Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2017

Aint this a kick in the head

Hello Update MS MRI from sept that i was told was normal, Was very much not. Had I not gone to er for low potassium, Inwould have and no one told me.....

Hello Update MS MRI from sept that i was told was normal, Was very much n...

galp

•7 years ago

11 Replies

Gluten sensitivity and PMR

Just posting this here for everyone's interest: https://www.glutenfreesociety.org/gluten-and-the-autoimmune-disease-spectrum/

Just posting this here for everyone's interest: https://www.glutenfreesociety.or...

Slosh

•7 years ago

8 Replies

Steroid side effects?

I am so grateful to this wonderful group who offer so much support. Hope you don't mind helping in my latest issues. I've been on pred since December for PMR...

I am so grateful to this wonderful group who offer so much support. Hope you do...

Jude62

•7 years ago

8 Replies

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Docs time

Can someone explain how 10mins to talk to your doc about your problems you have when you have complicated medical problems at least four of them ie kidney ,...

Can someone explain how 10mins to talk to your doc about your problems you have ...

Rusty8

•7 years ago

7 Replies

Re is it a flare and alendronic acid.

Had consult with GP and X Ray shows fracture in vertebra, not compression. Pain when he felt the vertebra was minimal compared to when he last examined there....

Had consult with GP and X Ray shows fracture in vertebra, not compression. Pain ...

Deemar

•7 years ago

1 Reply

Nervous about taking Alendronic acid

Hi, I'm new! I am wondering whether everyone is taking Alendronic acid with their Pred? I was diagnosed with GCA six weeks ago...no eye problems so started on...

Hi, I'm new! I am wondering whether everyone is taking Alendronic acid with thei...

Judy211

•7 years ago

13 Replies

Dosage

Morning moaning Millie again I'm so pleased with this site it has helped me a lot I don't feel like I'm on own anymore so I thought I would ask this question...

Morning moaning Millie again I'm so pleased with this site it has helped me a l...

Rusty8

•7 years ago

10 Replies

Pins and needles in hand

For the last few days have been experiencing pins and needles in left hand. I have been tapering pred and down now to 10mg. Fortnight ago got blood test done...

For the last few days have been experiencing pins and needles in left hand. I ha...

160916

•7 years ago

4 Replies

another hurdle

Hello friends Well, the tingling i was experiencing got worse, became difficult to swallow, and blood pressure thru the roof.. Due to fear of stroke with gca...

Hello friends Well, the tingling i was experiencing got worse, became difficult ...

galp

•7 years ago

6 Replies

AA

AA been on it 2 yrs and in the last 8mths have had to have 5 teeth removed fed up of this

AA been on it 2 yrs and in the last 8mths have had to have 5 teeth removed fed u...

Heartache402

•7 years ago

18 Replies

Steps

I am taking part in a research project that is looking at the fatigue we experience with PMR/GCA. As part of it I wear a monitor that counts my steps. They did...

I am taking part in a research project that is looking at the fatigue we experie...

SheffieldJane

•7 years ago

21 Replies

Still wondering about effects of biopsy

Hello I am trying hard to not overthink... Some of the sensations I am experiencing, that have caused me to increase pred from 25 to 40, I am really starting...

Hello I am trying hard to not overthink... Some of the sensations I am experienc...

galp

•7 years ago

6 Replies

Flare

Not written for quite a while but read every day and appreciate all comments, thanks to all who contribute. Diagnosed Jan 2015 managed to get to 5 mgms...

Not written for quite a while but read every day and appreciate all comments, th...

AMG38

•7 years ago

4 Replies

Shortness of breath

Can anyone shed any light has to why I get very short of breath is it a possible side effect of the steriod pred having been on it since New year having been...

Can anyone shed any light has to why I get very short of breath is it a possible...

bigg8

•7 years ago

9 Replies

Is it polymyalgia or the steroids that are making me feel so ill?

I have recently been disgnosed , and was put on 15 mg per day of steroids .This was reduced to 10 mg after only 4 weeks as I was feeling unwell .For about a...

I have recently been disgnosed , and was put on 15 mg per day of steroids .This ...

Tiny_Tim

•7 years ago

38 Replies

First Rheumatology appointment after A&E

After six weeks lonely wait (apart from this forum) on 40mg Pred and no information, no real discussion with the Reg who saw me in A&E, I was in Rheumatology...

After six weeks lonely wait (apart from this forum) on 40mg Pred and no informat...

SnazzyD

•7 years ago

7 Replies

Is this a flare ?

Hi I have been reducing slowly from 60mg after being diagnosed with GCA and PMR in Feb 16 and have coped quite well with a few ups and downs I have been in 6...

Hi I have been reducing slowly from 60mg after being diagnosed with GCA and PMR ...

Wendy-woo2

•7 years ago

25 Replies

A cheery less gruesome post!

