Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,236 posts

All posts for January 2018

Confused

Hi I was diagnosed in Nov 17 GCA/PMR started on 40mg pred. ESR & CRP reduced quite considerably so reduction to 30mg in Dec. Last app with GP last week levels...

Hi I was diagnosed in Nov 17 GCA/PMR started on 40mg pred. ESR & CRP reduced qui...

Kyrenia

•7 years ago

12 Replies

Why do they have to mess with things - without telling us?????

Can anyone tell me how to find the list of my past posts?

PMRpro

Ambassador•7 years ago

25 Replies

Actemra

Good morning! I wanted to report about my Actemra treatment and how I feel after three weeks. I took my first injection on December 21, 2017 for GCA and felt...

Good morning! I wanted to report about my Actemra treatment and how I feel after...

Akino

•7 years ago

8 Replies

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TAP!!

I did it!!!! Went to the Tap dancing class. and It was wonderful. Good for my BRAIN. OMG like doing a crossword puzzle and learning a new language at the same...

I did it!!!! Went to the Tap dancing class. and It was wonderful. Good for my B...

yogabonnie

•7 years ago

8 Replies

It's time to take a leap....

My husband & I have finally concluded that we will be sending all of my health records to John Hopkins Teaching Hospital. After 2 weeks with no return phone...

My husband & I have finally concluded that we will be sending all of my health r...

micheleinnaples

•7 years ago

72 Replies

No dex scan.

As A A was playing havoc with my stomach I asked for a dex scan to see if I actually needed to take it. Gp requested one and I have had a letter from the...

As A A was playing havoc with my stomach I asked for a dex scan to see if I actu...

polymy

•7 years ago

30 Replies

Urgent request for a friend

I remember a post about a good rheumy at St Peters, Chertsey. A friend is in urgent need of a private consultation re GCA Any help please

I remember a post about a good rheumy at St Peters, Chertsey. A friend is in urg...

Pat9442

•7 years ago

3 Replies

Steroid withdrawal symptoms

Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometimes legs very...

Hi, I'm new to this, came off steroids after three and a half years. I had giant...

Jcmcd

•7 years ago

9 Replies

Waiting for Wellness

Those that can't do... rant. https://rantingsofamadwomanblog.com/2018/01/16/waiting-for-wellness/

Those that can't do... rant. https://rantingsofamadwomanblog.com/2018/01/16/wai...

Hidden

•7 years ago

10 Replies

Re positive C ANCA on for 6 months but not for past 3 years

When I was first very ill and not diagnosed correctly by my local hospital I had a Positive C ANCA. Have been under wonderful vasculitis centre since but have...

When I was first very ill and not diagnosed correctly by my local hospital I had...

Persi

•7 years ago

3 Replies

Prednisolone and being manic ++

Hi, I have recently been diagnosed with PMR and wanted some advice and thoughts. I was in the States at the end of September, and had what I now know was a...

Hi, I have recently been diagnosed with PMR and wanted some advice and thoughts...

Hidden

•7 years ago

31 Replies

"Some things in life cannot be fixed. They can only be carried."

What if everything doesen't always happen for a reason? http://www.timjlawrence.com/blog/2015/10/19/everything-doesnt-happen-for-a-reason#mailing

What if everything doesen't always happen for a reason? http://www.timjlawrence...

Hidden

•7 years ago

3 Replies

Reducing my dose the go slow way.

Just to say I have started to reduce by half a mg a time instead of 1mg. I use the go slow way, more or less, reducing once every 10 days and I am feeling...

Just to say I have started to reduce by half a mg a time instead of 1mg. I use ...

Tonysue

•7 years ago

8 Replies

How fast to flares come on?

I have always been able to modify how I feel with exercise. So I do my best to be active. This consists of trying to do 7000 steps a day. On Saturday I...

I have always been able to modify how I feel with exercise. So I do my best to...

RNRN

•7 years ago

6 Replies

Vaccinations

Hi all is it ok to be around someone who has had an hepatitis A injection ? While im on prednisolone down to 12 and half daily .Ive read that it is an...

Hi all is it ok to be around someone who has had an hepatitis A injection ? Whi...

Hidden

•7 years ago

2 Replies

Weighted blankets for adults SENSO-REX™

Anyone try a weighted blanket ? "This unique weighted blanket will wrap you within its safe space. Weighted blankets for adults SENSO-REX™ help unwind, relax...

Anyone try a weighted blanket ? "This unique weighted blanket will wrap you wit...

Hidden

•7 years ago

28 Replies

Prescribed Prolia

Just seen the rheumatologist here in Spain for routine check up after bloods and bi-annual dexa scan. T score for L1-4 was -1.5 in 2015 and now -2.1. T score...

