Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,031 posts

All posts for October 2017

Angiogram

I get angina attacks. On 25mgs Prednisone and have had third Actemra shot . I should get an angiogram. Anyone here that can share that experience that had...

I get angina attacks. On 25mgs Prednisone and have had third Actemra shot . I ...

Leeleep

•7 years ago

14 Replies

Could this be GCA?

Down to 3 mg pred after 15 months of PMR. Doc sent me to neurology as having blurred vision. Getting no temple or jaw pain and physical tests done by (lovely)...

Down to 3 mg pred after 15 months of PMR. Doc sent me to neurology as having bl...

kezzybabes

•7 years ago

9 Replies

Sleep Apnoea (the results are in)

Here I was, last Thursday evening. This was amazingly uncomfortable and not surprisingly I didn't sleep well. I also had a monitor on my left wrist which...

Here I was, last Thursday evening. This was amazingly uncomfortable and not sur...

IdasMum

•7 years ago

15 Replies

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Getting of depomedrol

Hi folks, I was diagnosed about 3 years ago with PMR and started on oral pren (20mg a day from memory) after gaining a lot of weight and hating all the side...

Hi folks, I was diagnosed about 3 years ago with PMR and started on oral pren (2...

Madame

•7 years ago

2 Replies

Getting there slowing

I have not posted for a while diagnosed with gca last Feb had biopsy 6 wks bfore daughters wedding. Had great day. Just a update i am now on 5mg of predisone...

I have not posted for a while diagnosed with gca last Feb had biopsy 6 wks bfore...

160916

•7 years ago

3 Replies

Hate being ill

Hi I'm 48 and have recently been diagnosed with this horrible illness along with GCA I am on 40mg of Pred a day, I don't feel any change in my symptoms, should...

Hi I'm 48 and have recently been diagnosed with this horrible illness along with...

Tarryn28

•7 years ago

13 Replies

Burning feet in bed at night and sore heels when I have my feet up.

This odd symptom appears to be worsening, my feet are scarlet, dry and they burn disturbingly at night. My heels hurt if I put my feet up and have any pressure...

This odd symptom appears to be worsening, my feet are scarlet, dry and they burn...

SheffieldJane

•7 years ago

16 Replies

Unwanted hair

No, not the Pred beard or sideburns, but a bit more unexpected. For two weeks I was getting increasing pain in my biopsy wound six months after the event. It...

No, not the Pred beard or sideburns, but a bit more unexpected. For two weeks I ...

SnazzyD

•7 years ago

8 Replies

Hello everyone, I am new here, I am 3 weeks into Pred

Hi everyone, 1st post, 3 weeks into diagnosis and start of Pred (learned the jargon very quickly) I have a docs app on Friday, I am expecting him to reduce to...

Hi everyone, 1st post, 3 weeks into diagnosis and start of Pred (learned the jar...

Jo1947

•7 years ago

22 Replies

supplements

Im currently taking Turmeric and Fish oil...high quality...anyone use Olive Leaf extract?? supposed to be good for arterial health among other claims.....

Im currently taking Turmeric and Fish oil...high quality...anyone use Olive Leaf...

daworm

•7 years ago

15 Replies

Update

Hello As some of you were interested in my heart problem I thought I'd give you an update, I went for my stress test yesterday, [ cancellation ] so that was...

Hello As some of you were interested in my heart problem I thought I'd give you...

bowler

•7 years ago

8 Replies

Steroid tapering withdrawal symptoms?

(I originally posted this as a further comment on an older post and then it occurred to me that I should post it as new so apologies if the duplication is...

(I originally posted this as a further comment on an older post and then it occu...

AnnS

•7 years ago

25 Replies

Link to study of nighttime prednisone taking

http://www.rheumatologynetwork.com/news/nighttime-prednisone-could-address-morning-stiffness-ra Good read, goes against the norms most Dr's think is right, as...

http://www.rheumatologynetwork.com/news/nighttime-prednisone-could-address-morni...

daworm

•7 years ago

14 Replies

Diabetes, blame it on pred?

I have GCA and have been taking pred for three years, down to 10mgs now. I've just had a letter from my GP practice inviting me to ICS Health & Wellbeing...

I have GCA and have been taking pred for three years, down to 10mgs now. I've ju...

Roy46

•7 years ago

15 Replies

OA symptoms back

I was never formally diagnosed with OA , only in my thumbs, but had assumed that the pain in most of my joints at night, especially , was due to OA.I used to...

I was never formally diagnosed with OA , only in my thumbs, but had assumed tha...

Gaijin

•7 years ago

20 Replies

PMR/GCA Support East Anglia

Are holding a meeting on Friday, 20th October, at Needham Market Community Centre.It starts at10.30am. The speaker is Professor Bhaskar Dasgupta of Southend...

Are holding a meeting on Friday, 20th October, at Needham Market Community Centr...

Vanner460

•7 years ago

3 Replies

Feel like giving up

I'm really struggling..plus reading all these posts from others who are also struggling...makes me even more sad. I wish i was strong enough to help myself...

