Hope all are well, coping, with these inflammatory conditions.
I am just home from a NYC Hospital w an event that was truly frightening. And again it concerned doctors, claiming to be "experts" in GCA, and not knowing what the h--- they were doing.
After 2 bouts of penicillin, I walked in the hot sun, my cheeks were red, itchy, having trouble swallowing, then hard to breathe.
Went to Hosp, clclosest, which happened to be affiliated with the Hosp who missed the GCA diagnosis.
After an opthmalic exam, I started losing vision in my left eye.
Upon telling the opthalmic dr there, she said she would be back.
She didn't return. They didn't include my maintenance dose - 2 MG's of medrol in the medications given, the next day there.
I finally got that -- 8 hrs later. Asked for a larger dose because of the frightening loss of vision.
I got the opthmalic Dr to return.
She said her boss, who was a GCA expert said he had put all my data in the computer and the last 4 times my c reactive protein was high, I had had no vision loss,
I couldn't be having now! now.
But I was!
Back and forth, back and forth explaining GCA etc etc ---
One young Russian Dr said she agreed w me and got the increased medrol (20 MG's) and gave it to me.
Experts? Sounds good doesn't it, in a prestigious office?
The young Dr is a doctor, treating her patients.
This is so,