Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2017

Tech problems

I have reported the problem twice now, but it is becoming more widespread so perhaps we will see some action soon.

I have reported the problem twice now, but it is becoming more widespread so per...

polkadotcom

•7 years ago

4 Replies

Fatigue - in 13 different guises

A friend posted this over on her home forum today (LupusUK if anyone is interested). https://www.sjogrens.org/blog/2019/13-types-of-sjogrens-fatigue Now I know...

A friend posted this over on her home forum today (LupusUK if anyone is interest...

PMRpro

Ambassador•7 years ago

28 Replies

GCA

This is a bit off tangent but I thought I would give it a go. For the 2yrs leading up to my diagnosis of GCA I was constantly back and forward to my GP with...

This is a bit off tangent but I thought I would give it a go. For the 2yrs lead...

Maganne

•7 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Techical query ?

I have to log in with email address and password now every time I read the posts. Does everyone have to do this now - never used to do this - any ideas ?

I have to log in with email address and password now every time I read the posts...

Wenben

•7 years ago

15 Replies

Aberdeen support group

Does any one know if there is GCA support group in Aberdeen Thanks

lyndamcw

•7 years ago

4 Replies

Methotrexate

Hiya This past Saturday I took my fourth dose of MTX- now on the required dose. The 2 weeks before, I felt rough both weeks. My ESR was raised so upped...

Hiya This past Saturday I took my fourth dose of MTX- now on the required dose....

lesley2015

•7 years ago

15 Replies

Medication timings

Hi everyone I have a query about my medication if you can help? My GP said it was fine to take my thyroxine and prednisolone at the same time but I am...

Hi everyone I have a query about my medication if you can help? My GP said it wa...

JulieR2

•7 years ago

17 Replies

Want to talk to others newly diagnosed with PMR?

We have 2 spaces left - please let me know if you are inetersted: Have you been diagnosed with PMR in the last 6 months? Would you like to participate in our...

We have 2 spaces left - please let me know if you are inetersted: Have you been ...

Hidden

•7 years ago

2 Replies

What "should" I be feeling like?

I've had GCA for 3 years now and my prednisolone dose is down to 5mg. I had thought that by now I would be feeling a lot closer to "normal" than I actually am....

I've had GCA for 3 years now and my prednisolone dose is down to 5mg. I had thou...

AndyTheMac

•7 years ago

5 Replies

1st Step Down

I've been on 20mg of prednisone for one month. My latest blood work (CRP and Sed rate) are both in the normal range. Is going down to 17.5mg for four weeks...

I've been on 20mg of prednisone for one month. My latest blood work (CRP and Se...

Bonnig

•7 years ago

6 Replies

Dopper test.

Hi One of the problems I had before diagnosis of PMR was pins and needles in lower legs. A very tight feeling and swollen ankles. I slightly feel is...

Hi One of the problems I had before diagnosis of PMR was pins and needles in ...

Chrissy1953

•7 years ago

4 Replies

Tapering - pain coming back

A bit worried and need advice please kind peeps. 6 weeks on 20mg Pred - taper down by 2.5mg per week (on Monday) till 10 then 1mg per month. Some of you may...

A bit worried and need advice please kind peeps. 6 weeks on 20mg Pred - taper d...

Slosh

•7 years ago

9 Replies

Would love a diagnosis.

Think I might be in a muddle about posting. I sent a post and only received one reply. By the faithful Pro of Course! I've never found my post again to check...

Think I might be in a muddle about posting. I sent a post and only received one ...

Tonysue

•7 years ago

6 Replies

I'm new...

Hi all, I found this site yesterday, directly after my GP had confirmed what she thought my issue was. I am actually having my blood tests today but there is...

Hi all, I found this site yesterday, directly after my GP had confirmed what sh...

DebbieF1603

•7 years ago

10 Replies

Update

Haven't written for a while. I started to reduce my pred and got down to 4/5 by Christmas. Started to eat healthy and lost weight too, I was feeling good. I...

Haven't written for a while. I started to reduce my pred and got down to 4/5 by ...

jules1955

•7 years ago

4 Replies

Feeling ok....but this fatigue is driving me crazy!

Greetings all! 10 months into my PMR journey, now down to 6mg prednisolone and I'm feeling ok!! .... Feeling positive and a recent blood test showed CRP and...

Greetings all! 10 months into my PMR journey, now down to 6mg prednisolone and I...

MrsMac03

•7 years ago

11 Replies

Stasis dermatitis and Neurontin

I have had stasis dermatitis in my lower right leg for several years and my doctors have been able to manage it and sometimes it even goes away! Use cream,...

I have had stasis dermatitis in my lower right leg for several years and my doct...

