Hope you are all coping with the heat wave and managing to keep cool.
Since my post I have only taken Omeprazole alternate days and taken the advice of eating porridge and yogurt when taking prednisolone. The result have not been too bad amd although there is a little heartburn, it is bearable. I have not taken AA for 4 weeks.
I had my Rheumatologist appointment on the 23/07/18 and he agreed with stopping the AA as I am only on 2 mg of Prednisolone. He also advised to discontinue the Omeprazole. I did discuss the need for a Dexa Scan and he has referred me for one (hope the wait is not too long). He asked about any symptoms, including eyes, headache or jaw pain. Checked my muscle strength and felt for any raised glands. Also advised that my repiratory and cardiac sounds appeared satisfactory. A blood test done at the GP surgery had to be repeated prior to the appointment but previous month was good. Advised to continue the slow tapering, encouraged to return to exercising but be sensible and not to run any marathons. He has discharged me but advised that it can flare up at any time so happy for me to be re-referred if required.
Today my GP rang with my latest blood result and white cell count again slightly raised and also platelet count slightly low. Rheumatologist had said check bloods again in 2 months but she has decided to recheck in a month as he did not have the current result.
So in summary, hopefully progressing well but think the next few months will be challenging as I am due to reduce the Prednisolone slightly for another month. Some days I feel really good but other days have noticed a bit of low mood which is unlike me. Things have been very busy, work challenging and some days stress levels through the roof. I read all the posts and have learnt a lot about pmr and how to cope with it from this supportive site but it is hard at times. I think people around me think I am fine now as only on a low steroid dose but as you know this is not always the case. My aim for the next few months is to try and bat away stress and concentrate on improving my health both physically and mentally. Currently not sure if tiredness is due to coping with the heat. Lovely if on holiday but takes all your energy while working and doing daily tasks (one of my stressors as everything is piling up. Too hot for ironing or housework)
Sorry for the long post and hope everyone is hanging in there.
Have a lovely weekend