I’m new to this site although I was diagnosed 10 years ago. The rheumatologist, after 3years, suggested that I keep on 3mg for eternity. Each time I try lower the dose I get a resurgence, I find 5mgs makes life bearable but my prescription is for 3mg. Strangely when I had pneumonia 4years ago and all medication was halted for intravenous antibiotics I didn’t seem to suffer, perhaps because I was so ill I didn’t notice ! Tiredness is a problem but that is exacerbated by atrial fibrillation.
Except when the pain is so severe, I feel very lucky. I am in my 90th decade,live independently and am able to get out and about, on my own and with kind friends and family who are prepared to drive 80+ miles to take me to hospital appointments and on holidays.
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Mipsie
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Will your doctor not let you stick at 5mg if you feel so much better there? I'd be lobbying for that! I know what you mean about the a/f - do you find it is better at a higher dose of pred?
Hello Mipsie,you sound an amazing lady and l am pleased you have kind friends and family who are so caring. I also think that if you feel better on a higher dose of Pred,l,would take the extra.Best wishes,please let us know how you get on.
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