Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,306 members • 38,043 posts

All posts for October 2017

“Cast adrift" – thank goodness for the Forum Lifeboat!

I got to see the Rheumatologist the other day. My GP had agreed that after 2½ years I’m going backwards (back to my 10mg pred dose of 2 years ago and the worst...

I got to see the Rheumatologist the other day. My GP had agreed that after 2½ ye...

•7 years ago

Newbie sufferer - questions, questions, questions!

Hello everyone! I was diagnosed as a result of comprehensive blood tests, very quickly (6 days) after my first appointment with my nurse practitioner on 6...

Hello everyone! I was diagnosed as a result of comprehensive blood tests, very ...

•7 years ago

Pred 12 years...Hydrocortisone 3 months...back to Pred.............

After 3 hellish months of Hydrocortisone, for Addison;s Disease, I have asked my Endocrinlogist to put me back on Pred, as I can no longer feel 'manic'. This...

After 3 hellish months of Hydrocortisone, for Addison;s Disease, I have asked my...

•7 years ago

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Hi Just concerned as now experiencing slight discomfort in hips and shoulder neck nothing I need to take pain relief for. Usually late at night or early in...

Hi Just concerned as now experiencing slight discomfort in hips and shoulder ne...

•7 years ago

Worried about PMR & GCA

Hi, I am a 47 year old man who is pretty scared about the prospect of having both PMR & GCA. I'm new to this forum so haven't posted here before. I just wanted...

Hi, I am a 47 year old man who is pretty scared about the prospect of having bot...

•7 years ago

light at the end of the tunnel

Good News! I have only posted on this site two or three times, but I've read lots of other posts and I would like to share my good news - I am hopefully free...

Good News! I have only posted on this site two or three times, but I've read lot...

•7 years ago

Reoccurrence of unpleasant eye symptom.

I was diagnosed with PMR in May 2016 ( may have had it for several months). I have tapered down to 7 mgs and hit problems when I try to DSNS to 6 mgs. Apart...

I was diagnosed with PMR in May 2016 ( may have had it for several months). I ha...

•7 years ago

Random pins + needles

For past few days I've had pins + needles down my right arm, occasionally left arm too. Just curious and wonder if it has anything to do with PMR. There may be...

For past few days I've had pins + needles down my right arm, occasionally left a...

•7 years ago

A plea and I know it is a pain..........

When you are posting a question, it is really helpful, if you put the date of diagnosis and how much pred in mg's and if on Steroid Sparing Agent. eg PMR...

When you are posting a question, it is really helpful, if you put the date of di...

•7 years ago

Polymyalgia

just diagnosed. Any tips to help with the pain/mobility?

just diagnosed. Any tips to help with the pain/mobility?

•7 years ago

Slow Taper Calendar

Hello all. I'm on 5mg pred and stable after a good few weeks and think I'm fit to take next step in taper. I had been doing a .25mg a week drop but went a bit...

Hello all. I'm on 5mg pred and stable after a good few weeks and think I'm fit t...

•7 years ago

Leflunomide

Off to see consultant today. He says he wants to try Leflunomide if I haven't got down to 10mg pred. I've just got to 10.5 but struggling. Anyone else been...

Off to see consultant today. He says he wants to try Leflunomide if I haven't go...

•7 years ago

PMR update on the 20 mg dose.

After a bad week and Friday being really discouraging, I got ahold of my dr and asked if I could go up to 20mg from my starting dose of 15...his office called...

After a bad week and Friday being really discouraging, I got ahold of my dr and ...

•7 years ago

Update on my first year with GCA

Hi this time last year I was diagnosed with GCA started on 60mg Steriods and tapered down to 3mg have to say this forum has been my life saver plus the fact I...

Hi this time last year I was diagnosed with GCA started on 60mg Steriods and tap...

•7 years ago

Getting out of breath???

Hi all, I have got PMR have had this for about 5 years, I have put on a lot of weight, and so have noticed when on holiday where my husband and I do love...

Hi all, I have got PMR have had this for about 5 years, I have put on a lot of w...

•7 years ago

Black eye

I keep on developing a black eye during the day - this started happening 5 or 6 days ago. It is also quite red around it though it doesn't hurt. When I wake...

I keep on developing a black eye during the day - this started happening 5 or 6 ...

•7 years ago

Hip pain

Please can anyone tell me if this could be PMR related or not? One day in August I bent over to pick something up off the floor and felt an almost tearing pain...

Please can anyone tell me if this could be PMR related or not? One day in August...

•7 years ago

I'm new.

Hello all you good people,I've been reading your posts now for sometime,all very helpful.Ive been diagnosed since February and immediately doctor knew what it...

Hello all you good people,I've been reading your posts now for sometime,all very...

•7 years ago

PMR shaky legs

Down to 5mg preds now for 2 weeks & legs are weaker & unsteadier than ever. Has anyone else experienced this?

Down to 5mg preds now for 2 weeks & legs are weaker & unsteadier than ever. Has ...

•7 years ago

Fibromyalgia?

Hello. I have had PMR for 4 yrs. Reducing prednisone ,now on 3 Mgms,this is what Rhematologist wants me to do,my crp and viscosity have been normal ,and have...

Hello. I have had PMR for 4 yrs. Reducing prednisone ,now on 3 Mgms,this is wha...

•7 years ago

Rapid heart beat

Like many people in this "club", my journey has been anything but straight forward. I was diagnosed with PMR in May and his year and prescribed 15mg Pred...

Like many people in this "club", my journey has been anything but straight forwa...

•7 years ago

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