I am taking part in a research project that is looking at the fatigue we experience with PMR/GCA. As part of it I wear a monitor that counts my steps. They did an analysis of my first results and are now asking me to increase my steps towards a goal, a third more. The thinking behind this is that once PMR has settled we are left with residual muscle weakness and fatigue a lot of it comes from the steroid treatment. A gradual increase in exercise is thought to combat this to some extent. I thought I'd share this with people who are at my stage. Walking on the flat feels pretty good. Pilates is highly recommended too.
I am on 9 mgs of Prednisalone and am way past the stage of being disabled as far as mobility is concerned. I do however feel quite ill, tired and demotivated sometimes. This maybe a simple solution now the better weather is here.