I'm really struggling..plus reading all these posts from others who are also str...

Bonnig

•7 years ago

52 Replies

Prednisone working!

84 yr old female with PRM. Returned after 12 yrs. Currently on prednisone 20mg. Under care of primary md. First experience in 2005 lasted 1 yr. stopped...

84 yr old female with PRM. Returned after 12 yrs. Currently on prednisone 20mg. ...

Lucybud3

•7 years ago

12 Replies

Prednisone side effects

Hi everyone, I was diagnosed with PMR last month and have been suffering with Fibro/PMR/shortens since Feb. Just did not realize I had Polymyalgia until three...

Hi everyone, I was diagnosed with PMR last month and have been suffering with Fi...

pmrkitty

•7 years ago

17 Replies

Not sure if its PMR

So I saw the rheumatologist last week he did x ray and lots of prodding and getting me to do different excercises and concluded not pmr but frozen shoulder....

So I saw the rheumatologist last week he did x ray and lots of prodding and gett...

am64

•7 years ago

21 Replies

Preventing loss of bone density????

https://www.betterbones.com/bone-nutrition/7-superfoods-that-help-decrease-bone-breakdown/ Now, those of you who know me will be surprised at me mention...

https://www.betterbones.com/bone-nutrition/7-superfoods-that-help-decrease-bone-...

PMRpro

Ambassador•7 years ago

7 Replies

SEE MY G P TOMORROW Morning

Hi everyone,. After 3 days on 25mg and now 15 days on 15 mg I am wondering what will happen. Will he try to lower the dose and if so should I agree? The...

Hi everyone,. After 3 days on 25mg and now 15 days on 15 mg I am wondering what...

Cheshy72

•7 years ago

12 Replies

Yoga

I have just been researching, and considering yoga. As my CNSVasculitis has left me unable to walk, ataxia and shoulder problems severely restrict many forms...

I have just been researching, and considering yoga. As my CNSVasculitis has left...

wobblypat

•7 years ago

26 Replies

Symptoms of PMR similar to some with Parkinsons ?

Hello everyone on this my 'favourite' forum for all aspects and issues re PMR & GCA I was just reading an article about Parkinsons disease - about which I know...

Hello everyone on this my 'favourite' forum for all aspects and issues re PMR & ...

Rimmy

•7 years ago

10 Replies

Alendronic Acid

Advice on Alendronic acid please Saw a different GP recently, the other one was on holiday. She told me to cut down on Pred from 15mg to 12mg and also to...

Advice on Alendronic acid please Saw a different GP recently, the other one ...

Maryis80

•7 years ago

13 Replies

Best Time to take Prednisalone

Bit of history - I am a type 2 diabetic and was not on insulin until needed preds. Began on 60mg of preds nearly 16months ago and am not on 17mg. Being treated...

Bit of history - I am a type 2 diabetic and was not on insulin until needed pred...

pms543

•7 years ago

13 Replies

Some kind of flate

To give some background. Ill since Nov 16 query GCA. Managed to go fro 40mg pred to 15mg and around a month ago knee pain and pains in hips, buttocks thighs...

To give some background. Ill since Nov 16 query GCA. Managed to go fro 40mg pre...

Elaine-W

•7 years ago

11 Replies

Tagamet

My doc wants me to use these. Just preventative fir prednisone causing acid problems. Those who do, are you doing these 3 times a day? After 6 months on...

My doc wants me to use these. Just preventative fir prednisone causing acid pro...

Leeleep

•7 years ago

6 Replies

Good days Bad days

I`m not long into this very strange nerve problem. I`m quickly coming to the understanding that if I try mind over matter, physically, boy do I pay for it...

I`m not long into this very strange nerve problem. I`m quickly coming to the un...

Oldman-1

•7 years ago

13 Replies

Any Actemra experience?

Hi all, thanks for the info, support and chuckles on this forum. It has been invaluable! I am 58 years young and had PMR for 6 years, going along nicely on 4-5...

Hi all, thanks for the info, support and chuckles on this forum. It has been inv...

PMR2011

•7 years ago

30 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

Angiogram

Could this be GCA?

Sleep Apnoea (the results are in)

Getting of depomedrol

Getting there slowing

Hate being ill

Burning feet in bed at night and sore heels when I have my feet up.

Unwanted hair

Hello everyone, I am new here, I am 3 weeks into Pred

supplements

Update

Steroid tapering withdrawal symptoms?

Link to study of nighttime prednisone taking

Diabetes, blame it on pred?

OA symptoms back

PMR/GCA Support East Anglia

Feel like giving up

Prednisone working!

Prednisone side effects

Not sure if its PMR

Preventing loss of bone density????

SEE MY G P TOMORROW Morning

Yoga

Symptoms of PMR similar to some with Parkinsons ?

Alendronic Acid

Best Time to take Prednisalone

Some kind of flate

Tagamet

Good days Bad days

Any Actemra experience?

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