Just seen the rheumatologist here in Spain for routine check up after bloods and...

golflady17

•7 years ago

6 Replies

Foggy head

Have reduced from 7mg to 6mg I am experiencing a foggy head and a strange feeling at the back of my head but not getting any pain in my head I was diagnosed...

Have reduced from 7mg to 6mg I am experiencing a foggy head and a strange feeli...

Rose1bud

•7 years ago

18 Replies

DWP Assessment

The person was so empathetic and considerate. I felt it went well. She understood fully effects of PMR and all my related conditions. I felt at ease and able...

The person was so empathetic and considerate. I felt it went well. She understoo...

Estellemac

•7 years ago

10 Replies

Flare at 8 mg

I was diagnosed in June 2017 with PMR I had been doing great slowly reducing by .5 mg every 2 weeks from 10 to 8 and then bam! At 8 mg pain started again in...

I was diagnosed in June 2017 with PMR I had been doing great slowly reducing by ...

barbthy

•7 years ago

5 Replies

Pred, digestive problems & night sweats

For a number of years (10+ at least) I have had digestive problems (diarrhoea, bloating) and night sweats which have disappeared since taking Pred. I'm just...

For a number of years (10+ at least) I have had digestive problems (diarrhoea, b...

Purplegirl70

•7 years ago

10 Replies

SWEATING PMR/GCA AND TAPERING

I know this subject has come up before on this forum but as I am having MY turn with breaking into grandiose sweats (night and day) I thought I'd 'air'...

I know this subject has come up before on this forum but as I am having MY turn ...

Rimmy

•7 years ago

21 Replies

Pain like tooth infection but really bad over left eye and temple

Hi good morning One and all sorry to say I'm suffering in some pain that seem's to have developed since having very heavy cold flu at first I thought it maybe...

Hi good morning One and all sorry to say I'm suffering in some pain that seem's...

Jura1959

•7 years ago

13 Replies

Eat an apple

Well I have been to my new Rhuemetologist and it was as expected. He gave me a really fast every two weeks go down 2.5 mg. Well I am not doing the full 2.5...

Well I have been to my new Rhuemetologist and it was as expected. He gave me a ...

Hidden

•7 years ago

9 Replies

I've Acclimatised!

It was a mere 5 days ago I was freaking out about taking 80 mg of Pred! I had this worry about growing two heads... well, thank goodness that did not happen!...

It was a mere 5 days ago I was freaking out about taking 80 mg of Pred! I had t...

Hidden

•7 years ago

11 Replies

Just out of interest

Hi Everyone Hope you are managing through the coughs and colds and the flu Jab has worked:) I am now moving toward 4 mgs. My shoulder stiffness has gone. I...

Hi Everyone Hope you are managing through the coughs and colds and the flu Jab...

JulieR2

•7 years ago

14 Replies

PMR update

Hi everyone. I have not posted since Christmas but have been following & commenting when I can. Good advice is usually given by my fellow sufferers who have...

Hi everyone. I have not posted since Christmas but have been following & commen...

Mitziecat

•7 years ago

28 Replies

Some help for cough and nasal congestion

Diagnosed with GCA barely a month ago, I thought I might be stuck with the cough mentioned in my earlier post also accompanied by nasal congestion. So not...

Diagnosed with GCA barely a month ago, I thought I might be stuck with the cough...

JaneEd61

•7 years ago

11 Replies

cataract surgery while on prednisolone

I am currently on 25mg of prednisolone after reducing from 60mg over nearly 2 years but have now developed rapid onset cataracts in both eyes. I am waiting...

I am currently on 25mg of prednisolone after reducing from 60mg over nearly 2 y...

Sorop

•7 years ago

13 Replies

s ki

l have diabetes 2 also pmd lm on 2 types of insulin & & 30 mg of prednisone, which l have been on for 5 months, l am having problems with my eyes ( very...

l have diabetes 2 also pmd lm on 2 types of insulin & & 30 mg of prednisone, w...

storm1234

•7 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2018

Confused

Why do they have to mess with things - without telling us?????

Actemra

TAP!!

It's time to take a leap....

No dex scan.

Urgent request for a friend

Steroid withdrawal symptoms

Waiting for Wellness

Re positive C ANCA on for 6 months but not for past 3 years

Prednisolone and being manic ++

"Some things in life cannot be fixed. They can only be carried."

Reducing my dose the go slow way.

How fast to flares come on?

Vaccinations

Weighted blankets for adults SENSO-REX™

Prescribed Prolia

Foggy head

DWP Assessment

Flare at 8 mg

Pred, digestive problems & night sweats

SWEATING PMR/GCA AND TAPERING

Pain like tooth infection but really bad over left eye and temple

Eat an apple

I've Acclimatised!

Just out of interest

PMR update

Some help for cough and nasal congestion

cataract surgery while on prednisolone

s ki

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