital appointments and on holidays.

[PMRpro Ambassador]

Welcome!

Will your doctor not let you stick at 5mg if you feel so much better there? I'd be lobbying for that! I know what you mean about the a/f - do you find it is better at a higher dose of pred?

[yogabonnie]

I'm with PMR pro. lobby for 5mg. why not!! If you feel better. And I love your attitude! and your friends! Bravo.

[SheffieldJane]

Hello and welcome Mipsie. I just wanted to say what a glass half full girl you are.

[Telian]

As others have said think 5mg is for you and what lovely family and friends you have. Best wishes Mipsie.

[Hidden]

Welcome Mipsie 💐

Well done on how very well you are doing, maybe negotiate a small rise to 4mg & see how that goes.

So pleased you have good family & friends.

Look forward to hear from you again.

Mrs N 💅🏼

[Grants148]

Hello Mipsie,you sound an amazing lady and l am pleased you have kind friends and family who are so caring. I also think that if you feel better on a higher dose of Pred,l,would take the extra.Best wishes,please let us know how you get on.

[Purplecrow]

Gosh, 10 years ago, you were truly in the wilderness with this disorder. How did you find support and information? So glad to see you here.💜