I was diagnosed with PMR in June 2014. I was started on 20mg of prednisolone and by July last year was down to 5mg. I am still on 5mg. We returned home, in France, on 13/4 after spending almost five months in New Zealand. Thank you for advising me to have special assistance at the airports, it was well worth swallowing my pride. It is not only the walking but also the long waits in immigration queues which are avoided.
Four weeks before we left I went horse riding. I have ridden all my life but had little opportunity to do so over the past three years. I have ridden at the stables there many times during our last visits and know the terrain and the horse I was riding well. I know I shouldn't have done it but I had three good, uphill canters and on the last one felt a tearing pain in my lower back. I was able to carry on, at a walk, back to the yard. I assumed I had pulled a muscle. After two weeks of considerable pain and taking many doses of paracetamol, which helped a bit, I went to the doc there. She said most likely muscle and advised physio. I managed to fit in three visits to physio before we left. She thought it was bone which had been compressed and did give me some relief. Journey back was ok, airline seat supported the area well.
On our return we had six month rdv with our GP on the 20/4 with comprehensive blood test. He checked out my back which was still quite painful and suggested X-ray. He was concerned about the blood test results
Sedimentation rate up from 43 last test in 9/16 to 67.
CRP up from 15.2 to 32.2.
He suggested that I have another blood test in four weeks before seeing the rheumatologist.
At this point I should say that I have much more faith and confidence in my GP than in the rheumy who is always very perfunctory.
So X-ray was last Friday. It showed some small area of compression but doctor there was not sure that that was where I am feeling the pain. Good news is that hips are OK! Every cloud has a silver lining!
E mailed letter from that doc to my GP. He replied this am to say that he believes the pain to be rheumatic and to see him if not seeing rheumy this week. Was planning to visit rheumy the week after next after next blood test. By some miracle my GP has an appointment free at 4pm today so have taken that up.
So is the back allied to the PPR? Am I having a flare? That is the question. It seems that I am getting more stiffness in my legs and slight twinges in my arms. The back pain is like a belt tightening around my waistline . It is quite bearable during the day but very painful when I get out of bed. I have been very, very tired since our return but had put that down to the journey. It's all very insidious isn't it?