PMRGCAuk
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flu jab or not?

Hi,

Its silly oclock again and i am wide awake being driven nuts with cramp so i thought i would use the time to catch up here and ask a question.

Having just had a really bad cold i wondered if i should be getting a flu jag? I've been on pred for 2 years now for pmr and gca and never has the doc suggested a flu jag so its probably not available as i dont have any other illness and although i often feel like i am 90 i am just 56.

Are most people offered the jag ? what are the pros and cons?

thanks in advance of you advice.

20 Replies
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I am up too xx for years up , down it’s awful cos you never catch up on your sleep xx

I am going for the flu jab x had it before so touch wood it will be ok again x

I am starting new tablets soon them that begin with a M x and only take yhem once a week x

I am on 50mg of pred just came down yesterday from 60mg so hopefully when they start and I keep coming down it might help my sleep xx

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What is a flu jab?

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It is the influenza vaccine. I am having mine today, on doc’s advice. It is not a live vaccine so it can’t actually give you the flu, but it does tend to make you feel a bit grotty for a few days. The doc says better that ‘though than getting the flu on top of having PMR.

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Yep, had that jab and no problems (better than PMR+FLU - that would be very uggg).

(PMR only and on 7.5mg - actully stuck on 7.5mg for about 4 months now).....

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Only you can decide (or your doctor).

I had mine yesterday (in advance of beginning Mx treatment). I was somewhat anxious as I had avoided it in previous years when I was working in an environment where I was offered one.

It hardly hurt and I didn't have any after effects. I wondered whether my 13mg Pred dose kept any effects at bay.

I am waiting for the pharmacie to receive the pneumo vacs and hope that is as painless.

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I'm having my flu jab today. I had it last year and had no problems. The previous year( my first with PMR) I wasn't offered the vaccine and unfortunately I got flu when I was at about 8mg. I have never felt as Ill in my life. Along with the usual high temperature / shivering etc I had the most frightening and awful nausea which lasted for several hours during the night when my body wasn't coping at all. I never want to experience that again.

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Hi There

I had my flu jab on Monday with no side affects. I have been having it for years though due to working in the NHS.

Good luck

Cat

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I have GCA and polymyalgia and am on 7mg pred do my doc have me the flu jag no problem and because I am on less than 20mg he also have me the shingles jag.

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So long as you are over the cold then yes. You will be asked by the nurse if you have had a cold within the last week.

I had mine on Wed, been having it for years (was my hubby’s carer) both post, during and pre GCA no problem!

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Hi Marie, on another subject...Have you ever heard of anyone having issues with the Actemra because they alas I take hormone replacement? I had the very sore breast and letdown reflex around my 3rd infusion...bad enough that I quit the hormones cold turkey. Now, 7 weeks later I am a mess as far as the hormone withdrawal. Rheumy says no connection to the Actemra...but I know a tight bra when I feel one during the infusion!

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My doctor was adamant about it. One being that I have PMR and on a biologic and secondly that I work in education. Had Mine last week. My doctor advised me not to taper for two weeks after the injection. I had no side effects. Also gave me a feeling of protection 😊

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I have the flu jab, was told to have this by my rheumatologist and GP, and have been fine. This year I did get the full flu symptoms by that evening but woke up to it all gone. I am 69. Think all should have it with this illness, particularly when on the high doses, I'm down to 3mg and will always have it

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The flu jab is recommended, especially with our lower immune system.

Each year the flu jab is different and will or will not save you from certain strains of flu. A couple of weeks ago I had my shot at the same time as my Actemra infusion and then I had “flu” for a week....first time I have ever had a reaction. My advice: get the shot, expect the no reaction....be prepared to maybe not feel great for a week😊

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You fall into a priority category to have the flu jag ( are you Scottish?) you have a compromised immune system and flu would hit you hard. It isn't a live vaccine so there isn't really a downside. Having said that I felt seedy for 24 hours after mine but Paracetamol helped.

Try a Magnesium supplement, it's supposed to help prevent cramp.

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Sheffield Jane interested to see magnesium may help with cramps. I've had cramp in legs quite often recently, more so since I've gone down to 12.5 of pred, but compared to other people's problems, feel I can't complain. Will look for magnesium supplement though Thanks

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You can also get sprays and you can put Epsom Salts in the bath, even just a deep footbath will help.

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I'll try that. Thank you again!

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Anyone on pred should be considered at risk and offered the jag (shot, injection, vaccination depending on your nationality). But it isn't particularly expensive so even if you have a stingy GP I'd have it.

I had real full-blown flu once - I have no desire to have it again and even if the flu vaccine doesn't cover all eventualities it reduces the chances of getting it. The one year my husband didn't have his shot (because he had bronchitis at the time and then forgot) he got flu which progressed to pneumonia - which led to a rather edgy 6 months until the patch of fluid on his lung had gone away...

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I had flu for 2000 new year, never before and not since. I rarely take anything but of late have picked up too much so time I got flu vacs. Doctor probably won't complain but if he does Boots do it so that's easy.

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Hi

Had mine last week and so far so good. Mine give at work although nurse had not heard of PMR and had to check if I could be given it xx

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