Hi, I have recently been diagnosed with PMR and wanted some advice and thoughts.
I was in the States at the end of September, and had what I now know was a TIA. I was wrongly prescribed barbiturates so decided to return back to the UK asap. GP sent me to A & E. CT and MRI showed an old stroke. But when blood tests came back they changed from wanting to send me to the TIA/stroke clinic to investigating my liver not ‘functioning properly’, raised ESR and significant, unexplained weight loss (14 lbs in a matter of about 8 weeks). No one seemed interested that I had pain/stiffness everywhere, couldnt get out of bed, without huge struggle, difficulty walking, and just sitting crying to try and not worry my husband too much. Eventually the Gastroenteritis consultant said no cancer present. And questioned PMR. I went to the GP who prescribed 20 mg of Prednisolone. Within 18 hrs I could get out of bed and was nearly pain free.
However the steroids made me absolutely manic. I have the tidiest flat in Nottinghamshire, very little sleep etc. I wondered if anyone else has had this reaction to steroids. (I think my metabolism must be weird, as I have only had a sleeping pill twice and both times it made me not able to sleep for 12 hours+ (I am now down to 15 mgs and seen the Rheumatologist, who has devised a reduction plan for the steroids. I went down to 15 after having purpura bruising and what seemed like kidney pain. But I am getting quite a lot of pain again.)
Sorry about long story, but I would be so grateful to hear what others have found.