I have not posted since Christmas but have been following & commenting when I can. Good advice is usually given by my fellow sufferers who have had the condition for a while.
I posted about twitching muscles about 2 months ago and following advice I did buy some magnesium spray but only used it a couple of times. I saw my Rheumatologist in December & full blood tests were done. I am not on calcium supplements but take AA. Both calcium, magnesium and inflammation markers were normal. I suffered with some lower back pain, worst on one side, especially after reducing pred. Consultant did a back Xray which was normal & I had a CT scan yesterday but about 2 weeks until I get the results. However, back pain has settled & muscles only twitch occasionally.
I reduced to 5 mg pred on Boxing day & all good. Rheumatologist have told me that from now on will be difficult and to go slow. He has advised next reduction of 5 and 4 for a month, then 4 for a month, the 4 and 3 and continue the pattern monthly. Has anyone done this pattern of reduction? I am gradually increasing my exercise. Pilates weekly and have recently gone back to a gym and got a programme from a personal trainer. He was fascinated to hear about pmr and understood that I would not be pushed beyond my limit.
I am trying to be positive & with an open mind, working back to normality. I love to exercise and have missed my more energetic gym classes. Back to 8-10000 steps a day and sometimes more. I am encouraged by the support on the forum and comment when I can add some value. I was only diagnosed in May and started pred in June at 15 mg so journey so far has been quick & so hoping it will be uneventful.
Positive thoughts are with you all and thank you for all the advice and support on the forum.