Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,032 posts

All posts for October 2017

Alternative treatments for Polymyalgia Rheumatica

Hi, I am new here and in the process of being diagnosed with polymyalgia rheumatica (PMR) and wondered if there are any particular foods or food supplements...

Hi, I am new here and in the process of being diagnosed with polymyalgia rheumat...

Hidden

•7 years ago

24 Replies

? PMR

Hello. I hope you don't mind me posting . I don't know who else to ask and you all seem so friendly and caring. I am a reasonably...

Hello. I hope you don't mind me posting . I don't know who else to ask and you ...

Hidden

•7 years ago

18 Replies

Wrong info

Sorry, I said I was going down to 20 but meant to write 10 mg. thanks for replies, I will stay on doses for 6 weeks and see how that goes. I'm feeling ok, a...

Sorry, I said I was going down to 20 but meant to write 10 mg. thanks for replie...

Suedeshayes

•7 years ago

4 Replies

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Tapering

Hi. I was replying to you Sandy, but somehow lost my writing. Not quite a computer buff, yet. I started on 15 mg for 3 weeks, then 12.5 for another. Next week...

Hi. I was replying to you Sandy, but somehow lost my writing. Not quite a comput...

Suedeshayes

•7 years ago

10 Replies

New girl on the block

I was diagnosed initially just with GCA in March 2014. Started on 50mg pred. daily with an instant reduction programme. Today I am on 3mg daily and may not get...

I was diagnosed initially just with GCA in March 2014. Started on 50mg pred. dai...

Telian

•7 years ago

17 Replies

Pmr

I am a lady of 70 who developed pmr 18 months ago, I was in so much pain. My crp was 92 and esr was 42. I started pred and I am now down to 5mg shortly to...

I am a lady of 70 who developed pmr 18 months ago, I was in so much pain. My cr...

Brandon47

•7 years ago

3 Replies

flu jab or not?

Hi, Its silly oclock again and i am wide awake being driven nuts with cramp so i thought i would use the time to catch up here and ask a question. Having just...

Hi, Its silly oclock again and i am wide awake being driven nuts with cramp so ...

Hidden

•7 years ago

27 Replies

Doctors get PMR too

68 yo male physician generally healthy until I contracted PMR a few weeks ago - started steroids with good therapeutic effect, now concerned with optimally...

68 yo male physician generally healthy until I contracted PMR a few weeks ago - ...

ARNEMRRM

•7 years ago

87 Replies

Some of us suffer more than others!

as I read these sometimes heart wrenching posts, I realise how fortunate I am, I do have both little buggers, but I have to say, my side effects, and journey...

as I read these sometimes heart wrenching posts, I realise how fortunate I am, I...

Kentishgirl

•7 years ago

4 Replies

Differing blood pressure

Hi Sheffield Jayne, I am new to "posting" but happened to notice your comment about differing blood pressure. I had a first visit to a Rheumatologist about 4...

Hi Sheffield Jayne, I am new to "posting" but happened to notice your comment ab...

maxgarry

•7 years ago

3 Replies

Feel Like Giving Up

Thank you SOOOoooo much for all of the well wishes and support. It has meant a great deal. I'm worried for myself too...I did try counseling for months. I...

Thank you SOOOoooo much for all of the well wishes and support. It has meant a ...

Bonnig

•7 years ago

10 Replies

Doctor vgood

Doctor rang me 😱to say my bones are no worse than last scan. 3 yrs ago. 👍👍 I am amazed what difference 1mg can Make. Done 8 for a fortnight. Yesterday...

Doctor rang me 😱to say my bones are no worse than last scan. 3 yrs ago. 👍👍 ...

Rocketronzy

•7 years ago

8 Replies

Yoga.

Just been to my first yoga class. Fantastic! The leader specialises in people with Parkinson's, and all the rest of the class either have Parkinson's or are a...

Just been to my first yoga class. Fantastic! The leader specialises in people wi...

wobblypat

•7 years ago

5 Replies

Nausea and sweats...

Hello my friends. I’ve not been around much as I’ve been very busy (good sign) and feeling pretty good (good sign). I’ve en struggling between 5-6 for months....

Hello my friends. I’ve not been around much as I’ve been very busy (good sign) a...

Zacsmimi

•7 years ago

13 Replies

Kentishgirl

Hi all! thank you all for your rsponse to my post, the advice, and comforting words, ( as many others know ) are very comforting, no one, but the suffere of...

Hi all! thank you all for your rsponse to my post, the advice, and comforting wo...

Kentishgirl

•7 years ago

2 Replies

Exhausted!

So tired today! just been for a nap but woke up after a couple of minutes. Not sleeping more than 4 hours per night not sure which way is up at the moment. I...

So tired today! just been for a nap but woke up after a couple of minutes. Not s...

