Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,496 members • 38,468 posts

All posts for October 2017

De-lurking!

I’ve been reading and inwardly digesting this forum since December '16. Neck and back/scapula/rib ache from Octoberish, down left shoulder into arm, fatigue (I...

I’ve been reading and inwardly digesting this forum since December '16. Neck and...

Soraya_PMR

•7 years ago

36 Replies

Today's question #2/2

What is your opinion about steroid dose: should we (a) be using the minimum dose required to achieve maximum relief of symptoms, or instead, should we (b) be...

What is your opinion about steroid dose: should we (a) be using the minimum dose...

ARNEMRRM

•7 years ago

42 Replies

Turmeric info

Which ever way you choose to use, it's good for you..fish oil too......

daworm

•7 years ago

7 Replies

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Headaches with Prednisone

Hi, have been tapering off Prednisone AGAIN. Now having headaches almost all the time. Burning pain type on top of head and when bad the pain goes downward...

Hi, have been tapering off Prednisone AGAIN. Now having headaches almost all th...

Robinre

•7 years ago

9 Replies

Second blood test today

Hi all you lovely people Many thanks for your responses to my first posts. I have been back to doctors today and had a second set of blood tests after 3 weeks...

Hi all you lovely people Many thanks for your responses to my first posts. I hav...

Alison300356

•7 years ago

6 Replies

Feeling Like Chicken Lickin' - 'The Sky Is Falling On My Head Too'

Hi All, having had the most wonderful 'first time' cruise on the Azamara Quest (highly recommend) in August, have returned to Earth with a bit of a bang!...

Hi All, having had the most wonderful 'first time' cruise on the Azamara Quest (...

Marilyn1959

•7 years ago

19 Replies

GCA Alterma treatment

PMR Dx May 2016. Down to prednisone 6mg for 6 weeks . Few sniffles sneezes sore throat 1 1/2 week ago. Woke up week ago Sunday occipital to frontal headache,...

PMR Dx May 2016. Down to prednisone 6mg for 6 weeks . Few sniffles sneezes sore ...

LCHRISTOP10

•7 years ago

16 Replies

Newbie under 50 years old

Hi, I was diagnosed with PMR about 3 weeks ago and have been looking through the posts on here to try and find out more about the condition and the prognosis....

Hi, I was diagnosed with PMR about 3 weeks ago and have been looking through the...

Purplegirl70

•7 years ago

11 Replies

Piriformis Part 2

This is a question for those of you who answered my last post on Piriformis Syndrome saying you have suffered from the condition or similar symptoms. How long...

This is a question for those of you who answered my last post on Piriformis Synd...

Estellemac

•7 years ago

6 Replies

Methotrexate

I'd love to hear from those of you who have experience with taking Methotrexate (MTX). My Rheumatologist has prescribed MTX for me saying "we must get you off...

I'd love to hear from those of you who have experience with taking Methotrexate ...

julianne3

•7 years ago

10 Replies

Breast pain

Feels like PMS but I'm 73 and been tapering Prednisone but today took 4th shot Actemra . Any other ladies getting thus side effect. Taking shit weekly....

Feels like PMS but I'm 73 and been tapering Prednisone but today took 4th shot A...

Leeleep

•7 years ago

18 Replies

?PMR

Hello . Reporting back from doctors visit this morning. Lovely, sympathetic woman trainee GP. Conferred with senior GP who was dubious due to normal blood...

Hello . Reporting back from doctors visit this morning. Lovely, sympathetic wom...

Hidden

•7 years ago

5 Replies

d

Hi everyone I have posted here before and had helpful advice, I reduced from 60mg last year and managed to get to 15mg but when going down to 12 1/2 mg had a...

Hi everyone I have posted here before and had helpful advice, I reduced from 60m...

Sorop

•7 years ago

10 Replies

Research Roadshow in Kirkcaldy just days away!

Just 9 more sleeps to our Rheuma Research Roadshow in Kirkcaldy, Fife, on 1st November. And just 9 more places available. Interested? Visit...

Just 9 more sleeps to our Rheuma Research Roadshow in Kirkcaldy, Fife, on 1st No...

Polywotsit

PMRGCAuk team member•7 years ago

4 Replies

Two-fold help please

Hi wise ones! I need some advice please. I was diagnosed with PMR back in March and had successfully reduced from 20-10mg, at 2.5 intervals with several weeks...

Hi wise ones! I need some advice please. I was diagnosed with PMR back in March...

DebbieF1603

•7 years ago

13 Replies

Club Zero membership has expired

Hi Folks It turns out my post of 12 days ago was rather premature. Today I have been diagnosed with PMR, not something I thought I would get having got all the...

Hi Folks It turns out my post of 12 days ago was rather premature. Today I have ...

allykat

•7 years ago

9 Replies

First visit to doctor since starting with PMR

Hi everyone, I had my first visit with doctor after 4 weeks on 15mg, he wants me to take 15mg for 4 more weeks, then blood test. If he feels it’s ok, wants me...

