I seem unable to get this under control. I had struggled towards the end of 12mg a few weeks back and Dr agreed I could stay on 12mg until next blood test. Blood test 5 weeks ago showed raised ESR & CRP and last weeks showed slight (very slight) reduction. I have not felt well, have felt like I am performing at around 65% of my norm on steroids which has felt like 90% of my old self norm.
Returned on Friday to Dr to ask to raise my dose as I was just getting by each day, sleeping x 2 per day and not managing much of my activities of daily living. Each task was wearing me out and my spoons were in short supply. I couldn't imagine having much energy to enjoy my visit to meet my granddaughter in 10 days time.
He agreed to increase me (it seemed reluctantly) to 13 mg and wants me to go back to the rheumy as he says this isn't how it should be. (I'd already increased me to 13mg for the last day or 2 anyway, in the hope of feeling a little better and now the blood test was out the way. So, yesterday I felt so good! Moving better, more energy, got some light cooker cleaning and sink cleaning done (all things I could only look sadly at as I dished up another meal). Baked a cake.
Today I feel good but probably a little knackered from yesterday and i know that will pass and I have nothing pressing to be doing. I just wish I could see myself getting down to 9 mg which seems to be the magic number that I hear so often.
What do you think? Abnormal or just difficult?
PS. I have found a secret stash of 5mg Pred How would it be if I took 15mg every other day whilst I am away? Can I get away with it do you think or will it make things harder when I come back.