I had been enjoying a remission from my PMR symptoms for about a year. I had successfully tapered off of Prednisone about nine months ago and all seemed well.
I am now re-experiencing the prior symptoms always triggered by exercise, usually walking more than 5,000 steps during the day. It begins with feelings of lethargy, chills, then aches and a fever. That night I can expect night sweats that soak my nightgown and sheets.
I am very opposed to going back on Prednisone. I will keep my exercise moderate to avoid triggering a flare but worry about the risks of not treating aggressively.
Anyone have experience in trying to avoid flares without medication?
How long did you have PMR previously?
You may be opposed to going back on to Pred, but if you’re sure it’s a reoccurrence of PMR I doubt if you really have a lot of choice. If you act quickly enough you may be able to get away with a low dose - say 5mg. That may be enough to control your symptoms, but not too much to give you any problems with side effects - I’m assuming that’s why you don’t want to go back on the medication.
You obviously recognise you are taking a risk by not going back on Pred, but it’s entirely your choice of course. But I know what I would do.
Whatever you decide, good luck and please keep us advised of how things go.