Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,025 posts

All posts for July 2018

Vit D test results

As I’m supposed to be starting on Risedronate I decided to get a vitamin D test done privately, as my surgery seems a bit behind on this. I used a site...

As I’m supposed to be starting on Risedronate I decided to get a vitamin D test ...

peace_lover

•6 years ago

12 Replies

Help/advice please

Hello everyone I haven't posted for a while and hope I do it correctly. I was diagnosed in Dec 17 with GCA/PMR. I started on 40 mg now on 15mg, struggling but...

Hello everyone I haven't posted for a while and hope I do it correctly. I was di...

Kyrenia

•6 years ago

13 Replies

Cannot Find A Doctor That Knows PMR

i would like to know of a DR. in GA USA, that can really help a PMR patient. I have not been able to find one. Except for one, and he is retired, none have...

i would like to know of a DR. in GA USA, that can really help a PMR patient. I ...

Hidden

•6 years ago

20 Replies

Want to take advantage of all our features? Just log in!

Back to the daily routine

Well, I'm back home from the trip and feel that the break has done me well. Not been a completely pain-free 3 weeks, but I have managed to reduce from 13 to 12...

Well, I'm back home from the trip and feel that the break has done me well. Not ...

Ta1ch1

•6 years ago

8 Replies

How long at higher dose?

After a few days of increasing pain, I decided to up my dose from 12 to 15. I am asking how long does one safely stay at the higher dose before I drop down to...

After a few days of increasing pain, I decided to up my dose from 12 to 15. I a...

Hidden

•6 years ago

38 Replies

SLOW MOTION

Hi everyone, I read your posts and think I am not to bad really but it is still a nightmare. Just had a shower. By the time I put my underwear on I was...

Hi everyone, I read your posts and think I am not to bad really but it is still ...

Cheshy72

•6 years ago

44 Replies

Struggling for answers 😞😔

I was diagnoised with GCA last November after a PET Scan starting 60 mg and also with RoActemra injection once weekly. Was doing ok and came down to 8mg and...

I was diagnoised with GCA last November after a PET Scan starting 60 mg and also...

Lucylooloo

•6 years ago

32 Replies

Rhubarb! Not Good! Always Learning!!!!

Experimental dishes! Loved doing those chuck ins! Kindly given some rhubarb & Ah! Time to let go my spicy food fantasies! Jamie I aint! Think there may be a...

Experimental dishes! Loved doing those chuck ins! Kindly given some rhubarb & Ah...

Hidden

•6 years ago

57 Replies

Feeling Dissappointed

Diagnosed May 2018 GCA and put on 60mg prednisolone to be reduced monthly. Really have not been feeling at all well and thought as I reduced steroids it would...

Diagnosed May 2018 GCA and put on 60mg prednisolone to be reduced monthly. Real...

Cairn

•6 years ago

12 Replies

Headaches

I am down to 12.5 and have been for a week and a half. Started to get headaches again. The weather here is very hot and work is very stressful. Going to get...

I am down to 12.5 and have been for a week and a half. Started to get headaches ...

AverilG

•6 years ago

3 Replies

Swollen ankles.

I have never seen my ankles so swollen. A combination of pred fluid retention and hot weather I assume. Anyone got a good remedy?

I have never seen my ankles so swollen. A combination of pred fluid retention an...

maria40

•6 years ago

24 Replies

A Little Help From My Friends

I have read ALL of the kind, honest, thoughtful, lovely comments left on my last "Poor, Poor Pitiful Me" post... I will respond to all of them in good time....

I have read ALL of the kind, honest, thoughtful, lovely comments left on my last...

Hidden

•6 years ago

36 Replies

Weather, Arthritis and PMR!!

I was naive enough to think that as soon as the summer came I would be relatively pain free - what a fool! Things are worse! In winter we suffer because of...

I was naive enough to think that as soon as the summer came I would be relativel...

Constance13

•6 years ago

31 Replies

Delayed release prednisolone

At my last GP appointment I asked for a prescription for delayed release prednisolone which he found on his computer and duly prescribed. However on taking it...

At my last GP appointment I asked for a prescription for delayed release prednis...

Lochy

•6 years ago

33 Replies

I want to help my daughter

My daughter has many illnesses and physical problems that no one can seem to diagnose for her. One of them is her sensitivity to perfumes, colognes, air...

My daughter has many illnesses and physical problems that no one can seem to dia...

Amber1414

•6 years ago

5 Replies

Tired of being Broke

I have been trying to go back to work for 10 years every time I feel well enough to return the doctor tells me to tapered down. By the time I get things...

I have been trying to go back to work for 10 years every time I feel well enough...

Hidden

•6 years ago

4 Replies

Still waiting to get better

68 year old male. I was diagnosed with PMR April 2011. Currently on 7 mg. Prednisone. I have tapered down to 3 mg many times but always wind up with a severe...