Hi everyone, I had my first visit with doctor after 4 weeks on 15mg, he wants me...

Jo1947

•7 years ago

22 Replies

When you respond well to Prednisone, exactly how good are you?

I am wondering what limitations I might have once I achieve my maximum steroid benefit, and wondering how many months on Prednisone it might take to get there....

I am wondering what limitations I might have once I achieve my maximum steroid b...

ARNEMRRM

•7 years ago

28 Replies

Grateful

Just want to say I’m grateful for finding this site and all the information n sharing here.

Just want to say I’m grateful for finding this site and all the information n sh...

MaryA_

•7 years ago

6 Replies

PMR Flare-up w/ Normal Bloodwork

Hi, I was wondering if anyone has had the experience of feeling a major PMR flare up with bloodwork coming back within normal range for inflammation markers?...

Hi, I was wondering if anyone has had the experience of feeling a major PMR flar...

PMRinsdca

•7 years ago

6 Replies

You were right

Answers to my last post made me realize you are right! I have not been taking PMR seriously enough. Unfortunately about that time my incredible primary...

Answers to my last post made me realize you are right! I have not been taking P...

Grammajoy

•7 years ago

14 Replies

Hot flushes (and gratuitous baby photo).

I know we've discussed this before and I am much more in control of hot flushes now. I was wondering.... I moved smoothly from menopausal hot flushes to...

I know we've discussed this before and I am much more in control of hot flushes ...

IdasMum

•7 years ago

6 Replies

Gaul stones. 😬

One of my fears 😱is making more stones. I have had a great deal of problems in the past. Had my Gaul bladder removed also a stone removed from the bile duct....

One of my fears 😱is making more stones. I have had a great deal of problems in...

Rocketronzy

•7 years ago

6 Replies

Signs and Symptoms of Adrenal activity?

I have tapered to 9mg, down from 9.5. I'll be on this dosage for two or three weeks, depending then, per my Dr. will alternate 9.0 and 8.5 for a bit before...

I have tapered to 9mg, down from 9.5. I'll be on this dosage for two or three w...

Hindags

•7 years ago

12 Replies

Piriformis Syndrome

Has anyone else out there experienced this condition? Is it one of the things related to PMR? The Piriformis muscle is in the buttock area and causes pain as...

Has anyone else out there experienced this condition? Is it one of the things r...

Estellemac

•7 years ago

48 Replies

Breathing difficulties

Was diagnosed with PMR about 4 years ago. On Prednisolone, up & down 20-3... Now on 9 mg. I keep getting chest pain, short of breath, palpetasion.... Heart...

Was diagnosed with PMR about 4 years ago. On Prednisolone, up & down 20-3... Now...

mepoly20

•7 years ago

11 Replies

Finally, a diagnosis!

Greetings to you all. My name is Tina, I'm 60, I'm female. I've had a challenging 12 months of thinking "I feel so old, if this is old age, God take me soon"....

Greetings to you all. My name is Tina, I'm 60, I'm female. I've had a challengi...

LeafyLytham

•7 years ago

24 Replies

Excessive hot flushes

Does anyone have any solution to the excessive sweating problem.I can just suddenly become very hot and sweating causing my hair to be dripping wet and body to...

Does anyone have any solution to the excessive sweating problem.I can just sudde...

lyndamcw

•7 years ago

10 Replies

The Lighter Side: 'Good' News? 'Uncle' MB's Medical Reports following DXA Scan & GP Letter ;-)

Greetings on a Wild and Windy Weekend in the UK, to You Lot of Polymalingerers and Pred-Taperers Worldwide :-) You might like to know about the results of the...

Greetings on a Wild and Windy Weekend in the UK, to You Lot of Polymalingerers a...

markbenjamin57

•7 years ago

75 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

De-lurking!

Today's question #2/2

Turmeric info

More questions: #1/2

Headaches with Prednisone

Second blood test today

Feeling Like Chicken Lickin' - 'The Sky Is Falling On My Head Too'

GCA Alterma treatment

Newbie under 50 years old

Piriformis Part 2

Methotrexate

Breast pain

?PMR

d

Research Roadshow in Kirkcaldy just days away!

Two-fold help please

Club Zero membership has expired

First visit to doctor since starting with PMR

When you respond well to Prednisone, exactly how good are you?

Grateful

PMR Flare-up w/ Normal Bloodwork

You were right

Hot flushes (and gratuitous baby photo).

Gaul stones. 😬

Signs and Symptoms of Adrenal activity?

Piriformis Syndrome

Breathing difficulties

Finally, a diagnosis!

Excessive hot flushes

The Lighter Side: 'Good' News? 'Uncle' MB's Medical Reports following DXA Scan & GP Letter ;-)

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