Well, the tingling i was experiencing got worse, became difficult to swallow, and blood pressure thru the roof..
Due to fear of stroke with gca I reluctantly went to the Er
no significant signs of stroke, but due to pmr situation ordered mri
Before I went they gave me potassium pills as it was dangerously low, which could have been causing these symptoms.. Said bananas arent enough, and since I take a diuretic I need to supplement.
Then came the shock, as mri showed moderate possibility of ms, due to white plaques
Would fit the parasthesia,
Will see neurology next week, and they did say it could be something else, as had mri mra in sept which I was told was fine. But now I am questioning if that report was misread
So now, with extra potassium on board and expecting call from my rheumi in am
I am going to try to get some sleep .. Think good thoughts that what the radiologist saw was not what the neurologist will see next week.
Staying at 25 mg not going to decrease ,to much anxiety to do that, so now that I know it has nothing to do with tingling and i need not worry about gca blindness Though if ms i would have thought pred would have helped the symtoms... So maybe? its all about the very low potassium.
be well
Gina
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galp
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Onan MRI of my back a few months ago, an area of high signal shows at T1. I have not had a significant diagnosis of this, yet. I know that one of the possibilities is MS. Worried, too.
Please let us know your outcome.
Thanks.
Good wishes to feel better, Galt. <3
Also, you mentioned tingling hands --?
This was one of the first symptoms I experienced, last Friday, which sent me to the emergency room in NYC, U.S, for what turned out to be among other thongs a GCA flare with left eye partial vision loss.
Very scary.
Had been walking in a suddenly hot (80+° F) sun, when my hands started tingling, in a major way, suddenly hard to swallow and breathe. At the ER, had the vision loss later ( resolved by higher pred).
Never any resolution of the heavily tingling hands and rosy, itchy cheeks.
Trying to sort it out, now, along w doctors Who have been effective in the past.
So glad you are feeling better. I hope it continues. Am about to take a supplemental dose of pred, will include a potassium tablet.
Thank you, i need the support for sure.. I too getting my pottasium script filled
Better from the dose in hosputal yesterday!
I am so sorry to hear about your problems,I can't help with the answers you seek,but I will keep you in my thoughts I hope results turn out ok for you.Try to stay positive.gentle hugs coming your way.xx
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