68 year old male. I was diagnosed with PMR April 2011. Currently on 7 mg. Predni...

Hidden

•6 years ago

19 Replies

Visit to Dentist Required!

This morning my OH broke a tooth. In an effort to one up him, I broke a tooth this afternoon. I am assuming his fix is routine, but wonder if I need to do...

This morning my OH broke a tooth. In an effort to one up him, I broke a tooth th...

AltonBay

•6 years ago

7 Replies

Stopping tramadol

I stopped taking tramadol that I've beeN on for a year as I think it makes me tremble and shake inside and out, the heat is really making me feel ill! I've...

I stopped taking tramadol that I've beeN on for a year as I think it makes me t...

Jamie345

•6 years ago

15 Replies

Switching to enteric pred and tapering

Well I’ve been on 20 mg for almost two weeks now and pondering my next move. I think I’m Ok, had some withdrawal pains but not too bad. This is the lowest...

Well I’ve been on 20 mg for almost two weeks now and pondering my next move. ...

Mstiles

•6 years ago

24 Replies

Back to Square One

It was November, 2017... The A&E Doctor had consulted with the TAB specialist and they decided it was "most likely" GCA and started me off on 40 mg of...

It was November, 2017... The A&E Doctor had consulted with the TAB specialist ...

Hidden

•6 years ago

130 Replies

Stiff Ankles

Has anyone else experienced stiff ankles as part of PMR?

Glennda

•6 years ago

40 Replies

Turmeric benefits?

A good friend of mine in the US who is a doctor of medicine and a Naturopath suggested I try a turmeric derived product called Turmero to help reduce...

A good friend of mine in the US who is a doctor of medicine and a Naturopath sug...

Casia

•6 years ago

11 Replies

Cataract op

Anyone else had a hard time with their cataract op..... can’t see feel dizzy bad tum and extremely tired ..... dreading second one!

Anyone else had a hard time with their cataract op..... can’t see feel dizzy bad...

shella

•6 years ago

25 Replies

Needing help and advice

I am new and need advice I am concerned about the side effects of Prednisolone. My legs are aching really badly in the muscles in my thighs and calves and its...

I am new and need advice I am concerned about the side effects of Prednisolone. ...

glenelle

•6 years ago

17 Replies

Ooh that smarts!

So the visit yo the grandchildren is going really well and it was all a false alarm on the chickenpox issue, they’re fine. So what was supposed to be a nice...

So the visit yo the grandchildren is going really well and it was all a false al...

Griggser

•6 years ago

12 Replies

Do I really have PMR, should I be here? Rheumatologist suggested dx due to symptoms, but there are other possibilities. A newbie to site.

I have been on prednisone for 15 years as treatment for a number of autoimmune conditions (autoimmune hepatitis, HLA B27- positive spondyloarthropathy,...

I have been on prednisone for 15 years as treatment for a number of autoimmune c...

Joaclp

•6 years ago

16 Replies

"80% of GCA cases have large vessel involvement on autopsy"

I know this sounds alarming, but are our doctors taking the implications for vascular effects and the need for cardiac follow-up seriously? I just had my...

I know this sounds alarming, but are our doctors taking the implications for vas...

NanJean

•6 years ago

18 Replies

Busy Times!!!

Grandsons and their parents are visiting ! 9 in the house. Cousins meeting for the first time. The big boys from Sweden and the baby from Alaska. Thank you...

Grandsons and their parents are visiting ! 9 in the house. Cousins meeting for t...

yogabonnie

•6 years ago

31 Replies

New. definitive diagnosis

Hello to all Its been a long time since I have been on the site, and things have turned I was after 1 1/2 years off pred, and feeling great , for one week....

Hello to all Its been a long time since I have been on the site, and things hav...

galp

•6 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

Vit D test results

Help/advice please

Cannot Find A Doctor That Knows PMR

Back to the daily routine

How long at higher dose?

SLOW MOTION

Struggling for answers 😞😔

Rhubarb! Not Good! Always Learning!!!!

Feeling Dissappointed

Headaches

Swollen ankles.

A Little Help From My Friends

Weather, Arthritis and PMR!!

Delayed release prednisolone

I want to help my daughter

Tired of being Broke

Still waiting to get better

Visit to Dentist Required!

Stopping tramadol

Switching to enteric pred and tapering

Back to Square One

Stiff Ankles

Turmeric benefits?

Cataract op

Needing help and advice

Ooh that smarts!

Do I really have PMR, should I be here? Rheumatologist suggested dx due to symptoms, but there are other possibilities. A newbie to site.

"80% of GCA cases have large vessel involvement on autopsy"

Busy Times!!!

New. definitive diagnosis

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive