I was walking to the market this morning when I had to turn back and go home due to severe pain in my hips caused by walking. I lay down for a bit and felt OK. Then, while sitting, having my lunch, I suddenly felt very sleepy so I decided to have a nap, from which I was awakened by the worst pain in my shoulders I've ever had.
I had been feeling almost like I was in remission after being on weekly shots of Actemra now since May 1st, when I was on 7.5mgs.I had been tapering successfully and this morning I "introduced" 5. 5mgs for the first time, but how can that affect me so soon when I have forgotten to take my dose several times and nothing happened?
I haven't had any extra stressors either. The only thing I can think of is DOMS, as I had been swimming on a regular basis for a few days, but that too, seems odd since I didn't feel like I had pushed myself too far.
Could it be steroid withdrawal? I felt fine on 6mgs where I had stayed for 2 weeks, after tapering with 6.5/6 ( I'm rounding off as I taper a fourth of 2.5 each time) for about 3 weeks.
I've just taken an extra 2.5 mgs. hoping there is an explanation to this set back while on Actemra.