BmWalden

•7 years ago

2 Replies

For the pro. Nutrients, digestion, autoimmune disease and prednisone

I agree with you 100%. We cannot get our nutrients from food alone unless we are in super tiptop shape and take no medicine. If this were the situation we...

I agree with you 100%. We cannot get our nutrients from food alone unless we a...

Nap1

•7 years ago

Be the first to reply

I forget to take my Pred this morning

Hi- Please can you reassure me. I am on Pred 3.5, have PMR and getting on OK. I just realised I have not taken my Pred this morning and I am was 10 hours yet....

Hi- Please can you reassure me. I am on Pred 3.5, have PMR and getting on OK. I...

cassie1208

•7 years ago

3 Replies

Query re Mycophenolate

I would be very interested to hear from any of you folks here on the forum if you have been treated with Mycophenolate for PMR/GCA? If so did it work in...

I would be very interested to hear from any of you folks here on the forum if yo...

Gosingen

•7 years ago

5 Replies

Light at the end of tunnel

This is the week when I'm down to 1mg of pred per day and feeling none the worse. Best wishes to everyone who is still struggling and feeling they're getting...

This is the week when I'm down to 1mg of pred per day and feeling none the worse...

Annodomini

•7 years ago

23 Replies

Is the diagnosis right?

In 2007 I found it more and more difficult to walk down stairs in the morning. I was getting stiffer and made an appointment with GP. Blood tests did not show...

In 2007 I found it more and more difficult to walk down stairs in the morning. I...

Tonylynn

•7 years ago

3 Replies

Sore throat, red flushed face.

Hi it's me AGAIN - I hope I am not been a pain. I got a sore throat almost at the start of taking Pred (20mg - beginning Feb thus year) - I am tapering to 12.5...

Hi it's me AGAIN - I hope I am not been a pain. I got a sore throat almost at th...

Slosh

•7 years ago

6 Replies

What to do?

Hi fellow sufferers I've had PMR for two years now. Got down to 10mg of Pred after Christmas and trying , with GP guidance, to reduce. Got down to 7mg but...

Hi fellow sufferers I've had PMR for two years now. Got down to 10mg of Pred aft...

Fran2young

•7 years ago

7 Replies

PMR

Hi fellow sufferers....so interesting reading all your posts. I was diagnosed about 5 years ago with PMR and that was after a year of hell where noone seemed...

Hi fellow sufferers....so interesting reading all your posts. I was diagnosed ab...

barbarac8790

•7 years ago

10 Replies

Thank you...

for the advice re. going on holiday and dosage. Have just returned from a 5 day coach tour in Wales - wet of course, some of the time! but enjoyable. And,...

for the advice re. going on holiday and dosage. Have just returned from a 5 day ...

PhoebeMum

•7 years ago

Be the first to reply

Goodbye!

Well, what can one say? Not sure I can hang about with a lot of cynical people, and spoilsports!! Hope everyone's journey ends with a happy result!

Well, what can one say? Not sure I can hang about with a lot of cynical people, ...

Hidden

•7 years ago

21 Replies

Dry cough

This info might be of use to some of us who are experiencing a dry cough. I had been experiencing a wrenching dry cough with episodes 5-6 times a day. I...

This info might be of use to some of us who are experiencing a dry cough. I had...

GinnyMa

•7 years ago

6 Replies

How to Stop Attacking Yourself: 9 Steps to Heal Autoimmune Disease.

Someone passed this on to me. Well worth a read? My apologies if it has been posted previously....

Someone passed this on to me. Well worth a read? My apologies if it has been pos...

Hidden

•7 years ago

9 Replies

Alendronic

I wrote about damage limitation recently stopping AA but got facts wrong as usual. I am now down to 5 mg preds and I want to know the risk now if I drop the...

I wrote about damage limitation recently stopping AA but got facts wrong as usua...

Sheribrim

•7 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2017

Tech problems

Fatigue - in 13 different guises

GCA

Techical query ?

Aberdeen support group

Methotrexate

Medication timings

Want to talk to others newly diagnosed with PMR?

What "should" I be feeling like?

1st Step Down

Dopper test.

Tapering - pain coming back

Would love a diagnosis.

I'm new...

Update

Feeling ok....but this fatigue is driving me crazy!

Stasis dermatitis and Neurontin

For the pro. Nutrients, digestion, autoimmune disease and prednisone

I forget to take my Pred this morning

Query re Mycophenolate

Light at the end of tunnel

Is the diagnosis right?

Sore throat, red flushed face.

What to do?

PMR

Thank you...

Goodbye!

Dry cough

How to Stop Attacking Yourself: 9 Steps to Heal Autoimmune Disease.

Alendronic

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