Alison300356

•7 years ago

11 Replies

Prof. Dasgupta talk, very interesting

I had the privilege to hear Professor Dasgupta speak at Needham Market community centre this morning. What an interesting and clever man! He spoke for an hour,...

I had the privilege to hear Professor Dasgupta speak at Needham Market community...

JMM17

•7 years ago

44 Replies

Possible Flare

Did too much last weekend, ate food I don’t normally eat (night shades, Chinese, a little dessert). At 16mg Pred for 9th day and have some pains in neck, legs...

Did too much last weekend, ate food I don’t normally eat (night shades, Chinese,...

Sandy1947

•7 years ago

21 Replies

Urinary problem (ongoing)

Further to my previous posts re unitary problem. I have just returned from an appointment with a different Doctor at our Medical Practice due to my condition...

Further to my previous posts re unitary problem. I have just returned from an ap...

Hidden

•7 years ago

6 Replies

Pred dose when travelling

I have PMR and possible GCA - no biopsy because I'd already been on Pred For two months when GCA was suspected. Have been on Pred since beginning of May and...

I have PMR and possible GCA - no biopsy because I'd already been on Pred For two...

Janann25

•7 years ago

13 Replies

Pain in hands

I have had Polymyalgia and GCA for 4 years. I and down to 2mg pred reducing at half a tablet each week then staying on that dose for 4 weeks. I have had a lot...

I have had Polymyalgia and GCA for 4 years. I and down to 2mg pred reducing at h...

Freeman12

•7 years ago

5 Replies

CHOCOLAte lover

HI I've had POLYMYALGIA for ni.ne months,and am now down to 2.5 mg prednisolone after Starting on 25 mg,so don't give up hope,as it usually takes 18 months to...

HI I've had POLYMYALGIA for ni.ne months,and am now down to 2.5 mg prednisolone ...

FreogoTonyo

•7 years ago

11 Replies

Previous autoimmune conditions

Hi, I am new here having been diagnosed with PMR today (elevated inflammatory markers). In my early 40's I was diagnosed with Dermatomyositis and treated with...

Hi, I am new here having been diagnosed with PMR today (elevated inflammatory ma...

SouthHams

•7 years ago

17 Replies

Pain all over?

Hi - can anyone tell me if they have been left with pain ALL OVER after reducing their pred - I have been down to 1 mg now after being on the prednisone train...

Hi - can anyone tell me if they have been left with pain ALL OVER after reducing...

powerwalk

•7 years ago

15 Replies

Kentishgirl

Hi all ! sorry I have not been on for a while, been fighting our dredded terrible two's, pmr/gca! these two devils jumped me a year ago, I started on 40mg's...

Hi all ! sorry I have not been on for a while, been fighting our dredded terribl...

Kentishgirl

•7 years ago

13 Replies

Pred setback GCA

Hello. You are my first port of call as you are all so knowledgable and take time to share your advice and own experiences. I was diagnosed with GCA about 12...

Hello. You are my first port of call as you are all so knowledgable and take tim...

GrannyReid

•7 years ago

20 Replies

fibromyalgia

HI All Just a little update, if anyone has seen my posts about my Rheumy they may remember he gave me no time and did not listen. Moving on I have seen my new...

HI All Just a little update, if anyone has seen my posts about my Rheumy they ma...

lesley2015

•7 years ago

9 Replies

Herbal treatments?

I'm new here and to PMR. I was buying herbs for my horse's arthritic hock and general well-being and thought "why don't I use them for PMR!" Has anyone...

I'm new here and to PMR. I was buying herbs for my horse's arthritic hock and g...

elbik

•7 years ago

19 Replies

The damage unchecked PMR can do........

My MRA scan result shows what appears to be stenosis in my Aorta. That is a narrowing of the Aortic Valve. Caused by inflammatory Vasculitis. This is damage...

My MRA scan result shows what appears to be stenosis in my Aorta. That is a narr...

SheffieldJane

•7 years ago

81 Replies

Beginnings of a flare?

Hi everyone. I'm GCA since March, positive biopsy at time of diagnosis and CRP was 141. I was started on 40 mg Pred and within days symptoms settled and CRP...

Hi everyone. I'm GCA since March, positive biopsy at time of diagnosis and CRP w...

Judy211

•7 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

Alternative treatments for Polymyalgia Rheumatica

? PMR

Wrong info

Tapering

New girl on the block

Pmr

flu jab or not?

Doctors get PMR too

Some of us suffer more than others!

Differing blood pressure

Feel Like Giving Up

Doctor vgood

Yoga.

Nausea and sweats...

Kentishgirl

Exhausted!

Prof. Dasgupta talk, very interesting

Possible Flare

Urinary problem (ongoing)

Pred dose when travelling

Pain in hands

CHOCOLAte lover

Previous autoimmune conditions

Pain all over?

Kentishgirl

Pred setback GCA

fibromyalgia

Herbal treatments?

The damage unchecked PMR can do........

Beginnings of a flare?

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