Hi all, Apologies for my horrible ankle picture keep cropping up, just thought I'd share a nicer post, my Dads op went well and they removed a tumour the size...

Hi all, Apologies for my horrible ankle picture keep cropping up, just thought ...

Trixiechamp

•7 years ago

12 Replies

Does anyone have any experience of using a vibrating plate to help prevent osteoporosis?

Fairly recent to PMR - I posted a couple of weeks ago to say Rheumy was doubtful because I'm "atypical", but tests seem to have ruled out virtually everything...

Fairly recent to PMR - I posted a couple of weeks ago to say Rheumy was doubtfu...

katie-w53

•7 years ago

48 Replies

4th Session

Now aged 66 and been on Pred 4 times starting each time on 15mg and tapering down to 1mg at 8 week intervals. Presently on 1mg and for a while been getting...

Now aged 66 and been on Pred 4 times starting each time on 15mg and tapering dow...

KCRoyals

•7 years ago

28 Replies

Can MRI Angiogram shows any artery inflammation.

Hello. English is the second language for me please forgive my writting. I've been complaining from the vision problem, headache, temporal and skull...

Hello. English is the second language for me please forgive my writting. I've b...

mel-21

•7 years ago

13 Replies

Prednisone and leg cramps

Months prior to be diagnosed with PMR, I use to get leg cramps in my right leg thigh and calf. I started taking 250mg of Magnesium Malate powder every night...

Months prior to be diagnosed with PMR, I use to get leg cramps in my right leg t...

hiandri

•7 years ago

18 Replies

Wee flare up

I'm new diagnosed in Jan had been unwell few months before that I was on 20 mg pred and after 6week reduced to 15 this was ok but had flare up 3 weeks ago due...

I'm new diagnosed in Jan had been unwell few months before that I was on 20 mg p...

renasykes

•7 years ago

3 Replies

Consultant appointment booked!

Hi all Just thought I'd let you know that I have booked to see the consultant in Chertsey for the 15th May (he is on holiday ATM) so will let you know how it...

Hi all Just thought I'd let you know that I have booked to see the consultant i...

Trixiechamp

•7 years ago

23 Replies

Am I not moving my leg?

Hi all, Recently diagnosed with GCA and PMR, and feeling so better on steroids yet had a gentle reminder today. The young man was asking me to raise both my...

Hi all, Recently diagnosed with GCA and PMR, and feeling so better on steroids y...

Tj2017

•7 years ago

17 Replies

Itchy scalp

I have GCA but have managed to get down to 7mg from 40mg. The problem I have is I have suddenly developed an itchy scalp feel something crawling around my...

I have GCA but have managed to get down to 7mg from 40mg. The problem I have is...

Carolred

•7 years ago

6 Replies

Loss of sight scare

Hi Everyone, Hope all are well, coping, with these inflammatory conditions. I am just home from a NYC Hospital w an event that was truly frightening. And again...

Hi Everyone, Hope all are well, coping, with these inflammatory conditions. I am...

Whittlesey

•7 years ago

21 Replies

Syncathin test in Southampton?

Has anyone in the Winchester or Southampton ( Hants) area had a Syncathin test? My rheumy says that 'they don't do it here'. I am down to 4.5mg Prednisolone,...

Has anyone in the Winchester or Southampton ( Hants) area had a Syncathin test? ...

Trenny

•7 years ago

17 Replies

Back to 13mg

I seem unable to get this under control. I had struggled towards the end of 12mg a few weeks back and Dr agreed I could stay on 12mg until next blood test....

I seem unable to get this under control. I had struggled towards the end of 12m...

IdasMum

•7 years ago

7 Replies

Is it a flare?

I was diagnosed with PMR in June 2014. I was started on 20mg of prednisolone and by July last year was down to 5mg. I am still on 5mg. We returned home, in...

I was diagnosed with PMR in June 2014. I was started on 20mg of prednisolone and...

Deemar

•7 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2017

Aint this a kick in the head

Gluten sensitivity and PMR

Steroid side effects?

Docs time

Re is it a flare and alendronic acid.

Nervous about taking Alendronic acid

Dosage

Pins and needles in hand

another hurdle

AA

Steps

Still wondering about effects of biopsy

Flare

Shortness of breath

Is it polymyalgia or the steroids that are making me feel so ill?

First Rheumatology appointment after A&E

Is this a flare ?

A cheery less gruesome post!

Does anyone have any experience of using a vibrating plate to help prevent osteoporosis?

4th Session

Can MRI Angiogram shows any artery inflammation.

Prednisone and leg cramps

Wee flare up

Consultant appointment booked!

Am I not moving my leg?

Itchy scalp

Loss of sight scare

Syncathin test in Southampton?

Back to 13mg

Is it a flare?

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